Please correct me - EM Rash

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spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 4/13/2009 11:21 PM (GMT -7)   
Hi Everybody,

I seem to recall reading on one of the Lyme forums about someone with Lyme disease who was not formally diagnosed until much later on when the EM rash REAPPEARED.

Now, please tell me whether or not you have heard of this. Or, I read an online lyme story, but my mind gimped up the details. Wouldn't be the first time I've become mixed up -- due to my neuroborreliosis.

Reason being, about two months or so ago, I noticed a strange EM-looking rash on the back of my calf, just above the ankle. It was the red ring that struck me when I noticed it. It has a red circular ring on the outside, about the size of a quarter. It has been there for a couple of months or so. It's not getting bigger, but it is getting very slowly less dark. It is only slightly rough. When my husband noticed it -- without my saying anything -- he said, ''Is that a tick bite?" I took 3 pictures of it with my cell phone, but I don't know how to transfer the pics to my computer, and I'm pretty sure my doctor wouldn't for sure either. The only time I ever recall seeing a similar looking rash was about 30 years ago when I was a tween; it was larger, on the front of my mid-thigh, and was diagnosed as ring worm.

Can the rash reappear years later, or would it be more likely either a re-bite or a different type of rash entirely? My Lyme diagnosis was clinical, yet my Igenex results were ''clinically significant'' and I tested Igenex positive for babesia microti. I have been sick for about nine years.

Thank you very much for helping me with this mystery.
*Abx combo tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '04; Essential Tremor ’03; Fibromyalgia ’01; Osteoarthritis; Depression; IBS; Interstitial Cystitis


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 4/13/2009 11:41 PM (GMT -7)   
I hadn't looked online for a long time to see pictures of the EM rash, until tonight.

I found this rash online, and it highly resembles the rash on the back of my calf:

http://dermis.multimedica.de/dermisroot/en/1197400/image.htm

(Site found courtesy of fellow Lymie, CuterWCurves).
*Abx combo tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '04; Essential Tremor ’03; Fibromyalgia ’01; Osteoarthritis; Depression; IBS; Interstitial Cystitis

Post Edited (spaztick) : 4/14/2009 12:44:21 AM (GMT-6)


Weary1
Regular Member


Date Joined Oct 2006
Total Posts : 127
   Posted 4/14/2009 5:58 AM (GMT -7)   
I have also read that rashes, including bulls eye, could reappear years later.  I do know someone else this happened too also.
 
"Greater things are yet to come and greater things are still to be done in this city" - Chris Tomlin
 


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 4/14/2009 6:29 AM (GMT -7)   
Hi spaztick.  The rash can appear at anytime, and it can be from a previous infection or a new one.  It is good you took photos of it, it is important documentation.  Make sure you let your doctor know.

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 4/14/2009 3:43 PM (GMT -7)   
I am a member of another Lyme forum and there is a woman there that gets the bullseye back every time she comes out of remission. Strange... D

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/14/2009 5:15 PM (GMT -7)   
In the meantime I am convinced I had an em coming an going....in my face similar to one of the fotos around the cormer of my mouth, wandering up my cheek, dissapear, come again - for about 2 years; I always thought this was allergy related b/c it was not that red;

spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 4/14/2009 11:23 PM (GMT -7)   
Wow! Thank you, everyone, for your replies! So it is possible that it is from previous or new infection.

I will let my doctor know. When I told my friend about this rash, she just said it could be a spider bite and that lyme rashes look like many other rashes or insect bite rashes. Is that true?

Weary1, ticker: Can either of you recall where you read about this, and if so, can you share?

Dowa, When you said the woman on the forum gets the bulls eye back every time she comes out of remission, do you mean every time she relapses after having been well for a period of time?

Take care, everybody, and I hope you are having more good days than bad ones.
*Abx combo tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '04; Essential Tremor ’03; Fibromyalgia ’01; Osteoarthritis; Depression; IBS; Interstitial Cystitis


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 5/3/2009 9:22 PM (GMT -7)   
Hi Folks,

I saw the doctor today, and showed him the rash, which I said has increased in size, and he said, "That's ringworm." I barely got through the sentence, saying, "I thought it was...", to which he replied, "It's not a bulls-eye." He has prescribed Nizoral cream (anti-fungal).

There's still a part of me that wonders about it being an EM rash, but I guess it doesn't really matter because this doctor believes that I have chronic late-stage Lyme disease, and is prescribing as per my retired LLMD's recommendations.

Take good care, Everybody, and I hope your health is improving!
*Abx combo tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '04; Essential Tremor ’03; Fibromyalgia ’01; Osteoarthritis; Depression; IBS; Interstitial Cystitis


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 5/4/2009 4:55 AM (GMT -7)   
Hi spaztick.  I recommend showing your rash or the photos of it to your Lyme doctor to see what he/she says.

