just wondering...

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Regular Member

Date Joined Dec 2008
Total Posts : 129
   Posted 2/16/2009 11:16 AM (GMT -6)   
i am curious how many people, who were not cdc-positive for lyme, but were treated, have actually gotten better????? i know there are probably no official numbers, and the people who were treated and got better probably aren't on this forum much, but i feel like i hear no stories of that. i am very unsure as to whether or not i should go down the lyme path and spend all that money to see a doctor and be treated when i have to wonder if lyme's is over-diagnosed. i do not mean to offend or belittle anybody's situation here because i completely believe in lyme and doing anything possible that makes one feel better, but i also worry that lyme is often blamed when nothing else "fits." not that i think diagnoses like chronic fatigue syndrome and POTS (which have been my diagnosis) are any better, as they are names that just describe symptoms and there is no treatment, but lyme's is a very very expensive disease to pursue!!!
so anyways, i have heard many stories of people who had been sick for awhile, then tested definitely positive for lyme, were treated and got better. i grew up in a lyme area in maryland, so i knew many. however, i don't feel that i hear any stories of people more in my situation - cdc negative, but with all the symptoms and a questionable igenex test - who are treated and get better. and by better, i mean not needing antibiotics.
i am just hoping for anybody's thoughts on this.

Veteran Member

Date Joined Sep 2008
Total Posts : 1120
   Posted 2/16/2009 12:53 PM (GMT -6)   
Hi Gracie: I am in the same situation as you. The only tests that showed positive Lyme for me was Fry and Bowen and the doctor I was seeing here did not trust them (his words) So, on the Igenex I had a couple of positive bands and and few IND and he did not think that was positive either. So, I am in your shoes, I have every symptom on the list and have not done the antibiotics yet. So far I am eating an all organic diet, getting moderate exercise and taking olive leaf extract. I did a detox program for a year (for mold toxicity) and it did "wonders" for me. Alot of infra-red sauna, at least 5 days a week, sometimes 6. With all of that, I did fairly well, am sliding now because I left that clinic and do not have access to a sauna. Why not just try the antibiotics for a few months and see how you feel? I am reluctant to take them due to the fungal problems, a different situation than yours there. From things I have read (and I read constantly) you will start to herx if you have Lyme when you are on abx so I would give it a try. I know you are looking for answers and I understand, but Lyme is not a cut and dry thing. We are all extremely different, thats the puzzle of it all. What works for one, will not work for the other, etc etc. Its maddening isnt it?? So, I dont know if I have answered your question but I did much better on a detox program without any antibiotics.  Good luck-   D
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