MY POST FROM MARCH 2009: I received a lot of my latest blood test results back. Of approx. 33 tests, they couldn't run 3 of the tests because of a mistake at Quest labs, 11 of the tests are still "pending", 7 are postive and the rest are negative. So now, just shy of 9 years since this whole 'Lyme disease - freak of nature' started, I am positive for Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter koseri IgA, Morganella motganii IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01) .
AS OF 05/05/09: Dr. C says the Rocky Mt. Spotted fever and the Typhus are reflective of "old" infections and are not current. He can't interpet alot of the other stuff.... However, I got the final report of all the "pending" results and there was a C4A test. The range was 0 to 2830.... I'm a 22,140. All they could tell me was that it is an indication of an ongoing inflamatory process..... WITH ALL DUE RESPECT (and I'm trying really hard not to cuss here) I DIDN'T NEED A TEST TO TELL ME I HAD AN "ONGOING INFLAMATORY PROCESS!"
I have been referred to an Immunologist/Allergist to see if he can "fix me" so that I can take IV Vancomycin without having an allergic reaction (on my one and only test dose of Vanco, I ended up with "Redman Syndrome". My face turned bright red, my eyes swelled, etc.) If he can fix me, I'll go in for a PICC line and then do 4-6 weeks IV Vancomycin.
AND MY PARENTS - WITH NO DVD PLAYER FINALLY GOT ONE! Soooooo I send my last copy of Under Our Skin to them. My father hasn't even watched it yet.... and my step-mother's response??????? "It was sooooo depressing. Is this how LD has effected you?" AAAAAHHHHHHGGGGGGGGGGG!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01).
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg