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Veteran Member

Date Joined Mar 2009
Total Posts : 674
   Posted 3/18/2009 12:28 PM (GMT -6)   
I am reading everyones posts. I am having foot pain too. I am just beginning to explore all of the lyme symptoms and im flabbergasted by the co infection possibilities. We must be our own primary doctors. So what causes foot pain. I feel like my pads on my feet are non existent and the bones just hit the ground it is terrible i have to were slippers no bare feet or even just socks, it hurts to much. so what is that guys? confused

Veteran Member

Date Joined Oct 2007
Total Posts : 1172
   Posted 3/18/2009 3:27 PM (GMT -6)   
My first symptom was foot and anckle pain/arthritis. Now they are very weak, tingley, and I have heel pain constantly. I think it can be a symptom of bartonella. Mine went away with rifampin, flagyl, and IV rocephin, so who knows? It's back now that I stopped those abx.
I am going back on rifampin soon I hope. I am also doing bicillin shots.
Have you been tested for co-infections?

Veteran Member

Date Joined Nov 2008
Total Posts : 759
   Posted 3/18/2009 6:23 PM (GMT -6)   
Some kinda plantar fascitis or tarsal tunnel syndrome.

There's help! Rest will do the trick (unfortunately).

At night elevate your feet. While you sleep. Just get a big pillow and place at the end of your bed.

Soak in ice water if you can.

anti inflammatories if you can get some -- i know lyme disease prohibits it -- but see what they can give you.

Buy some special heavy duty pads to cushion those feet.

Last but not least a cortisone shot to each foot. I know it's taboo, but it works.

Veteran Member

Date Joined Mar 2009
Total Posts : 674
   Posted 3/18/2009 11:18 PM (GMT -6)   
Thanks georgiagirl and hopingtofindcure. This is the begining for me I havent been to a Lyme Literate Doc yet. One has just been suggested in my area. All info helps. Its just that in my heart I know I have Lyme. A rheumatologist says I prob have imflamatory reactive arthritis. the infectious disease doc says he thinks I am just stressed. He gave me a serologic blood test neg for lyme. I wont rest till I have a Qribb and Western blot. Nnow this coinfection thing is ahhhhhhh. more confusing. And my brain is not working.

Veteran Member

Date Joined Mar 2009
Total Posts : 674
   Posted 3/18/2009 11:24 PM (GMT -6)   
My neurologist gave me anti inflammatories which did not work any way though he was treating the back pain with out a diagnosis. why do lyme docs not give ani inflams hopingtofindcure?

Regular Member

Date Joined Mar 2009
Total Posts : 37
   Posted 3/19/2009 12:00 AM (GMT -6)   
I get foot pain and muscle twitching in the soles of my feet-almost like a charlie horse. It's painful!...epsom salt baths or foot soaks help with it, or even arnica gel/cream from the health store as an option. Hope this helps! Best of luck to you.

Veteran Member

Date Joined Feb 2008
Total Posts : 900
   Posted 3/19/2009 10:05 AM (GMT -6)   
Foot pain, especially in the AM is characteristic of bartonella and most people have a co-infection - at least one, often more. You should not take steriod type anti-inflammatory drugs which suppress your immune system or the lyme will be much more difficult to treat because the ABX work with your immune system and if it is suppressed. . .
It is a good idea to seek an LLMD sooner rather than later because the disease will continue to progress. I was treating the lyme but not the bart for a year. I had to travel over 1000 miles round trip and it was costly but at least the doctor knows what he is doing.

Veteran Member

Date Joined Mar 2009
Total Posts : 674
   Posted 3/19/2009 10:57 AM (GMT -6)   
Wow I have had about 4 dose packs of steroids From the neoroligist who saw my swollen knee and gave then to me. A few months after my feet began to hurt. Great! These docs what is wrong w them! How does this go on!

Veteran Member

Date Joined Nov 2008
Total Posts : 759
   Posted 3/19/2009 7:27 PM (GMT -6)   
I think the cortisone shots are okay. I think it's case by case. I've had only minor setbacks and let's face it sometimes things get inflamed and cortisone is the only trick doctors have to provide immediate relief.

There are other anti-inflammatories one can take with Lyme and while on ABX!

They have their place. I just haven't been prescribed one. Can someone help me out? What antiinflammatory is safe?

Veteran Member

Date Joined Jul 2007
Total Posts : 943
   Posted 3/19/2009 7:40 PM (GMT -6)   
My feet have been killing me since I got bit for the 3rd time in 03. The pain actually went away while I was on amonycillin and mepron of all things 2 years ago. However it is back now worse than ever. But if I think of all the symptoms that have actually left, I feel hopeful this will get better too.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

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