My first symptom was wandering leg pains - nerve-related pain more similar to sciatica than arthritis. The arthritis for me came years later, and has been very mild compared to most cases.
From researching Lyme, I've learned that the reality of Lyme is that it is anything but typical in any particular patient. Doctors and researchers alike seem to favor "typical" symptom lists/progressions/descript
ions to simplify things and to make sure they are all talking about
the same disease. However, reality is often quite different - in a lot of chronic diseases not just Lyme. Because the bacteria that causes Lyme has so many various tactics for hiding in the body and evading the immune system, it is entirely possible for the bug to cause bizarre symptoms as initial presenting symptoms (and there are case reports of Lyme patients that seem to support the idea that initial presenting symptoms can be quite unusual).
This is the long way of saying that your symptoms could very well be from Lyme. But don't rule out the possibility of a co-infection with a virus despite negative tests - those could be false negatives, or you have a virus that has not been or can't be tested for yet...
Have you asked the LLMD what s/he thinks of the virus theory in your case?
Have you asked the other doctors what they think of the Lyme theory in your case?
Is it possible for you to be treated for both Lyme and a virus simultaneously?
Just some things to think about
... Take care,
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds: Zofran, Pulmicort, Heparin (to flush PICC line), IV Ceftazidime (for Pleural Effusion), Claritin, Colloidal Silver (used topically), probiotics.