I can't believe it! There is hope

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Regular Member

Date Joined Jul 2007
Total Posts : 170
   Posted 4/23/2009 7:52 AM (GMT -6)   
I've been sick for over 30 years and was finally diagnosed 2 1/2 years ago after being misdiagnosed by a ridiculous amount of doctors. I've been on many different antibiotics and other treatments and now, 2 1/2 years later, I'm actually feeling GREAT! I had lost all hope a few months ago and swore that I'd never be feeling any better. Then the magic happened...

Due to insurance company issues, my pain medicine, Opana, was no longer being covered. I had to come off of it and going through the withdrawals was the worst I've ever felt in my life. I wouldn't wish that on my worst enemies. That was just over a month ago and I think I'm at the end of that misery, but now the pain is GONE! I can walk up stairs again and my constant nausea is no longer. I still have some cognitive issues and other minor symptoms, but the worst is over.

I started the salt/C protocol a few weeks back and I think that may be helping, but I'm not herxing so I don't know for sure. All I do know is that I am feeling better than I have in years and I was the last person to believe that this would happen.

I sincerely believe that with the proper treatment and lots of time that Lyme disease can be managed and we can all be symptom free. Now I do know that people relapse, so I plan on staying on my current treatment for a long time even though I don't have very many symptoms. I don't know if it will ever be completely cured, but if I can feel this good the majority of the time I'll be happy.

I do suggest that anyone that is taking any opiods try to come off of them slowly and get help from someone who knows how to treat the withdrawals. I did it on my own and thought I wasn't going to make it, but it does get much better in the end. Opana is an evil drug that really does a number on you. It's amazing that something that is supposed to relieve the pain can cause so much of it. If you are taking Opana or any other opioid, then it's possible that many of your symptoms are being caused by or enhanced by the drug. I started going through withdrawals 15 to 20 minutes after taking the pills and I didn't know it. I just thought it was the Lyme. Don't lose hope like I did. You can feel better. If anyone needs help or wants any information on what I went through with the withdrawals, email me and I'll do my best to help. Sometimes all it takes is support from someone who's been through it. Don't get me wrong. It will be miserable, but once that's over, you will feel better. There are better ways to deal with pain than with drugs. Plus you'll know if your Lyme treatment is working and not be confused by the pain medicine's evil side effects.

Good luck to all of you and I hope that this story can help some of you.


Regular Member

Date Joined Nov 2008
Total Posts : 375
   Posted 4/23/2009 8:06 AM (GMT -6)   

Gary -

 I am very happy that you feel so much better !!! Thanks for sharing your experience with the pain med!!

Take care!  greetings, dorit


Veteran Member

Date Joined Feb 2008
Total Posts : 900
   Posted 4/23/2009 8:47 AM (GMT -6)   
I am really happy for you too and your story is an inspiration for all of us. When we experience and read about so much suffering, it is uplifting to hear that a treatment is working and a person is doing so much better.

Regular Member

Date Joined Jun 2007
Total Posts : 417
   Posted 4/23/2009 12:26 PM (GMT -6)   

I am soooo happy to read your post, Gary!  Tears in my eyes..


Regular Member

Date Joined Sep 2007
Total Posts : 273
   Posted 4/23/2009 7:02 PM (GMT -6)   
I know!! It is so wonderful seeing you much more like yourself !!! turn
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/

Regular Member

Date Joined Jul 2007
Total Posts : 170
   Posted 4/25/2009 8:40 AM (GMT -6)   
The brain fog, memory issues, and rage were my biggest problems. The pain was bad, but the cognitive issues turned me into a non-working, disabled mess. I still have memory problems, but my brain is starting to function more like it used to. I'm in the process of writing an Access database application for my ex-employer. I couldn't even imagine doing that until very recently. I don't know if I beat the disease or if I'm just in remission. I do know that I feel better now than I have in years and I hope to keep improving as I continue my treatment. Just because the symptoms are letting up doesn't mean I'm cured. I think I still have years of treatment left.

Regular Member

Date Joined Sep 2007
Total Posts : 134
   Posted 4/25/2009 2:06 PM (GMT -6)   
Is that the Gary from LymeChatNetwork?
If it is, how did it go with the rifing?

Regular Member

Date Joined Jul 2007
Total Posts : 170
   Posted 4/25/2009 2:47 PM (GMT -6)   
I'm a different Gary, although I did join that site as well.
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