How "screwed" am I for having Bartonella, despite catching Lyme early

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RainBaby
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Date Joined Feb 2009
Total Posts : 41
   Posted 3/3/2009 4:01 AM (GMT -7)   
I probably have had Bartonella for 2 years, adrenal fatigue or whatever you want to call it for 7 years (brought on by severe and recurrent anorexia long ago), and Lyme for almost 1 year.

I caught the Lyme about 3 weeks after I probably contracted it and started on doxy, but I did not get much better, and I relapsed whenever I stopped doxy. My docs quit giving me abx since they said I was "healed," so I used the Buhner herbs until I could start seeing a good LLMD. Finally, I'm starting Bartonella and adrenal treaments (as in, this week or next).

Am I "screwed" at this point (pun intended!) for having had Lyme for 10 months but not having had the Bart or adrenal fatigue treated until now? As in, do I now have chronic Lyme, even though I caught the Lyme early and tried to treat it?

I do have copious floaters, interstitial cystitis-type symptoms, and general brain issues, but I don't have arthritis or any joint issues (yet). I have intense Bartonella symptoms. I did have a prolonged (and still ongoing) herx when I started Biaxin and Plaquenil a month ago.

I am just scared. Originally, I thought I was one of the lucky ones who had an EM rash and caught their Lyme early, but now it's starting to seem like it was to no avail since I had untreated Bartonella and adrenal fatigue all along...

New Lymies (those who catch it early) need to know that if their treatment isn't working they should get coinfection tests and treatment asap!

Oh, and reading over the long Bartonella thread, - it seems hard to treat. Can you get over Bartonella?

Post Edited (RainBaby) : 3/3/2009 4:06:39 AM (GMT-7)


pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 3/3/2009 9:03 AM (GMT -7)   
This is such an important point that people need more than just doxy when first treated. the ticks are dirtier than ever and I tell people to take doxy for 1 month with artemesin 200 mg 3x/day with Argentyn colloidal silver (2 tsp twice daily). You will get better.the trickiest part is figuring out the infection. Bart is such a mood maze...good luck

judy3
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Date Joined Nov 2006
Total Posts : 667
   Posted 3/3/2009 10:47 AM (GMT -7)   
First remember you are on the right track, you went to see an LLMD and they will help you recover, I am wondering what they are doing for your adrenal issues and how did they figure out you have adrenal issues and how did you get bartonella before Lyme Disease?

RainBaby
Regular Member


Date Joined Feb 2009
Total Posts : 41
   Posted 3/3/2009 11:05 AM (GMT -7)   
I think I've had Bart before I got Lyme. Schaller says you can get it from a variety of things: animals, fleas, even flea feces.

http://www.publichealthalert.org/Articles/jamesschaller/ignore%20bartonella%20and%20die.html

I first started having a) sore soles in the morning and b) violent/sudden emotional responses in spring 2007. If something upset me, then all of a sudden I would hit myself or hit my boyfriend or scream or something, out of nowhere, without having planned to do so. It was completely out of my control. I tried CBT but it didn't help. the only way I could avoid it happening was to avoid heated conversations.

This symptom got extremely bad while I was on Biaxin and Plaquenil recently, and while I stopped taking my Japanese knotweed which I'd been using for a few months. I was losing control several times a day and was afraid to leave my house. Also I had meningeal swelling- felt like there was something weird happening in my brain.

My doctor switched me to zithromax, which goes into the CNS better, and now the symptom is gone - I can't even lose control like that if I try. I have a phone appt today to check up on this - I hope I continue to get treatments that prevent or cure whatever is making me reactive like this.

about the adrenal fatigue:

I've had many of the symptoms for years. The symptoms began in earnest after the first time I was anorexic. Long-term stress can cause adrenal fatigue. Symptoms I experienced:
-having to eat frequently, not able to maintain blood sugar for long periods without eating
-felt like eating in order to get energy and motivation even if not hungry (eating causes a temporary increase in cortisol)
-low blood pressure, dizzy upon standing
-poor recovery from illness or exercise
-general fatigue, low motivation - none of the drive I had before
-feeling better in the evening than in the morning (cortisol cycle is messed up so that it's higher in the evening, whereas it should be higher in the morning)
-trouble falling asleep
-poor stress response, can't mount the body response

