The Igenex lab is a Lyme specialty lab in California. You do need a doctors order to get the test. You can call them and order the kit yourself to bring to your doctor if they are not familiar. The advantage of this test is it is more specific than a standard doctors kit test. It lists the bands seperately as well as the intensity of the bands. Myself and my husband did get our positive results with the standard doctor kit. Not CDC positive but specific bands that warranted treatment. My son as I stated has had 2 indeterminate Igenex tests. I personally wish I would have started with him on the standard doctor kit and then followed up with the Igenex because now my Lyme illiterate family doctor is refusing to do another test because in her opinion the indeterminate tests are considered negative... I know that this is just not the case so now I have to wait to get him in to see a LLMD that will either order another test or treat based on symptoms...
I guess I am still wondering the same as you as to how common congenital lyme is. When you read about it you mostly find that these babies are very sick... Mine are not but they all have symptoms, mostly intermittent, and other than my oldests concentration, comprehension, learning issues and neck pain can be written off as normal... What concerns me is my sypmtoms were not necessarily typical... Not my husbands either and I would prefer to find out if they have this while they are still young and treatment is much more successful...
I'm guessing to get to the bottom of this I will have to see a true LLMD. I have been seeing a recommended Infectious disease specialist but he is still the type that will not even see a patient without a positive test result and so far his advice to my family doctor has been detrimental to my search for answers.
Good luck to you, feel free to contact me anytime :)
Neurologic (tingling) Symptoms began July 2007 Spinal Tap Test for Lyme came back negative.
Arthritic Symptoms began March 2008 Blood Test positive.
Oral Doxycycline began May 2008 added Ceftin July 2008
Switched to IV Rocephin November 2008
3 Days of Oral Tindimax February 2009
IV scheduled for removal April 2009