NPR Show about chronic Lyme will be on in approximately 45 minutes

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Veteran Member

Date Joined Feb 2003
Total Posts : 9208
   Posted 4/20/2009 9:13 AM (GMT -6)   
The show will start in approximately 45 minutes.   To listen on-line, click on Diane Rehms Show and click on "Listen Live" on the top left of the screen.

Veteran Member

Date Joined May 2005
Total Posts : 2671
   Posted 4/20/2009 10:49 AM (GMT -6)   
Listening to this is making me incredibly sad and angry. :( I think I usually avoid talking about lyme these days because it just causes too much anger (in me) and brings back so many awful memories, and now listening to this is bringing it all back! But I know it's necessary...
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum

Veteran Member

Date Joined Feb 2003
Total Posts : 9208
   Posted 4/20/2009 11:00 AM (GMT -6)   
Hi alfers.  I completely understand what you are saying.  The good news, I think, is that there were more guests representing our side.  Typically it is usually biased against chronic Lyme.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 4/20/2009 11:52 AM (GMT -6)   
Thanks for letting us know. I can't listen right now but plan on doing so later today.

Veteran Member

Date Joined Jul 2007
Total Posts : 943
   Posted 4/20/2009 3:41 PM (GMT -6)   
Thanks from me too. It does sound encouraging that more info is getting out- sort of...........................................

DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

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