All these symptoms got much worse while I've had Lyme. My doctor also noticed:
-sweaty hands and feet, excessive underarm sweating, especially when nervous or surprised (due to excess adrenaline, from having too little cortisol and thus less negative feedback on the adrenaline)
-excessive startle reflex
-noise sensitivity, because unpredictable noises cause a startle reflex in me every time they happen
-feeling faint or dizzy when standing after sitting or lying
-wavering pupils that can't hold a contraction (see the pupil test for adrenal fatigue)
-low body temperature (avg around 96.5)

I did the DiagnosTechs Adrenal Stress Index but didn't mail the samples in time, so I have to redo the test. But we are pretty satisfied from my symptoms that I must have something going on with my adrenal glands. Will be good to get the test done and to start treatment.

I hear that it's important to take care of adrenal issues in order to get better from Lyme.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 3/5/2009 10:48 AM (GMT -7)   
Bart cases untreatable depression and panic attacks.
I found out that I had it in....nov. The put me on Levoquin for 30 days. And I not longer have a problem with it. But I was also getting ozone therapy at the same time and cs and tons of supplements to arm my bodies own defense team.
You don't get rid of these bacteria for good. But like herpes you keep it under control wit a good immune system.
Igenex can find lyme in anyone's blood. But if it is really a problem and taking over then the CDC will pick it up.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 3/6/2009 9:45 AM (GMT -7)   
I hope this is not a long endless road to recovery as I was also discovered to have bart later - last month in fact. I am going into my second month of Levaquin. As I did not have the monthly lyme cycle this past month with spasms, headaches etc. I am thinking much of the lyme is under control. The LLMD told me 2-3 months of Levaquin would eradicate the BLO if I can tolerate it. So far, so good.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 3/6/2009 6:42 PM (GMT -7)   
very - but that's just my own "personal" he1I on earth. rolleyes   nono   rolleyes
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


Girly
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/9/2009 8:59 PM (GMT -7)   

I as well was diagnosed with Bartonella and not Lyme. My doctor wants to put me on plaquenil and some antibiotic. It all started when I was diagnosed with interstitial cystitis and on my last blood test they found me positive for the BART. I haven’t taken the medication yet because I’m so concerned on these die offs my doctor told me about and how sick I’m going to feel. I’m supposed to get married in a few months and now I’m being told this horrible news. I don’t believe I have any systems yet I feel great. Has anyone heard of anybody being cured of this co-infection they call bartonella?


SusanLyme
New Member


Date Joined Jan 2014
Total Posts : 16
   Posted 5/22/2014 8:58 PM (GMT -7)   
What is the relationship between bartonella and the adrenal glands? Why are people talking about "adrenal fatigue"? I don't get it. Please explain.

PrayingForAMiracle
Regular Member


Date Joined Apr 2012
Total Posts : 289
   Posted 5/25/2014 6:37 PM (GMT -7)   
Martha's Vineyard said...

Igenex can find lyme in anyone's blood. But if it is really a problem and taking over then the CDC will pick it up.


That is not true. I only had one band positive in all my test from my former LLMD and other DR's. I was tested repeatedly and it was always negative.

The thing is I remember pulling ticks off of me, i remember the bulls eye rash and I went to a DR to show him. He denied it was Lyme and blamed a spider.
My health continued to decline till i was bedridden and I went to a a LONG list of Dr's....some of whom told me I was nuts and that nothing was wrong with me.

Finally after an MRI, the DR. at the hospital said it looked like Lyme to him. He suggested I see an LLMD who was 100% convinced I had lyme even though the test were negative. I had ALL the symptoms and my cd57 was extremely l,ow. My former LLMD said he thought the Lyme and co-infecgtions were hiding after so many years and explained they are good at that AND he explained that testing is not 100% accurate. We found out rather qucikly that my body was unable to deal with the amount of drugs he was giving me. Before he came up with another solution he was run out of businss.

Garden Peace
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Date Joined Sep 2012
Total Posts : 4191
   Posted 5/25/2014 7:22 PM (GMT -7)   
SusanLyme, adrenal fatigue is when stress of any kind pushes your adrenals past their tolerance and they get weak, not able to do their job as well, which is to put out more cortisol to help your body handle the stress. It's not unusual to have it when fighting a chronic illness. Our modern day lives and diet stresses a lot of peoples' adrenals.
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