any good news?

Google Michelle On Lymes Disease and read her story. She is cured after 16 months of antibiotics.

Though I am still being treated after 4 years (extenuating circumstances of having heavy metals toxicity), I am so much better than the dark days. To quantify it, I would say I am about 80-85% back to normal. There is definitely hope--patience and perseverance are really the the only recipe I can advise as everyone reacts to the disease differently and responds to different treatment protocols.

Keep up your spirits as best as possible; you WILL get better.

John

2long4this said...
Is there ever any good news with lyme disease?     Well, so far I got to skip the whole low rider blue jeans and T-back underwear craze, A-line tops and dresses, and babydoll tops that make everyone (even 2 year olds) look pregnant.

It seems like all I ever read is bad stuff and it seems like if you have lyme you're pretty much stuck like this.     I have been stuck like this for 9 years (this June).

People must recover. I just can't wrap my head around the idea that once you get bitten your life is over.     9 years and I still can't wrap my head around it either, but many states have decriminalized marijuana and I hear Illinois is looking into approving medical marijuana..... so it's not ALL bad.

Because if that's the way it is, I don't know why I'm spending so much money trying to get better.     The will of the human body/mind/soul to survive is amazing.  I think that's why I spend the money.... but, I'm very fortunate I have Medicare, CIGNA and a little money.  It's this nagging belief that "tomorrow" may be better than today.

I realize it takes a long time, but I have been at this a long time. I just wish the news was more positive sometimes.  That would be a blessing. Might even help me get through the day.     Refer to first answer..... or look at it this way, you get to live in pajamas and see how fast you can wear out a robe.

All the best -

---

^{Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade}

^{06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01).} 

^{Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg}

^{"Medicare/SSDI theme song" - http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related}

^{"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs}

Hi yaniv_naced,

I'm so sorry that the people you know have not recovered, maybe antibiotics is not the way to go after a substantial amount of time?   There are so many alternative medicine protocols out there and lots of people including myself have done so well. 

I really don't believe spirochetes will always win, my view is to get one's body strong enough in order to kill bacteria on it's own.   I have not used any treatment protocols for  over 3 years now but I learned to keep my immune system strong, eat right, exercise (very important!), and daily detoxing.  Exercising is one way of detoxing because not only do you sweat out toxins depending on the exercise routine, but also getting lots of oxygen inside the body that lyme bacteria do not like, plus it makes one feel good! 

I understand that many are not strong enough to exercise just as I wasn't when I was really sick so I first tried doing yoga and light stretching and eventually I got to the point where I was able to do aerobics. 

There are many choices out there, I believe if one is not getting better on their current treatment protocol then try something else.    Sometimes we just have to become our own advocate and follow our gut instincts.  

Don't ever give up hope, okay?

Denise

---

It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!

This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:

http://www.youtube.com/watch?v=bNZ0ClNhOyg

Deejavu Denise,

What protocol?

I cannot stand the side effects of antibiotics another day, but am concerned about my swoozy head and need help. Otherwise coping much better w/o the fatigue massisve dosing of abx has caused.

My ACA got much better with detoxing and my whole alternative approach!! The dermatologist told me that its uncertain if this ever goes away even with heavy abx treatment but also said she knows about some who had miracle results with alternative treatment / detoxing. You can still see those areas on my skin but it now looks like healed skin after large scabs - not like the horror before!!
So - hey, there is so much hope !!!! Take care, dorit.

Morning all,

Ria123, yes, I e-mailed you back.  Hope this helps!

hopingTofindCure,

What worked for me was Dr. Jernigan's protocol.  I used his botanicals (he grows them himself and tests them), as well as lots of detoxing which I read in his book called "Beating Lyme Disease".  I followed his 1st edition book.  He came out with an updated book that includes biofilms which I have but have not read the entire book yet (don't have time!)... 

If you want to e-mail me about your swoozy head (good words!) I can give you some advice about that and how to clear that up.   Yes, there are some antibiotics that do cause bad side effects.

CajunGrl and Jelaine,

Oh golly, I remember my days of only wearings PJ's and robes.  I lived in them for years when I was sick.  I also would would throw a coat over my nightgown (in the cool weather) and go to my nearby drive-through Dairy Barn to buy eggs so I wouldn't have to get out of my car.  What memories!

Dorit, that's great that your skin is clearing up!  Yeah, detoxing is so important..  I remember when someone first talked about detoxing, I thought they were nuts. 

MarriedtoLymeinNJ, that's great news about your daughter.  And yes, don't ever give up hope, hang on to "hope", it's a beautiful feeling. 

Denise

 

---

It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!

This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:

http://www.youtube.com/watch?v=bNZ0ClNhOyg

hey two long,
I hear you.
I have gotten better and got my 5 year old better as well.
I know of others on her that have also gotten better.
To help you understand one thing for sure. My strong opinion. Is that abx drugging made me and my kids much sicker.
If you go out and buy a book on Auto Immune disease. And read through them. MS, Lupis, cronic fatique, depression...etc. You will see that you have just about every single one of them.
I did.
Blind, suicidal, wanting to quit. Altzhemiers...etc.
Out of work, no friends. Pain....lost.
And taking tons of abx and getting worse.
So my thought is this. 95% of the population has herpes. Some people it really bothers, others it does not.
I lost my virginity at 23 and first guy gave it to me. It bothered me once. Once I got lyme is was bothering me all the time.
My boyfriend who had a stressful job had problems with it all the time. Herpes and Lyme, I think that everyone does or will have both.
There is no way to not get bitten by a mosquito.
Plus you can get lyme during sex.
So.....the people who are sick and getting worse. Are people who's immune systems have been kicked back. Due to many things, stress...poor diet....both of those applied to me. Even though I look healthy, I did not eat much, wanting to stay skinny, and from modeling...
So now that I am fertilizing mysef daily and sometimes twice a day. I am fine.
I know of many others on here who are doing better.
I must admit that the battles that go on, on here when some are trying to get there "sucessful stories" out piss me off greatly.
I must also say that once you get better and every time you come back on it is the same old thing over and over. Everyone is drugging with abx and not getting better after years of it and whinning about it and will not listen to other ways.
Sorry if that comes off as a witch. I can me....lol.
But others on here have in fact gotten better with Dr. J. And I did not do his treatment, but I do no personally people that went to him and they think that I am some sort of god for it.
For him.
I did the heavy abx and I lost my mind. And my kids. I am all better now.
I have posted a bunch and too much about my treatment. Maybe you are right about the new lymies who are flat on their backs and having such a hard time. It took me forever to find this forum in the first place. I was lucky in that I had the resoures to travel the world and have the best Dr.s and not have to worry about money. But.....I did not find out about envita on here. A stranger told me about it.
So....neffer above knows what she is talking about...and Deja vu...had been great for such a long time...I would listen to her..plus she is a sweetie.
And so on.
Me I am a pain in the butt...and ever so provacative...lol...vegan gave me that name....love it.
But you can get better...you just need to get off the road you are on now. Pull over and get some better directions. :>)

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2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."