I was just diagnosed with Lyme a couple of months ago by my cardiologist, who I had gone to see because of extreme fatigue, chest pain, and blood pressure problems (both dropping low and creeping up too high). I have gained about 70 lbs in the last 2-3 years and have blood sugar problems (both high and low as well) so figured I was at risk for a heart attack. I was shocked when the Lyme test was positive, but it explains a lot. It would take an entire day for me to list all my neurological symptoms, but as I read everyone else's entries I have everything everyone else has. I had a several-month spanning cyclical illness (fever, swollen glands, vomiting, headaches, etc.), then the autonomic dysfunction, now neurological and MS-type muscle & joint symptoms and am finally doing my first 28 day treatment. The truth is I'm totally lost, there are so many co-infections, so many things to look at in the lab results, and I don't know ANY of it, and more frightening, I don't think my doctor does either. Of the two LLMD's that were in my area one is applying for a license in another state and has closed her practice and the other's secretary said cryptically that his schedule is "on hold". I wish someone could point me in the right direction of what I should do, and what about my kids? I've had three children since the first onset of symptoms nine years ago, and my doctor refuses to test them for it. Do you think I could have passed it to them? I did have antibiotics while in labor because of Group B Strep but only for the labor and then afterward I breastfed for several months. Anyway sorry for all the questions and I will be grateful for any easy to follow (not so good these days mentally) information anyone can give me.
Also, just so I feel like I'm not alone in this I've started blogging (I am a freelance writer, so...I guess I have something to write about
), so feel free to visit my blog @ http://www.b-lyme-ied.blogspot.com/
and I'm writing about
my IV infusion on Twitter. http://twitter.com/b_lyme_ied
Not to trying to shamelessly plug, I just feel really alone and this is all helping. Thanks everyone.