any good news?

Is there ever any good news with lyme disease?
It seems like all I ever read is bad stuff and it seems like if you have lyme you're pretty much stuck like this.
People must recover. I just can't wrap my head around the idea that once you get bitten your life is over.
Because if that's the way it is, I don't know why I'm spending so much money trying to get better.
I realize it takes a long time, but I have been at this a long time. I just wish the news was more positive sometimes.
That would be a blessing. Might even help me get through the day.

Google Michelle On Lymes Disease and read her story. She is cured after 16 months of antibiotics.

I think most people just don't come back and post when they are feeling good. They are out living their life and doing things. I had a good week about two weeks ago and that's what I did. I was out and about and just wanted to do everything. I've only seen a few people come back and post when they felt better. If you think about it, most things on the Internet are about bad things especially when it's a sickness or a disease. People usually only post and search when they are feeling bad.

There is hope and people do get better.

---

2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

Though I am still being treated after 4 years (extenuating circumstances of having heavy metals toxicity), I am so much better than the dark days. To quantify it, I would say I am about 80-85% back to normal. There is definitely hope--patience and perseverance are really the the only recipe I can advise as everyone reacts to the disease differently and responds to different treatment protocols.

Keep up your spirits as best as possible; you WILL get better.

John

Hi 2long4this and everyone else,

---

^{Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade}

I live in an endemic area and have crossed paths with many infected folks.
Sadly, not one of them has made any lasting recovery. Most treat with high dose abx between 1 to 3 years. And it seems like within a few months after treatment ends, their symptoms start to creep back. Some of them have gone back on abx, and some just gave up and decided not treat anymore.

It's sobering but I believe that's the reality of chronic lyme - treatment will keep things in a 'holding pattern' but the spirochetes will always win in the end.

---

It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!

Deejavu
I sent you an email did you ever get it?

Deejavu Denise,

What protocol?

I cannot stand the side effects of antibiotics another day, but am concerned about my swoozy head and need help. Otherwise coping much better w/o the fatigue massisve dosing of abx has caused.

LOL Jelaine. I've worn out several pajamas and robes. I think my bed and sofa are in for it next, LOL.

---

2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

My ACA got much better with detoxing and my whole alternative approach!! The dermatologist told me that its uncertain if this ever goes away even with heavy abx treatment but also said she knows about some who had miracle results with alternative treatment / detoxing. You can still see those areas on my skin but it now looks like healed skin after large scabs - not like the horror before!!
So - hey, there is so much hope !!!! Take care, dorit.

My DD is doing *great* I know it is easier for kids to bounce back. We think she was born with Lyme and was 9 when she first started treatment. She has been symptom free for 4-5 months and feels great. She is slowly weaning off of abx, down to just 250 mg Biaxin a day. She is also on Burbur and Banderol/Cumanda herbs (Cowden) and HH capsules (Zhang)

Her llmd feels that continuing abx for 6 months after symptoms are gone is the best approach, plus support of herbs.

I look at her and feel that their is hope for the rest of us.

---

Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/

Morning all,

Thanks for posting everyone about finding recovery and not giving up hope. I think there should be a permanent sticky on here where people who have recovered can leave messages for the rest of us that struggle. Something easy to spot every time we come on so that we know there is recovery because sometimes you really do believe you are fighting a losing battle. I am going to research Dr. Jernigan's protocol next. I also believe you cannot take abx forever - at least I sure can't. My body just can't tolerate it. I believe we have to make a vow with ourselves to be healthy in every way possible; to take herbs and supplements that help boost the immune system, to eat only health promoting foods, get plenty of sleep and to exercise. I have my ups and downs but I am much better than I was a year ago.

hey two long,
I hear you.
I have gotten better and got my 5 year old better as well.
I know of others on her that have also gotten better.
To help you understand one thing for sure. My strong opinion. Is that abx drugging made me and my kids much sicker.
If you go out and buy a book on Auto Immune disease. And read through them. MS, Lupis, cronic fatique, depression...etc. You will see that you have just about every single one of them.
I did.
Blind, suicidal, wanting to quit. Altzhemiers...etc.
Out of work, no friends. Pain....lost.
And taking tons of abx and getting worse.
So my thought is this. 95% of the population has herpes. Some people it really bothers, others it does not.
I lost my virginity at 23 and first guy gave it to me. It bothered me once. Once I got lyme is was bothering me all the time.
My boyfriend who had a stressful job had problems with it all the time. Herpes and Lyme, I think that everyone does or will have both.
There is no way to not get bitten by a mosquito.
Plus you can get lyme during sex.
So.....the people who are sick and getting worse. Are people who's immune systems have been kicked back. Due to many things, stress...poor diet....both of those applied to me. Even though I look healthy, I did not eat much, wanting to stay skinny, and from modeling...
So now that I am fertilizing mysef daily and sometimes twice a day. I am fine.
I know of many others on here who are doing better.
I must admit that the battles that go on, on here when some are trying to get there "sucessful stories" out piss me off greatly.
I must also say that once you get better and every time you come back on it is the same old thing over and over. Everyone is drugging with abx and not getting better after years of it and whinning about it and will not listen to other ways.
Sorry if that comes off as a witch. I can me....lol.
But others on here have in fact gotten better with Dr. J. And I did not do his treatment, but I do no personally people that went to him and they think that I am some sort of god for it.
For him.
I did the heavy abx and I lost my mind. And my kids. I am all better now.
I have posted a bunch and too much about my treatment. Maybe you are right about the new lymies who are flat on their backs and having such a hard time. It took me forever to find this forum in the first place. I was lucky in that I had the resoures to travel the world and have the best Dr.s and not have to worry about money. But.....I did not find out about envita on here. A stranger told me about it.
So....neffer above knows what she is talking about...and Deja vu...had been great for such a long time...I would listen to her..plus she is a sweetie.
And so on.
Me I am a pain in the butt...and ever so provacative...lol...vegan gave me that name....love it.
But you can get better...you just need to get off the road you are on now. Pull over and get some better directions. :>)

---

2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."