In need of help

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 4/28/2009 9:14 PM (GMT -7)   
  Hi ya'll
 
  I have read so many post in the last few days about LLMD and so many other test and meds in here, it all is running thro my head now.
I guess i'm lucky to not have fought with my doc about haven lymes. see my dog tested pov for lymes last yr. and i had knee sergery last yr.thought it was arthirits, now think its also from lymes.started haven trouble with my eyes, told it was chronic dry eye, they gave me drops for it 3x daily. well when i whent to place drops in my eye i saw what looked like brainmatter in the conner of my left eye. sent me to a specialest for that. after doing a MIR they found 10 to 15 lesions in my brain and 1 large 1 around my eye, test say maybe from cancer or lymes. so i asked to be tested for lyme.
 
well low and behold. I have lymes, found out last week. going to a ID next week and i asked of he was a LLMD. told me he was. so i think i am lucky in that asspect. I didnt have the BIG RUN AROUND so many of you have gone thro.
 
when joking with my MD about going to my vet for the test, its cheaper too and fast 10 mins you know if your dog has it. maybe there is something to this test better then they use on us.
 
so what i'm asking is for info b4 going on what i should ask, know , or anything. all input is welcomed.
 
   RottehnDog (RD)
 
 P.S. last night i almost passed out is this part of lymes? i was sitting here at the pc  reading post and wam it hit me  like a ton of bricks. almost didnt make it to the bed ( about 40" ) then today my lips are burning. any advice?
 
Thank You

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/28/2009 9:41 PM (GMT -7)   
How are you being treated for Lyme? Have you (and your dog) been tested for coinfections? If not, you need to be.

The feeling that you're going to pass out can definitely be a part of lyme. I'm not sure why, but somehow it causes a drop in blood pressure that makes you feel lightheaded. For a very long time, I didn't go anywhere in my house without having my phone in my pocket in case I wound up on the floor. Your doctor probably checks your blood pressure. My doctor's office does a neat thing and checks my blood pressure and pulse twice. First, I'm checked lying down. Then I stand up, and they check it again. When I'm having periods of lightheadedness, it shows in the different in my blood pressure measurements.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 4/28/2009 9:49 PM (GMT -7)   
IH8Ticks

Thank you for the responce.
so far i'm not on anything for the lymes, 1st appointment is next week to ID, LLMD. as for the dog he was abx for a month and next test showed his antis was fighting it. all i know is if he is in as much pain as i am, he dont show it. i do give him asprine now and then if i see him limping. but he is also 132lbs and almost 11yrs now

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/28/2009 9:52 PM (GMT -7)   
Testing for coinfections is absolutely something that you should talk to your LLMD when you see him/her. Once you've had your first visit, you may have more questions for us. It can all be a little overwhelming, but you can get a lot answers to your questions here.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 4/28/2009 9:57 PM (GMT -7)   
thanks IH8Ticks

I havent been to see him yet and already i have tons of questions. 1 why doesnt anyone use the chat in here? i look so i can fount out all i can b4 i go to the doctors.maybe to just help my nerves some

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/28/2009 10:02 PM (GMT -7)   
Check out the topics at the top of this forum. They have some information that you might find useful. Lyme is a very complicated disease, and frankly, it still isn't understood all that well by anyone. Do you have any specific questions that we can help you with?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/28/2009 11:10 PM (GMT -7)   
RottenDog,

Make sure you write all of your symptoms down and what year/month you think they all started. Bring that in with you to your appointment because you will probably be anxious when you get in to see him. Bring in all of your medications too. New doctors want to know what you are on and make sure that whatever they presribe you can be taken together. Also tell him/her of any supplements or herbs you are taking. If you have any blood work or test done like MRI's, bring that in with you as well. You can always request a copy of your results wherever you had them done.

If I think of anything else, I will post it. Good luck!
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia
Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

Post Edited (CajunGrl) : 4/29/2009 12:13:11 AM (GMT-6)

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