1st appointment what a wast of my time

You must be your own advocate. I didn't like the first guy I went to either and not thrilled with second guy but will give him more of a chance. I am convinced part of the problem is finding someone who genuinely cares. They may know their medicine but I am convinced they dont' give you enough time to figure things out cause they have to see the other 100 patients a day so they can make their big bucks. Its a terrible way to feel but its only after 3 years of doctors smiling and telling me I was fine it was just menopause and I should count my blessings. Don't give in or give up. You have the right to be mad.

I understand your frustration also. The fact is, if you have lyme a short course of abx like doxycycline will bring on a herx which is diagnostic of the disease without the need of tests. I don't know what if any affect doxy has on MS so you should check into that first. But if you have another bacteria like bartonella then you would need a different abx. I have had to treat myself as the doctors are apathetic idiots. You could also do an herbal regimen and you might herx from that. I believe, but am not sure, that bartonella can cause numbness, so you are probably, like the rest of us, co-infected with at least two organisms. I hope this helps you. I have had a lot of vertigo. Hang in there.

I had a MRI done last month it showed i have 10 to 15 foci that can be due to mild small vessel ischemis disease,demylianting disease,vasculitis,chronic migraine headache changes,infection (including Lyme disease and viral infection) and toxic injuries, but they are very nonspecific.

this was what was on my report, now i have been to a nero sergen and he wasnt consernd about it, guess couse it wasnt him who had this. then the ID i saw today didnt seems to be consernd about it either. i mean i do have a test report showing i have lymes. i dont understand why they want to blow me off... yes i know i dont have money but i do have a programe that will pay up to xxx amount. its like lets see u go to 100 different docs use up all your alowed and then sorry we cant help you, you cant pay for it.......grrrrrrrrrrrrrrrrrr


RD

Hi RottenDog.  I am sorry your appointment was disappointing.  Was this doctor recommended by a Lyme patient?  Did he say anything about testing for co-infections?

I recommend getting another opinion.

 

Thanks everyone for your posts and comments,

here is my delimea i have to go to who my med covage says go to, i have not been able to work in 3 yrs now. i am on a county programe and they dont pay much if you know what i mean..so i am at there mersie just my bad luck..

my next appointment with this doc is in 6wk and if i'm not better or able to see a nero by then to rule in or out MD, he is willing to place me in IVabx then.

i also whent as far as calling my vet to find out what test they used on my dog to get a positve report and asked how acuerect it is..lol he didnt know, i'm like if its acuract do it on me, i'll bark ruff ruff abd nothing was said about co infections either by him. but he did make a point of letting me know there isnt much lymes in this part of Texas. so i explaned to him. 6 or 7 yrs ago i was in N.J. then 5 yrs ago in Wi. and 3 yrs ago i was Mn. only lived in Tx 3 yrs now.( i could of get it anywhere) that didnt seem to bother him tho.

i did argue with him and all i got was a smile and told see ya in 6 wks.think my next step is to have my reg doc studing up on lymes and have him treat me, lest ways he is nice to me and willing to help me.sad thing is i know more about lymes then he does and he addments it.

sorry for the book here. thanks again for all your input. wish everyone the very best

RD

I agree, you must be your own advocate. I encourage you to follow every avenue you can, to get well. (not just get better)

I was blessed to find out I had lyme as soon as I possibly could.

I was originally diagnosed with M.S. by a neurologist.

When speaking to my LLMD, I found out that while I have lyme I have M.S. It's the lyme that is giving me M.S.! and when I am well from the lyme, I will not have the M.S. The dr. said he has seen it completely reverse many times.

My second set of MRIs was done after I had been on abx for 4 months. The second set showed that a flair in the t spine had resolved and that the spots on the white matter on the brain were significantly smaller.

In Jan. I got a picc and started Rocephine. I am now really beginning to feel that it is working. I've been sick for over a year. Even though, I don't know how long it will take I know I am going to be well again.