IV antibiotics so soon?

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lemonsnotlymes
New Member


Date Joined Mar 2009
Total Posts : 10
   Posted 4/6/2009 4:47 AM (GMT -7)   
I have clinically been diagnosed with Lyme. I believe I have been infected for 5 years. I do know that I have at least one coinfection of Mycoplasma showing up along with HSV, and EBV. I think the LLMD is doing due dilegence and has me on many supplements and probiotic. My hormones are low along with Vitamin D. That is what is showing up for now. My IGENEX testing is not back.  Here is where I am confused.
 
I just got started on Amoxicillan while we wait for approval of IV Rocephrin. The plan is to start the IV as soon as we get all of it approved, etc.
 
I just sent an email to an LLMD who I get to see in a couple of weeks. Up until now I have seen her colleague. My question(s) are many:
 
Mycoplasma doesn't respond to Amoxicllian from what I am reading.Should I be on something else?
 
Does Rocephrin?
 
Is it necessary to go straight to IV's? I do have brain lesions is that why?
 
I take Valtrex for the HSV, but does that anti-viral work on EBV? Not from what I read. I know I am not the doctor, but I must question this right?
 

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 4/6/2009 6:10 AM (GMT -7)   

Hi lemonsnotlymes.  Has the doctor you are seeing been recommended by other Lyme patients?  What dose of Amoxicillin are you taking?

Are you addressing the low hormones and low Vitamin D?

Rocephin is used to treat Lyme disease.  As far as I know, it is not effective for Mycoplasma.  Were you tested for the other co-infections also?

I am only speculating, but the doctor may have chosen IV for you because you have been sick for so long and because you have brain lesions.  I would ask her if this why she wants you to start with IV.


lemonsnotlymes
New Member


Date Joined Mar 2009
Total Posts : 10
   Posted 4/7/2009 6:25 AM (GMT -7)   
I got my questions answered yesterday and feel much better. They are treating the Lyme first and the rocephrin was chosen since it has gone into my brain and I have lesions.
 
Until we start the Rocephrin I am taking 2 500 mg of Amoxicillan 2 times per day and after I complete a week (Friday) I up that to 3x per day. I think she wanted to ease me into this. Then, as soon as I am approved by insurance for the Rocephrin we will start that. The LLMD has seen great things with this protocol with patients where Lyme is in the brain.
 
The LLMD has actually found in her research that Valtrex also works on EBV.
 
The hormone issues are going to be addressed my the main LLMD. I have currently been seeing her colleagues. The notes on my chart indicate to wait for the main LLMD to deal with this. But they are dealing with the low vitamin d.
 
Yes, this LLMD did come recommended by 2 people I know who were very, very sick. One of the women I know was featured in Under Our Skin. And my LLMD was featured in it as well. I was informed by the woman I know that the two docs that the LLMD uses in her practice are good, but not as wonderful as the head LLMD. She warned me to hang in there. I think that is leading to a little frustration.
 
I also met some people in the waiting room who were so positive about their experience.Especially, one man who had many neurological symptoms and lesions on his brain and they are now gone.
 
 
 
 
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