Does your insurance pay for the CD-57 test?

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KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 4/23/2009 11:12 AM (GMT -7)   
Does your insurance pay for the CD-57 test.  My insurance will only pay for part of it (blood count?) calling it an experimental test.  Just curious.  They have paid for all my other labs without any questions.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


Weary1
Regular Member


Date Joined Oct 2006
Total Posts : 127
   Posted 4/23/2009 11:42 AM (GMT -7)   
I'm BCBS and they have never paid for my CD-57. I wish they would as we've got 4 of us having it done.
www.chicagolyme.com
 
"Greater things are yet to come and greater things are still to be done in this city" - Chris Tomlin
 


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 4/23/2009 12:20 PM (GMT -7)   
Weary1,  Do you know what they charge you?  They charged me about $95 the first time, I haven't gotten a bill for the 2nd one yet.  When I called she told me I'm lucky because they paid for part of the test (blood count?).
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2009 4:06 PM (GMT -7)   
I have BCBS and my CD57 was covered both times. I've never received a bill for it.

P.S. - an off topic question. Does anyone think my symptom and med list is too long?
Symptoms started in 2003 with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder. Took Lexapro for two years and symptoms never got better. Suffered off and on for years.
2007 found an LLMD and was diagnosed with Lyme. WB was negative but had ++ on Lyme specific numbers. I decided to not do treatment because I didn't know enough.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, couldn't find the right words, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.

Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia

Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 4/23/2009 4:38 PM (GMT -7)   
CajunGrl said...
I have BCBS and my CD57 was covered both times. I've never received a bill for it.

P.S. - an off topic question. Does anyone think my symptom and med list is too long?
 
Symptoms started in 2003 with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder. Took Lexapro for two years and symptoms never got better. Suffered off and on for years.
2007 found an LLMD and was diagnosed with Lyme. WB was negative but had ++ on Lyme specific numbers. I decided to not do treatment because I didn't know enough.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, couldn't find the right words, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.

Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia

Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

No.... it's about the right length for Lyme disease - haha.... actually, I think there is a line limit.... but, I can't remember what it is.  rolleyes

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/23/2009 5:06 PM (GMT -7)   
Hi CajunGrl -

my personal off topic answer to your off topic question: I do not think your symptom and med list is too long - actually I am happy for every detailed info about symptoms and meds b/c it is such a great help to hear about what works!!! So I send my big THANK YOU for posting it to you (and of course to all the others who do that)!!

Take care! dorit

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2009 5:28 PM (GMT -7)   
JelaineP,

LOL that was funny and so true. Thanks for your input. I wanted to be detailed so that others could relate but I think I was too detailed. I could put alot more, haha!
Symptoms started in 2003 with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder. Took Lexapro for two years and symptoms never got better. Suffered off and on for years.
2007 found an LLMD and was diagnosed with Lyme. WB was negative but had ++ on Lyme specific numbers. I decided to not do treatment because I didn't know enough.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, couldn't find the right words, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.

Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia

Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2009 5:31 PM (GMT -7)   
Dorit,

You're very welcome and thank YOU. That's kinda what I was trying to accomplish. I always read everyones list just to see if I'm on the right track.
Symptoms started in 2003 with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder. Took Lexapro for two years and symptoms never got better. Suffered off and on for years.
2007 found an LLMD and was diagnosed with Lyme. WB was negative but had ++ on Lyme specific numbers. I decided to not do treatment because I didn't know enough.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, couldn't find the right words, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.

Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia

Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7556
   Posted 4/23/2009 6:25 PM (GMT -7)   
LOL. Actually, there is a website rule that limits signatures -- this is because every time you post another copy of the signature gets put into the database -- and the larger the database the slower it is to search and the more it costs to run the website.

18. No lengthy signatures. Limit signatures to 10 lines or less. Moderators will edit and/or remove signatures that are too long.

Cheers,

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2009 7:55 PM (GMT -7)   
Oh no! Haha! I will go fix it. Thanks!

Moderators: I'm so sorry!

Sorry for the thread jack too! Ack!
Symptoms started in 2003 with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder. Took Lexapro for two years and symptoms never got better. Suffered off and on for years.
2007 found an LLMD and was diagnosed with Lyme. WB was negative but had ++ on Lyme specific numbers. I decided to not do treatment because I didn't know enough.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, couldn't find the right words, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.

Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia

Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 4/24/2009 12:42 AM (GMT -7)   
My insurance paid for the CD-57 test; I have Blue Shield. Check your policy - mine says if a test is experimental and the lab does not have me sign a waver before they draw the blood for the test, the lab has to pay for the test if insurance won't pay for the test.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 4/24/2009 4:23 AM (GMT -7)   
My BCBS has paid fully for my 2 CD57 tests.
 
However,my BCBS is no longer allowing us to use Lab Corp., and if we want any testing thru them we have to pay 100%.  Quest is still covered fully.

Lala429
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 4/29/2009 1:12 PM (GMT -7)   
I have OneNet and they have paid for two CD-57s at 80% (but that's how they cover all of my labs). It's the only test I've had that proved I had Lyme (normal levels 60-300, mine is 15). But if you can afford it, you should do it.

Of course they say it's "experimental" - because it's a GREAT indicator of chronic Lyme and you know the whole gammit about everyone being in denial that chronic Lyme exists.

GL & Hugs,
Lala
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