I am so very sorry to hear this. I know a young man who was in the same situation as your husband (he was diagnosed with ALS, etc., etc.) and was near death. Today he is doing wonderful as he changed his treatment protocol. So please don't give up hope.
If you want, you can e-mail me as I could give you some useful information.
I will keep you both in my prayers,
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years: