Conference in KC, Fry Labs

 I was wondering the same thing.  Paitence is not one of my virtues.

I would have posted about a month ago, but just wanted to wait for the conference.  Simply stated...it is a PROTOZOAN.  This organism is not a bacteria.  It has DNA properties of Toxoplasmosis Gondii and Malaria.  It is the "malaria" of North America.  This organism is not seen in the Tropics because it cannot survive at that tempreture.  It is a single celled...Apicomplexa.  It has a tail and is so small that regular blood sears will not find it.  It feeds off arginine and the reproductive cycle is currently unkown.  A DNA match is pending...because this could possibly have already been recognized in the Vetenarian world.  It is a destructive pathogen that adheres to RBC's and it believed to be behind the majority of most of our symptoms.  Finally, it is thought to live around and in water. 

This is basically all the info I have.  There is new data coming out everyday.

They are using a similar stain to gram negative and YES!! it is ever present in the blood!

Hey Snake what is your email address if you dont mind?

  Is there anyone here who only has the Fry parasite and no other co-infections.  If so, what are the symptoms.  I am trying to figure out what is common among those with a positive Fry test, but because other co-infections come into play it is hard to figure out.

My only remaining symptoms are muscle jerks (myoclonus), some fatigue, some imbalance, and muscle twitches and muscle cramps occasionally.

Hiker53

Snake,

Good to hear from you as well. From my understanding, the biaxin and plaquenil combo is not curative but instead only serving to control symptoms. It appears, from what I am learning, that many are still testing positive for this bug after even after prolonged usage of these drugs. So, what happens when the drugs are stopped?

Runningirl

I am confused by this. I was tested back in 2004 by Bowen Lab in Florida and was sent a photo of my blood with the organism, tail and all. How is this NEW news?? Am I missing something?   D

No, not at all. They take a picture of your blood and it showed the organism. They told me I was positive for Lyme Disease. That is why I was questioning this "new" method, doe not seem new unless I am missing something. They told me then it was an organism. I have Band 41 positive on Igenex (is that what you were asking?) but they considered that negative.  D

With the picture of the organism, the diagnosis was Lyme Disease.. D

thanks for the info. one more ? can't bart show up as 41 too?

My llmd went to the conference in KC where Fry was speaking, and I am already diagnosed with lyme/babesiosis, and have been on the azithromycin/Mepron combo for many months.

My llmd didn't say specifically, but he wanted to send my blood to the Fry lab for the new testing. He seemed to just want to know if the babesia was still present and not looking for some new organism though.

He didn't mention anything about a new organism at all I remember, but the rest is "brain fog"!!

Hi seeingstars,

I don't mind at all, but I'm not positive, because I think he said the test cost around $150(again..brain fog so I could be wrong), and I'm on Social Security disability due to the lyme/babesia(actually for depression/social phobia, but it is caused by the lyme/babesia + any other as yet undiscovered co-infections), and my llmd wanted me to send payment with it by credit card, as he wasn't sure if Medicare would cover it or not.

I couldn't afford the test the day I was in the office, so he told me we could do it next time. But if he was willing to do it that day, I was taking abx at the time which he knew(Ceftin, Zithromax, Diflucan for the lyme cyst form since I can't tolerate Flagyl, and Bicillin LA shots with the Mepron and Artemesia), and he didn't mention stopping abx for the next visit for the test either, so I'm guessing I didn't/wouldn't have to stop abx for the Fry test, but I can't say for sure. My doc may just not have thought about it since I didn't actually get the test done that day.

And, plus he was pretty excited at all he had learned at the conference about Heparin troches and the Bolouke enzyme product both dissolving the biofilms around the lyme, etc. He did Rx me the Heparin troches and is ordering me some Bolouke at his cost since I'm about broke from this disease/s...retail is about $95 and he said it would be about $50 for me...just to break even for him on his cost.

Sorry I can't be of more help. He is currently trying to arrange a PICC line for I.V. therapy this week, so if I talk to him soon I'll TRY and REMEMBER to ask him about the abx and the Fry test.

EDIT: make sure to see the other post on the next page with Fry's website and phone#

Post Edited (Wiregrassman) : 4/6/2009 8:40:24 PM (GMT-6)