NPR Show about chronic Lyme will be on in approximately 45 minutes

ticker

Veteran Member

Joined : Feb 2003

Posts : 9208

Posted 4/20/2009 7:13 AM (GMT -7)

The show will start in approximately 45 minutes. To listen on-line, click on Diane Rehms Show and click on "Listen Live" on the top left of the screen.

alfers

Veteran Member

Joined : May 2005

Posts : 2671

Posted 4/20/2009 8:49 AM (GMT -7)

Listening to this is making me incredibly sad and angry. :( I think I usually avoid talking about lyme these days because it just causes too much anger (in me) and brings back so many awful memories, and now listening to this is bringing it all back! But I know it's necessary...

Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum

ticker

Veteran Member

Joined : Feb 2003

Posts : 9208

Posted 4/20/2009 9:00 AM (GMT -7)

Hi alfers. I completely understand what you are saying. The good news, I think, is that there were more guests representing our side. Typically it is usually biased against chronic Lyme.

scorpio1960

Veteran Member

Joined : Jan 2009

Posts : 914

Posted 4/20/2009 9:52 AM (GMT -7)

Thanks for letting us know. I can't listen right now but plan on doing so later today.

minerals

Veteran Member

Joined : Jul 2007

Posts : 943

Posted 4/20/2009 1:41 PM (GMT -7)

Thanks from me too. It does sound encouraging that more info is getting out- sort of...........................................

DX. LYME 7 /03 -I believe I 've had it since 1985-

oral doxi, amoxi 6 months. Have been bitten 2x since

Developed many chemical & food sensitivities& Allergies to many Suppliments

Swollen Burning tongue/lips

Hashimotos Thyroiditis

DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos.

Armour Thyroid

Probiotics are a MUST

Almost died from 3 doses of Plaquanil 12/07

IV Rocephin began 12/4/07

Bactrim began 1/22/07

Stopped Rocephin 3/04/08

DX Micoplasma

Mepron, Azithrommax, Rafampin 5/29/08

Stopped Rifampin began Bactrim and zithro 6/2/08

stopped Mepron 7 22/08

switched from bactrim to levaquin and had bad reaction to levaquin

began Mepron again till Nov, then began Malerone

began Rifampin and Minocycline 9/08

modified cowden protocol 3/09

Outstare The Darkness--The Light Will Come!

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