IV antibiotics

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pottersclay
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/23/2009 8:13 AM (GMT -7)   
 
   Hello,
 
      I've been dealing with Chronic Lyme for over 15yrs. and just got a diagnosis for lymes 3yrs. ago. I found a lyme's specialist 1 yr. ago. He wants to put me on IV antibiotics in a couple weeks. I am very nervous about this. Has this helped any of you who have done this? I feel like this is my last ditch effort and then I'd like to go herbal and maybe go on the scd diet to see if that helps. I have heard that the IV antibiotics is the only thing that will get to your brain and since I have much pain on the right side for 15 yrs. I thought I would give it a try, but the more I read about it the more nervous I get. Thanks for your insight! :-)
                       Pottersclay

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 3/23/2009 10:52 AM (GMT -7)   
pottersday, I'm sorry you've been sick for so long but it's great that you finally were diagnosed and seeing a llmd who knows how to appropriately treat lyme disease. I just had a PICC line put in on Thursday and if I can do it trust me anyone can. lol I was amazed at how quick and painless it was to have done and walked out of the doctor's office feeling fine about the entire thing. All I felt was a pinch and actually have felt more pain when having blood drawn at times. I experienced more anxiety than I ever thought possible at just the thought of a PICC. I never experienced anxiety before and actually thought I would need to start taking anxiety meds the entire 6 months the PICC will be in. As irrational as it sounds I kept telling everyone I would be more comfortable undergoing surgery than having a PICC line in me. Now, I just hope it does a good job at getting to the bacteria in my brain and I wish the same for you. Good luck. Valerie P.S. On my way out of the doctor's office I ran into a nice woman who told me her daughter had a PICC line in for six months without any problems and she is now feeling much better.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/23/2009 11:28 AM (GMT -7)   
pottersclay, I have had lyme for over 18 years. I got diagnosed 6 years ago after my 3rd bite. I did not get the right treatment until 2 years ago when I also found out about my co-infections and thyroid issues due to lyme. I went on IV last year after 1 year of antibiotics. I was on IV for 3 months. Having the PICC put in was no big deal and neither was the infusing 2 x day. As long as you keep it clean and dry you will have no problems. While on the IV I did not feel any better however, after I went off as the weeks went on I felt better and better.

I have been on orals since then and am gradually getting into herbals until the day I can stop antibiotics. I also have co-infections and am getting better all the time. Try the IV it just might make the difference for you.

Feel free to ask questions, this board has been a life-saver.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


pottersclay
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/23/2009 7:07 PM (GMT -7)   
Thanks for your help/input! I also have coinfections as well. I am impressed that you have kept track of all your meds. I don't think I have done that. It is encouraging to know that you felt better after the iv antibiotics. I wonder how they determine how much of an antibiotic to give you. I noticed you had to fill your IV twice a day. I am only having to do mine once a day. If the IV had helped it must not have solved everything as you said you are still on antibiotics (minerals)? Does anyone with chronic lyme ever get off antibiotics? Have there been those with chronic lyme that are now well? I guess I am trying to figure out if I will ever be well again, feel normal? Thanks again for your help and encouragement scorpio1960 and minerals!

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 3/23/2009 7:20 PM (GMT -7)   
Pottersclay, I'm not sure if I will ever feel 100% well or normal again but at this point any significant improvement would be a blessing. Try not to stress too much about the PICC and give it a try. It really isn't worth stressing about although I do understand because I was very irrational regarding the entire PICC issue before it was done. You'll be fine and hopefully the IV's will be just the thing to work for you.

pottersclay
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/23/2009 7:35 PM (GMT -7)   
Thanks! I already feel better knowing that others have had positive results!

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/24/2009 7:50 AM (GMT -7)   
I don't think I will ever feel as I did before either but I get improvement everyday. No the IV didn't take care of everything as I had/have babesia and bartonella along with micoplasma and who knows what else. However if I look bakc to 4 years ago when among other symptoms I was dragging my entire left side, couldn't sleep, had many food sensitivities, muscle/joint pain, burning tongue and lips, stiff neck and headaches that wouldn't quit I'd say I have gotten far.

Everyone is different in their treatment needs. Begin to keep track of your meds as you need to know what works and doesn't for you. You will probably be on many combinnations to attack the bacterias from different angles and cycles. As some things clear up some other things come out, then you will get them too. But eventually you will beat it enough to feel much better than you do now.
Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

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