This post is old but I thought I'd share my experience. I treated Lyme, Babesia and Bartonella with prolonged anti-malarial and antibiotics. The symptoms have VASTLY improved though the treatment.
So we thought it was Lyme and co-infections that were the problem but I just found out I have a virus in my urine and it can cause urinary symptoms. The NP (I adore her btw) thinks this might be the missing link.
There is some sort of treatment for it but I haven't yet heard back about
treatment because she is in the process of consulting with a doctor about
In ALL of the patients she has seen (and that's a lot) only one other patient tested positive for it.
I read all the time that doctors do urine tests but the problem comes in if you are just being tested for e.coli or simple organisms.
There is much more advanced technology now so you can do a PCR test to detect the presence of bacteria DNA. I know that PathoGenius offers advanced testing.
I was given the run-around with my bladder for 14 years. If just one person sees this post and can get help it's worth sharing my story. You don't have to suffer for 14 years. However, you do need a specialist to treat this and I have not ever found one MD who can treat it but I know that this NP (Ruth Kriz) has had enormous success. If you type in Ruth Kriz on Google you will get all sorts of hits from the "Interstitial cystitis" sites.
When you have multiple infections (as I have) it's hard to tell what is causing what. But the virus is hopeful and so is Ruth.
I should however let you know that I was treated by one of the top Lyme professionals in the world and he didn't know what to do with my bladder and he told me that straight up.
Just because you have Lyme it doesn't mean it's necessarily responsible for the IC or bladder symptoms or whatever we call it.
I too thought it was Lyme but I am convinced that it's not after years and years of antibiotic and co-infection treatment.
Post Edited (kayaklove) : 6/15/2017 3:33:05 PM (GMT-6)