How many can work?

How many can work?
2
Full time - 16.7%
5
Part Time - 41.7%
5
Not at all - 41.7%

 
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KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 2/23/2009 11:11 PM (GMT -7)   
Trying to get an idea..

Post Edited (KeepHope) : 3/8/2009 1:50:44 AM (GMT-7)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/23/2009 11:36 PM (GMT -7)   
Working part time (30-35 hrs/wk) in 2006 nearly killed me (literally...), and it was only a desk job. I was so sick, lost tons of weight (more than I could safely lose), caught every cold/flu bug going around, and my doctor was seriously contemplating having me hospitalized. Thankfully my contract ended after 6 months. I have not attempted to work since.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/24/2009 4:45 AM (GMT -7)   
Working part time (30 - 35 hrs) is ok in the meanwhile; but i had been off for two years, because I could hardly move ....;
I will check out if I am able to do more this year. dorit

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 2/24/2009 2:17 PM (GMT -7)   
I have a teaching certification but get tongue tied under pressure so I cannot go for an interview to even try to find a job. The last interview I had I left in tears because I know what to do in a classroom, I knew what to say in my head to the questions, but cannot get the words out.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/24/2009 2:29 PM (GMT -7)   
Oh man...ttlittle star, that is so sad. You will make it.

Sorry razzle and dorit. Do you both have a husband or support even?

I had to stop my job 4 years ago. I was a developer. I couldn't get anything right. And then my mind started playing weird tricks on me.
With all of the weird dreams I thought that I was working but was not. I could have sworn that I was doing things. Then I could not
remember people that worked for me. I couldn't remember my own zip codes or phone numbers.
And it was a very stressful job so I dumped everything and down sized my home etc. I faked it alot about knowing things and people.
The fog was a weird place to be. Yet in some ways it was comforting to me.
I was throwing my bills in the trash up till now...lol.
So I have been catching up and paying tons of bills today. lol. All of my plates are exp. and my car was not even
insured. Cannot believe what I got away with. I had no one helping me. And no family here in Fl. And I was taking
care of two kids. Yikes.
More like they were taking care of me. I am doing my photography now and had some shows in the last year.
I am going to pick a new job. And try to do something easy and artistic. If I could sell some of these homes that
I am stuck with I would be really happy..but whatever...one day at a time.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 2/24/2009 2:55 PM (GMT -7)   
I've probably lost 6 months worth of work over the last 2 years, and I had to drop out of school. I don't even want to think about all the things I've missed.

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 2/24/2009 3:12 PM (GMT -7)   
I have for the most part made peace with the fact I will not be returning to teaching. The competition is so stiff out there that the interview is everything. I cannot speak in an interview. Went to one district's open house just to practice, had a list of the questions we would be asked, and couldn't answer a single one even with preparation and practice. I videotape and photograph weddings, but now freeze trying to actually sell myself. Never used to be like this. I feel like I am not me anymore and I trying to figure out what to do with the new me. Don't really care for the new me so much. But it is all I got.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/24/2009 4:43 PM (GMT -7)   
Martha's Vineyard,

Yes, thankfully my Husband has a job that keeps us afloat financially. I don't know what I would do without my Husband - he's wonderful. Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/24/2009 6:39 PM (GMT -7)   
Martha`s Vineyard,

I have a wonderful husband who is very patient and supportive; I didn`t even think all this could be lyme till last year in spring.
When I read through threads like this one, I do have tears in my eyes.

I am still putting all the pieces of the puzzle together for what I experienced (and still do) with Lyme;

I personally think that Lyme has changed parts of my self and it was not easy to accept because I experienced it like an involuntary thing, something I was "forced" to let happen and go. It was a far reaching intervention in my personality.

I wish we all will be well again quickly!!! dorit

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 2/24/2009 7:35 PM (GMT -7)   
i lost my business that was thriving 9 years ago now. I had 4 kids and had to make it on my own
and be sick. I am now losing my house most likely and my car and my last special needs child
is moving finally. It has been the toughest thing ever.
I do not know how I made it and.. Luckily
This is horrible and I may have to now move home with daddy or mommy. How sad

Upon reading the posts here I was reading how people were working. I was unsure how many of us are completely not able as compared to part time and compared to full time. It is interesting to know the percentages..

I wish I could work so badly> I feel such loss and so worthless and I barely can clean the house or do laundry and.. If my 21 year old did not live with me.. He does things like take out trash and such.. And feed the animals.. Things I can not do as i lay in bed.. Its so horrible.