 



JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 5/4/2009 8:37 AM (GMT -7)   
spaztick said...
Hi Folks,

I saw the doctor today, and showed him the rash, which I said has increased in size, and he said, "That's ringworm." I barely got through the sentence, saying, "I thought it was...", to which he replied, "It's not a bulls-eye." He has prescribed Nizoral cream (anti-fungal).

There's still a part of me that wonders about it being an EM rash, but I guess it doesn't really matter because this doctor believes that I have chronic late-stage Lyme disease, and is prescribing as per my retired LLMD's recommendations.

Take good care, Everybody, and I hope your health is improving!

When I got sick, CIGNA let me go back through my own medical file.  I had 3 rashes (requiring a doctor!) over a period of about 1 1/2 years.  They called my circular rashes "ringworm" too.  I do not believe it was ringworm and I have a reappearance of the "circles" too.  LD just sucks wind.

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


Aude
New Member


Date Joined Apr 2017
Total Posts : 1
   Posted 4/29/2017 3:48 PM (GMT -7)   
dorit said...
In the meantime I am convinced I had an em coming an going....in my face similar to one of the fotos around the cormer of my mouth, wandering up my cheek, dissapear, come again - for about 2 years; I always thought this was allergy related b/c it was not that red;


Hello Adam,
your comment on the Lyme disease is extremely important for me and I wanted to ask you some clarification.
I see you live In Germany, me too.
I used to study in Connecticut in USA some years ago. I used to hike and run there quite often and I think I got bitten one day.
I did not notice it but then I had a red spot not too big and a large circle around. At that time I had no clue it could be a tick. I thought it was a mosquito and did not pay attention. I am very often in nature.
It's a couple of years later by accident that I heard from Lyme disease.
- I have had issues with memory which I think are increasing and sometimes I feel I don't put words or sentences in the correct order but when I tell my friends they tell me it's due to stress. I don't remember anything I read or often what people tell me and despite I am quite stressed in my job I used to not be like this.
- my knee and hip joint have started hurting without known reasons and I am now wondering if it's not arthritis.
- the most important is that for a year I often have my face swollened around my eye or lip or knees, elbow, shoulders It can move within a few hours but it's more often on face. I took many pictures and should go to a rheumatologist I imagine. For now I've cortidone and antiisthamine to suppress effects when it happens.
I have never had any allergies. You mentioned something like that in the forum and wanted to ask you if it is a big symptom of Lyme disease?
- i have periods where I feel very tired and need a nap everyday in addition to normal sleep and still feel tired. But this is not all year long. It's by periods.
- mood swings etc.

I apologize for writing you all this but reading about your swollening face may help me find an origin. Also Is this bite and circle a certain sign of being infected with Lyme disease?

If you have any information on this and whether you could get tested in Germany, I would really appreciate!! I am feeling a bit hopeless.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27945
   Posted 4/29/2017 4:08 PM (GMT -7)   
Hi Aude - welcome to our community.

i don't know if you realize that dorit hasn't been back to the forum since 2010.

I see his email is enabled though.

I think you should seek out a Lyme Literate Dr. ( based on the rash - that sounds like a bulls-eye rash from lyme disease)

You can get tested at ArminLabs in Germany.

/www.arminlabs.com/en

To find a LLMD - you can contact ILADS:

ilads.org/ilads_media/physician-referral/

In addition you can send me an email - and I will send you information that I have.

We encourage all new members to read through the thread at the top of the page titled: "new to Lyme?..Start Here!" It's packed full of useful information.

I hope you find this community to be both knowledgeable and supportive.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 262
   Posted 4/29/2017 7:17 PM (GMT -7)   
spaztick, I couldn't open up the link you posted. I have a rash now so I really wanted to see the pictures.

Mine developed after I had horrible pain in my neck for about two weeks. Once it popped out, the pain in my neck went away.

Not sure what it is. I took a pic and am seeing my doc in June, but I was just curious.

Thanks much.
EBV- Diagnosed in 2014 - free of virus in 2015
Lyme Disease - Diagnosed in September of 2015
Babesia - just treated by symptoms. Free of Symptoms by 10/16
Bartonella - using Buhner's supplements and Spooky2 Rife machine
Hypothyroidism - diagnosed in 2009 on nature-throid
Not sure what else I may have since LLMD does not test for co-infections

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27945
   Posted 4/29/2017 7:58 PM (GMT -7)   
Laker - I just wanted to let you know that spaztic hasn't been on the lyme forum since 2013...so I'm not sure if he will see this. If he's subscribed to this thread then he will be notified of the new posts.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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