Lyme test accuracy

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fivejelly
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/2/2009 1:39 PM (GMT -7)   
Over the last five years of my life i have been concidered "mentally ill"--been in and out of psychiatic wards--- on meds--- and even recived shock therapy. After hearing from a friend of mine whom too had been in and out of hospitals himself for bipolar disorder, shizoeffective disorder...ect... had been tested for Lyme--- it turned out he went through all this from this horrble disease.
 
i thought i would get tested myself--- it turned up possitve. i really hope it is Lyme--- id be my ticket out of the system.
 
i tested possitve on more than one test--- what are the chances of this being a false possitve?
 
 

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 4/2/2009 2:48 PM (GMT -7)   
The chances of this being a false positive are much, much, much smaller than the chances of getting a false negative result. So I'd strongly suggest finding a Lyme-Literate doctor who can help you interpret the test results as they have much, much more experience with this than the regular run-o-the-mill MD's. Make a separate post asking for a LLMD in your state/area and I'm sure someone here will have a suggestion for you.

Good luck,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Ceftazidime (for Pleural Effusion).


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 4/2/2009 3:20 PM (GMT -7)   
I agree with Razzle. Find yourself a good llmd and start treating!
Best wishes, bablymers mom

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 4/3/2009 4:49 AM (GMT -7)   

Hi fivejelly, welcome to the board!

I am sorry things have been so difficult for you.  I am glad your friend finally got diagnosed.  It is my understanding there are rmore likely false negatives than false positives.  Which test did you have done and which lab did the test?  You have a positive test and symptoms, you should be treated.

Below is a Lyme disease symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

To see a list of neuropsyciatric Lyme symptoms, go to the bottom of the page at http://www.columbia-lyme.org/patients/ld_lyme_symptoms.html

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  No test is completely reliable, and results can vary by lab.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  Have you been tested for these?

If you need a doctor recommendation, you can email me at ko_@bellsouth.net  

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.

I hope you can get treated soon.

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