Sorry for sounding negative..
Lyme/Babesia/Bartonella/Mycoplasma/CFS/FMS/EBV/HV6/Toxoplasmosis/Histoplasmosis/CocciValleyFever/HHV12/HypoThyroidi/MVP/Murmur/Biaxin-Plaquenil/Mepron-Zithromax /Ketek/ MsContin/Norco/Synthroid/
/Cholsterymine/Vitamin D3/LLysine/Singulair4Herxing It works!


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/25/2009 6:04 AM (GMT -7)   
I am so sorry to hear all that, KeepHope!

to be honest, I think I only made it back to working b/c i was in the lucky position to decide how much and when to work;
I did some paperwork within our small network of freelancers and they did not care when I did my stuff, so sometimes I didnt do anything for a few days (when I felt to ill/ tired), then maybe work some nights b/c I could not sleep anyway, and so one; I organized it the way that I could do it from home in the beginning at nearly every time I felt to be able to; I started with things with a wider time frame so there was no presure to have it done within a day or two.

But I cannot imagine (not in my wildest dreams) who I would have been able to go to a even part time job where I would have to function for a set amout of hours at ..o`clock,.. straight every day..... no chance, really! I had no energy left over to press myself in such a timeframe; all this had to develop, it did, in the end. And I had a husband who worked and helped me;

If I had to function or loose everything, I would have lost everything.

Post Edited (dorit) : 2/25/2009 6:07:25 AM (GMT-7)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/25/2009 6:17 AM (GMT -7)   
KeepHope,

I feel similar to you because I can't do any housekeeping either, not even laundry or anything. My Husband, who works full-time and even sometimes on weekends, has to do everything, and he's not completely healthy either. My Mom does come over and help sometimes, but it is hard to watch others doing what I should be doing. I feel totally worthless sometimes, and yet my Husband has never complained - he supports me and loves me through all of this. I feel so undeserving.

Just know you aren't alone ~ take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 2/25/2009 7:04 AM (GMT -7)   
I sold new construction real estate for 15 years and was very successful even in difficult economic times. When I was diagnosed in 1995 with Fibro and CFS I had to change careers and go part time. I went to a very part time job in someones home office - 3 hours per day was all I could handle. I was sick a lot and put on antibiotics a lot - and I kept telling my doctor that I would feel better for a while after a course of antibiotics.

Somehow I managed to teach myself Microsoft computer applications and became certified to teach adults. The plan was to work 6 hours 3 days a week. It lasted for several years only because I was "self-employed" and could turn a job down. Teaching is exhausting so I again went to working on a computer in an office - very part time.

I started to stutter, became confused, upset, and sick feeling 24/7. A LLMD put me on IV and I ended up hanging my IV bag on the office wall and when my boss told me she noticed I was having trouble remembering things, I quit. That was 2003. I applied for disability and was granted it finally in late 2005. Meanwhile my husband carried us both financially and paid enormous amounts of money for health care.
I was now a shell of myself.

Today I am about 70% better but I lost 14 years and am beginning to accept that I will never be the same again but that I can reinvent myself. It is sad but I remind myself that there are others with illness and life circumstances who are so much worse off.

I know that all of us on this forum have lost so much and for those who are going this disease alone - I just cannot imagine. I have had my husband but it has changed "us" so much - as I guess any chronic illness does. He has had two heart attacks - in 2002 and 2005.

My husband was in the building business and finally lost his job in January. Somehow we have been watched over because we do have savings that will carry us through. The good thing that has come from it is that he is more relaxed now and more rested so maybe it was a good thing in the end.

This whole thing makes me very sad.
bcaring

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 2/25/2009 1:17 PM (GMT -7)   
I've continued working fulltime since I got sick in Jan '06.  Admittedly I have an easy job and the hours are flexible.  If I have too many symptoms to work one morning I can stay late another night.  Even so I've taken quite a few sick days over the last 3 years.

jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 2/25/2009 1:33 PM (GMT -7)   
work part-time 30-35 hrs a week...i am on my feel all day long running around like a chicken with its head choped off. I have to sell merchandise and do special orders for home deopt. when i first got lyme my brain fog was bad and it was very difficult to remember anything and i would trip over my words speaking to customers, thsi has gotten better but i am always so tired and on my days off i dont want to do anything. I used to have so much energy now i am a hermit....
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg

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