Hi kelly1234. Why was a spinal tap done? From what I understand, this test shows Lyme in less than 5% of cases. Have you been tested for the co-infections Babesiosis, Ehrlichiosis HME & HGE, Bartonella, and Mycoplasma through a Lyme lab such as IgeneX? This is important. Many doctors believe the co-infections need to be treated first.
It is my understanding that for Lyme treatment to be effective, it needs to be the proper dosages. I don't understand why you will be paying thousands of dollars weekly for treatment. Do you have insurance? Insurance should cover a decent percentage of the IV.
I recommend getting another opinion. Where do you live? If you need a recommendation, you can email me at firstname.lastname@example.org