Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

I can't believe it! There is hope

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
LymeInNJ
Regular Member
Joined : Jul 2007
Posts : 170
Posted 4/23/2009 5:52 AM (GMT -7)
I've been sick for over 30 years and was finally diagnosed 2 1/2 years ago after being misdiagnosed by a ridiculous amount of doctors. I've been on many different antibiotics and other treatments and now, 2 1/2 years later, I'm actually feeling GREAT! I had lost all hope a few months ago and swore that I'd never be feeling any better. Then the magic happened...

Due to insurance company issues, my pain medicine, Opana, was no longer being covered. I had to come off of it and going through the withdrawals was the worst I've ever felt in my life. I wouldn't wish that on my worst enemies. That was just over a month ago and I think I'm at the end of that misery, but now the pain is GONE! I can walk up stairs again and my constant nausea is no longer. I still have some cognitive issues and other minor symptoms, but the worst is over.

I started the salt/C protocol a few weeks back and I think that may be helping, but I'm not herxing so I don't know for sure. All I do know is that I am feeling better than I have in years and I was the last person to believe that this would happen.

I sincerely believe that with the proper treatment and lots of time that Lyme disease can be managed and we can all be symptom free. Now I do know that people relapse, so I plan on staying on my current treatment for a long time even though I don't have very many symptoms. I don't know if it will ever be completely cured, but if I can feel this good the majority of the time I'll be happy.

I do suggest that anyone that is taking any opiods try to come off of them slowly and get help from someone who knows how to treat the withdrawals. I did it on my own and thought I wasn't going to make it, but it does get much better in the end. Opana is an evil drug that really does a number on you. It's amazing that something that is supposed to relieve the pain can cause so much of it. If you are taking Opana or any other opioid, then it's possible that many of your symptoms are being caused by or enhanced by the drug. I started going through withdrawals 15 to 20 minutes after taking the pills and I didn't know it. I just thought it was the Lyme. Don't lose hope like I did. You can feel better. If anyone needs help or wants any information on what I went through with the withdrawals, email me and I'll do my best to help. Sometimes all it takes is support from someone who's been through it. Don't get me wrong. It will be miserable, but once that's over, you will feel better. There are better ways to deal with pain than with drugs. Plus you'll know if your Lyme treatment is working and not be confused by the pain medicine's evil side effects.

Good luck to all of you and I hope that this story can help some of you.

Gary
profile picture
dorit
Regular Member
Joined : Nov 2008
Posts : 375
Posted 4/23/2009 6:06 AM (GMT -7)

Gary -

 I am very happy that you feel so much better !!! Thanks for sharing your experience with the pain med!!

Take care!  greetings, dorit

profile picture
nefferdun
Veteran Member
Joined : Feb 2008
Posts : 900
Posted 4/23/2009 6:47 AM (GMT -7)
I am really happy for you too and your story is an inspiration for all of us. When we experience and read about so much suffering, it is uplifting to hear that a treatment is working and a person is doing so much better.
profile picture
Tallison
Regular Member
Joined : Jun 2007
Posts : 417
Posted 4/23/2009 10:26 AM (GMT -7)

I am soooo happy to read your post, Gary!  Tears in my eyes..

Tracy

profile picture
MarriedtoLymeinNJ
Regular Member
Joined : Sep 2007
Posts : 273
Posted 4/23/2009 5:02 PM (GMT -7)
I know!! It is so wonderful seeing you much more like yourself !!! turn
profile picture
LymeInNJ
Regular Member
Joined : Jul 2007
Posts : 170
Posted 4/25/2009 6:40 AM (GMT -7)
lymekiller,
The brain fog, memory issues, and rage were my biggest problems. The pain was bad, but the cognitive issues turned me into a non-working, disabled mess. I still have memory problems, but my brain is starting to function more like it used to. I'm in the process of writing an Access database application for my ex-employer. I couldn't even imagine doing that until very recently. I don't know if I beat the disease or if I'm just in remission. I do know that I feel better now than I have in years and I hope to keep improving as I continue my treatment. Just because the symptoms are letting up doesn't mean I'm cured. I think I still have years of treatment left.
profile picture
yaniv_naced
Regular Member
Joined : Sep 2007
Posts : 134
Posted 4/25/2009 12:06 PM (GMT -7)
Is that the Gary from LymeChatNetwork?
If it is, how did it go with the rifing?
profile picture
LymeInNJ
Regular Member
Joined : Jul 2007
Posts : 170
Posted 4/25/2009 12:47 PM (GMT -7)
I'm a different Gary, although I did join that site as well.
✚ New Topic ✚ Reply




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.