I'm back finally positive WB

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New Member

Date Joined Jun 2008
Total Posts : 10
   Posted 4/11/2009 8:29 PM (GMT -6)   
Sorry, to say I am back but I am glad you are still here helping people like me.  Last Spring I was terrilbly sick had a positve Elisa test , negative WB and then a WB with only one band.  I was give 100mg doxy twice a day for 21 days.  Doctors kept telling me I didnt' have Lyme but, I finished the treatment.  I seemed to better for a while then a couple of months ago I new I was having a relapse..doctors didn't take me seriousloy wouldn't even run another test until I happened to see another doctor in the practice who I had never seen before and she said I loooked sick.  She thought it was Mono or perhaps I really did have and still lyme.  The test came back Friday finally a positve WB more than 3 bands..I am back on doxy 100mg twice a day.l  My question is can anyone tell me if this treatment is aggressive enough and can anyone direct me to lyme specialist in the Albany NY area?
Here are my symptons:
muscle aches
joint pain - especially the shoulder told I had bursitis but, I never believed that I always thought it was the lyme diseas.
general weakness - can't walk for long periods of time or stand as my legs feel extremely weak
Blood pressure has been very unstable I take medication but it has been stable until last bout.
mood swings
forgetfullness - sometimes difficult to concentrate.
Any help would be appreciated I need to treat this properly this is the worst feeling ever and the disease is so misunderstood...

Regular Member

Date Joined Jul 2007
Total Posts : 296
   Posted 4/12/2009 8:25 AM (GMT -6)   
It is so hard to say since everyone reacts so differently to the same treatments. In my case, the antibiotics are not doing it. Just started Dr. Zhang's herbs. Seems like much of the symptoms of Lyme are caused by vasculitis according to Zhang. Anything you can do to reduce inflammation, such as eliminating sugar and wheat can really help.

Veteran Member

Date Joined Feb 2003
Total Posts : 9208
   Posted 4/12/2009 10:30 AM (GMT -6)   

Hi NyLyme.  I am sorry you have a positive test, but it is good to know so you can get treated.

Below is a Lyme symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?  I am not a medical professional, but to me your symptoms sound like they could be from Lyme and Babesiosis.

200 mg of Doxy daily is not strong enough for Lyme.  I believe the recommended dose is 300-600 mg daily with 400 mg often prescribed.  There are some important tips about taking Doxy.  You may be aware of them since you were on it before.  Do not have any dairy, iron, or magnesium products within two hours of taking the Doxy or it will not be absorbed properly.  If it makes you nauseous, eat something substantial and non-dairy before taking it.  Avoid the sun.  You can get a severe burn in minutes even when wearing sunscreen.  Do not lay down for at least an hour after taking it, or you can ulcerate your esophagus.  This is very painful.  Drink a full glass of water when you take it--for the same reason. 

Whenever you take antibitoics, make sure you take high-quality acidophilus capsules at least two hours apart from the antibiotics.  They help to replace the good bacteria and help prevent yeast overgrowth.  The best ones to get are refrigerated and have a high culture count (such as 9 billion per capsule).  Most healthfood stores have them.

There are some excellent Lyme doctors in NY.  If you need a recommendation, you can email me at ko_@bellsouth.net  

Are you aware of the Jarisch-Herxheimer Reaction (herx)?  Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones.  When the antibiotics are killing the bacteria, toxins are relased making them feel worse.  It can be scary when it happens, but it is a good sign the antibiotics are working.  It is important to do things to support the immune system and detox.  During treatment, it is a good idea to document your symptoms daily.  List the main symptoms you have each day with a numerical rating of their severity from 1-10.  Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner.  

I hope you can get properly treated soon.

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