Good news from the Texas legislature

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LexiLex
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Date Joined Jun 2006
Total Posts : 887
   Posted 5/1/2009 10:13 AM (GMT -7)   
Anyone who lives in Texas or knows someone who does should contact their state representative to let him/her know this is coming and we would like their support!

Alexia


FOR IMMEDIATE RELEASE

4/28/2009

HUNTER CALLS FOR STUDY ON LYME DISEASE
Joint Interim Study Would Focus On Availability of Treatment in Texas


AUSTIN - In a strong showing of bi-partisan support, the House Committee on Public Health today unanimously voted to pass a resolution related to Lyme disease just moments after hearing public testimony. House Concurrent Resolution 152 by Rep. Todd Hunter (R-Corpus Christi) requests the Lieutenant Governor and the Speaker of the Texas House to provide for a joint interim legislative study on the availability of medical treatment for patients with Lyme disease in Texas.

After hearing emotionally charged testimony from citizens affected by the disease, Chairman Lois Kolkhorst (R-Brenham) moved that the committee take immediate action on the resolution, a move rarely seen in committee procedure where bills may be considered for weeks before ever being taken up for a vote. The measure passed by a vote of 10-0 with a recommendation that the resolution be reported favorably to the House Committee on Local and Consent Calendars.

The prompt action taken by committee reflects a growing urgency surrounding a disease that has quietly affected a countless number of Texans whose efforts to seek appropriate medical care face a number of hurdles. The disease, most commonly transmitted by the bite of an infected tick or flea, is most effectively treated during its early stages. However, the disease is easily overlooked because many people do not realize they have been bitten.

Compounding the problem is the fact that recommended treatments vary from different medical societies and organizations, resulting in many health care professionals choosing not to treat the disease at all. The committee heard testimony from citizens who have travelled as far as New York City and San Francisco to find doctors willing to treat loved ones suffering from Lyme disease.

Dave Claunch, Mayor of the City of West Lake Hills, testified on behalf of the measure. Mayor Claunch's wife, Susan, first started developing symptoms of Lyme disease in early 2008. "Every aspect of Lyme Disease is vexing," said Mayor Claunch. "Many Texas doctors think that it doesn't exist in Texas, so it often goes undiagnosed. The lab tests for the disease are unreliable and often inaccurate. And once diagnosed, it can take years of treatment before you recover."

Rep. Elliott Naishtat (D-Austin) who serves as Vice Chairman of the House Committee on Public Health has signed on as a co-sponsor of H.C.R. 152. "Lyme disease can be devastating to individuals and their families, and if not treated properly, can have lifelong negative impacts," Naishtat said. "It is incumbent upon the state to take Lyme Disease seriously and learn about its effects and promising treatments so Texas residents are no longer left to search for answers on their own or in other states," he added.

"Some of the folks you heard from today, I've known their children since they were very young," said Rep. Hunter. "To see these children grow up and have to suffer from such a debilitative disease, it really hits home."


P.O. Box 2910 · Austin, Texas 78768-2910 · (512)463-0672 · FAX (512) 463-2101

RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 5/1/2009 10:38 AM (GMT -7)   
I live in Tasex and I just called :)

RD

JELAINEP
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Date Joined Sep 2007
Total Posts : 2017
   Posted 5/1/2009 3:49 PM (GMT -7)   
Congratulations Texas!!!!!!!!!!!!!!!!!!!!!!!!!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 5/2/2009 12:52 AM (GMT -7)   
To know it is so close to me...I'm in Louisiana....makes me feel good. Two years ago, I had a doctor pretty much laugh me out of his office saying, "Lyme Disease does not exist here". That statement is what stopped me from deciding to treat myself two years ago. It made me keep second guessing myself. I could have been feeling alot better than being house bound for 4 months. I'm soooo glad they are finally realizing it does exist and it is very real.

Thanks for posting this.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 5/2/2009 4:56 PM (GMT -7)   
I am a Texan. They have been fighting Lyme for a long time. As a matter of fact...we have our own deer tick.."the lone star tick" and it has made it's way all up to cape cod too.
Also there is a place in San Antonio that is studing lyme as a ...how do they say it....Bacteria used in War.
Aong with some other ones.
Our old present Bush got it too at his ranch. And they kept very quiet about his treatment. And it was not wonder that he could not remember so many things. How he got out of bed and with the stress of his job...it is no wonder that Texas is finally getting the word out again.
But....I went into a Dr. with a tick in a jar and a kid with a 106 fever..and they gave me a very hard time.
I went around and around with them. And the only reason that I got my way...got her of 1,200 of amoxy is becuase I was bigger than them, and because they knew that I knew morte about lyme and all of the other co infections.
Honesty. they think that you are out of your mind when you tell them that the bloody tick and sick kid with the bite....they think that you are out of your mind..and that you are dreaming this stuff up...
They treat you like you are pretending to be ill with like....maleria.....I mean you have to really get tough and make your point and try to make people listen to you.
It is not for the good mannered soft typs who really listen to their Dr.s and just take it....and go home.
Get your spurs on Texans....Lyme is a tough ride!
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/16/2009 10:42 PM (GMT -7)   
I was reflecting on this post. yes i live in Tx as you know. this was posted a few months ago. I called i thought i did my part.

well let me tell you. it still isn't of help to me or the others i know who believe they have Lyme in Tx to get treatment. my ID to date does not believe there is Lyme in this part of Tx. the baboon.

I will be calling them once again tomorrow. i want answers as to why i can't get treatment and what this state is going to do about it. not only for myself but for the others as well. it is past time this crap was put to a stop.


   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)

Post Edited (RottenDog) : 7/17/2009 12:04:09 AM (GMT-6)


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/16/2009 10:53 PM (GMT -7)   
I soooo agree with you RD! It was so nice reading that post again. I hope something gets done, and soon!
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/17/2009 12:23 AM (GMT -7)   
i'm not sure what good its going to do me to call them. but i can say this they will know who i am b4 i'm done. unless they hang up on me..lol
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 12:36 AM (GMT -7)   
LOL!!
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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