There is a possibility that my daughter may be allowed to start IV Ig and I was wondering if anyone here is on this treatment. The dr. told us that she would have to have signs of neuropathy to be put on this. She is going to have an EMG test done very soon as well as a nerve biopsy and I guess the dr. will make a decision based on those results.
She is unable to walk due to lyme, and officially stopped walking completely in January of this year. She has been on IV Rocephin for six complete weeks with no improvement. He said he only allows three months with no improvement, so we are reaching the end of this treatment course. He also added Doryx 2x/day to see if there is any change. She is very sensitive to oral meds, however, she agreed to try the Doryx again. Prior to this treatment she was on oral meds but could not tolerate them. She was treated for babesia and bartonella, and has tested negative for both of them now.
After researching IV Ig, I realized that she was on this when she was four years old when she was hospitalized for ITP. This helped her stop the excessive bleeding and got her better. She is predisposed to autoimmune issues, and in my reading it indicated that people that have autoimmune problems take IV Ig, so I thought she would be able to go on it based on that alone.
Has anyone had any luck with this treatment? Would you be able to tell me why it was prescribed for you (what were your symptoms)? Thank you very much.