Am I crazy or is this Lyme?

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Snap
New Member


Date Joined Mar 2009
Total Posts : 3
   Posted 3/29/2009 6:41 PM (GMT -7)   
First I live in a tick area and have pulled them off my dog before. about 4 years ago I had the ring. I didn't know anything and thought it was a wierd bruise or maybe ring worm. Before I went to the doctor it cleared up and I didn't think any more about it. That fall (couple months later) I started to become very ill. I have always been healthy and suddenly I could not get out of bed. I would get up and get my daughter to school and have to go back tot bed. My husband thought I was just being lazy. I suddenly was diagnosed with severe asthma and allergies and could not breathe. I was treated with asthma medicine received some allergy shots and had a couple rounds of mild anitibotics and steroids for asthmatic bronchitis. I felt well enough to work some but have never fully recovered. I have very stiff joints, bad lungs, headaches and extreme fatigue. If I push myself I end up with bronchits. After the mild antibotics and steriods I always feel better for awhile.

Especially after stress I have weird heartbeats and dizziness. I have been depressed but have had stress to explain that. Muscle pains and stiff joints. Eye pain and red eye which I thought was allergies. HArd time breathing even when taking Advair. Doctor would just say I was out of shape, which I am but when I try to do something it just HURTS!

Trying to make this short. Well even though I am educated and usually sane I did something very stupid last Monday after my Husband said he was leaving. I had been on an emotional roller coaster and he had said he was staying. Well Monday he said he changed his mind. At the hospital I had a very irregular heartbeat and trouble breathing. They thought it was because f what I did. I ended up spending 6 days there because while there they discovered I had high blood sugar, white blood cell count over 20,000 with high platelets. We started to think that Monday was because more because I was sick and not sick because of what I did. They ran tests and pumped me full of MAJOR antibiotics.

Well my counts never went down but they never went up. They released me with referrals to an oncologist, not that I have cancer but they will track my blood counts. What was amazing is while on the IV antibiotics my whole mind and body changed. My joints cleared up, I actually sat crossed legged on the bed (indian style) without realizing it for the first time in years. My eyes cleared and I felt the brain fog lift. I had red spots on my legs for years that the doctor thought were healing bruises when she commented on them. Within hours they were gone. No muscle pain. No pain NOTHING!

I am 48 hours since the last IV antibiotic and everything is returning. They testes for Lyme and said it was negative. I am not convinced and don't want to let this continue by listening to that again.

Could this be Lyme?

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 3/29/2009 7:48 PM (GMT -7)   

Hi Snap, welcome to the board!

I am sorry you are going through so much.  Although only about 50% of people who have Lyme ever get a rash, a bulls-eye rash is a definite sign of Lyme.  I think you could be on the right path since you had the rash and your symptoms began shortly after.  Please know that people who have Lyme should not take steroids because they suppress the immune system and can make symptoms worse.

Below is a Lyme disease symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  No test is completely reliable, and results can vary by lab.  It is my understanding that the ELISA or titer is the least reliable test and the one most doctors run first.  Do you know if this is the test you had done?

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

I am not a medical professional, but to me your symptoms sound like they could possibly be from Lyme and Babesiosis.  Because you responded so quickly to the antibiotics, it sounds like you have some kind of infection.  If you need a doctor recommendation, you can email me at ko_@bellsouth.net  

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.

I hope you can get answers soon.


Snap
New Member


Date Joined Mar 2009
Total Posts : 3
   Posted 3/29/2009 8:39 PM (GMT -7)   
Thank you, I just sent you an email. The more I read the more I am convinced. Even things like Night sweats I have. I can't even cover up on the coldest nights. I printed out the Burrascano packet and will look at it tonight. No matter how tired I am I can't sleep at night. Then have trouble waking up and staying awake during the day. No matter if I nap or not during the day once it hits 8pm I can't sleep for anything. So many things I have just put off as stress or because I don't take good enough care of myself.

I have said that being on Advair for Asthma in some ways made me feel worse. Guess I wasn't so crazy. It is an inhaled steroid. That is going in the trash.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 3/30/2009 6:22 AM (GMT -7)   
I am so sorry about everything you have gone through. It does sound like you have lyme due to the fact that you had an the EM rash which is diagnostic for the disease. Bartonella is another bacteria ticks carry that causes other types of skin rashes, maybe what you had on your legs. You should see an LLMD as soon as possible. Keep coming back as you search for answers and treatment. This is the only place you will find people who totally understand and have the knowledge from experience, to help.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/31/2009 12:43 PM (GMT -7)   
I feel for you sweetie pie. I will bet that many on this forum would agree that you probably have lyme and maybe a co-infection if for no other reason than that you felt so much better on antibiotics. Get the right help and go to a doctor who will treat the symptoms not the tests if you come out negative. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

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