my brain is dumb it is the Flow Cytometry antigen test.

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veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 5/8/2009 10:42 AM (GMT -7)   
Centralfloridaresearch.com Im sorry but this excites me

Post Edited (veromia333) : 5/8/2009 11:49:24 AM (GMT-6)


Cheezhead
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Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 10:53 AM (GMT -7)   
Ok you have drawn my interest,

1. what's the cost?

2. does this test look for Lyme & coinfections?

I have had buckets full of blood test done at Quest & IgeneX, to this point I have only shown positive for EBV, and have had positive bands 41 & 39 on the Lyme tests.

Thanks
 
 


veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 5/8/2009 11:46 AM (GMT -7)   
1.250.00

2.Yes. more money.

3. Go to the website look for the antigen test Read it! you will be happy about the rationality they poses and the brave statements they simply make factually. it beautiful got to go to wrk now.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 5/8/2009 3:16 PM (GMT -7)   
What's so special about another test for Lyme? Do we shell out more money to confirm our suspicions?

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 5/8/2009 4:32 PM (GMT -7)   
V: I am the one who gave you this info but I wanted to add that I dont think this test is any different than what Dr. Fry is now doing. Looking at the blood under a microscope. I had this test done back in 2005 but the doctors here do NOT rely on it for a diagnosis. D

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 5/9/2009 11:14 AM (GMT -7)   
No you gave me the number not the information. You sent me there for the q-ribb. The doctor told me about this. And he said it is not the use of a microscope.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/9/2009 11:35 AM (GMT -7)   
Maybe it was not a microscope but they sent me a photo of my blood, do they still do that V?  D

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/10/2009 10:20 AM (GMT -7)   
Well the doctor said they use flouresent lights that somehow react with the BB. And It is very accurate unless the BB has moved to much out of your blood and into the tissues and the specific sample of blood did not yield enough BB, and said the clinical diagnosis is still most reliable. But this test is very good. He said they arent doing the microscopic type test w the picture. Which i wish they did still do that would be so cool to have. I dont know if i sound wierd for saying that. Do you have a picture dowa? Well the Flow cytometry is used in other diseases and I believe the central florida research center developed it for lyme. But the government did regulate it. You score a 0.02 % or under which is negative 0.04 is positive and they believe 0.03 is pos but the gov made them call it borderline. Said they have seen .15% . They use flouresent lyme antibody and flow your blood through them 50,000 reactive events are counted in one minute and reported as a percent.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/10/2009 10:31 AM (GMT -7)   
Yes V, I have a photo from them. It says Q-rib on the form that I took the number off of for you. Dont really understand the difference but I do have a photo. I know Dr. Fry sends a photo as well, I have two from him. Good luck if you have it done. I am not certain that these tests tell us if were are a definate positive anymore than the bloodtests do. Do you think?  D

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/10/2009 10:44 AM (GMT -7)   
Well the blood test looks for your antibodies that you have developed. The flow test has grown its own lyme antibodies then they infuse them with flouresent lights and combine these homemade antibodies with your blood sample hopefully containing some of the BB which will react causing the flourescence to light up if the antibodies react with the implanted antibodies. a machine rapidly processed the blood 50,000 times. and tells you how it reacted or not. The flow identifies adult and cyst form BB. the q-ribb simply looked for the bb under a microscope. Do you see the diff.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/10/2009 10:51 AM (GMT -7)   
So are you saying. Dr.Fry is still doing a Q-ribb type test.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/10/2009 12:58 PM (GMT -7)   
There is not a name of the test on the Fry report, it just says Blood smear. They send your blood to him on a glass slide and he somehow enlarges it and sends a photo to you. He did mine twice and it came back with two different "possible" diagnosis, first bart and then Ehrlichia. Then at the bottom of the test report it says, "additional lab work is required for diagnosis." So, I am confused about these photos if the lab work is necessary anyway. I still am not sure if I am positive or not, like many here. Its so frustrating.  D

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/11/2009 8:32 AM (GMT -7)   
Well even the best test looking at the blood for antibodies or antigenes can just be worthless I have just read that in chronic lyme the bacteria can move almost completly out of your blood and into your tissues. Info found at Centralfloridaresearch.com lyme antigene test. This bug is unbelievable!
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/11/2009 11:05 AM (GMT -7)   
That is how I understood it also. When you have Lyme for a long time, it is no longer in the bloodstream and I think that is exactly why alot of us are testing negative. I wonder if it is possible to do a tissue biopsy if it goes into the tissue. I know it would be an invasive test but honestly I would do it if it would give me a definate answer.  D

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/11/2009 11:33 AM (GMT -7)   
Yeah I know. Like what organ or muscle is most symptomatic and biopsy it! Lets research that!
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.

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