Orthostatic Hypotension

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Regular Member

Date Joined Sep 2006
Total Posts : 364
   Posted 5/14/2009 4:04 PM (GMT -7)   
My daughter was recently diagnosed with this. She also have MVP, chest pains all the time, numbness, some joint pain, fatigue, headaches, and the list continues. Since she is the only person in our house that didn't have Lyme when we all got tested a couple of years ago I am wondering if she is now positive (well she had one band positive and 3 IND but not really any symptoms back then).

I was just wondering if anyone has had this condition and these kind of "heart" problems. I know I used to get palpitations and some chest pain, so thought maybe this could be associated with Lyme?!?! I just sent an email off to Igenex to get a kit sent to me to have her tested.

Thanks everyone - Blessings to all!

Veteran Member

Date Joined Aug 2006
Total Posts : 690
   Posted 5/15/2009 6:10 AM (GMT -7)   
Yes..I had orthostatic hypotension..a specific type called POTS. It's very common with lyme, bart and babs. I had fatigue and a lot of heart problems. Notice I say had..after 2 years of abx, they pretty much went away!

Veteran Member

Date Joined Nov 2006
Total Posts : 667
   Posted 5/15/2009 12:35 PM (GMT -7)   
I also had Ortostatic Hypotension which went away with treatment, its great you know what to do and ordered a kit from IGENEX so quickly, best wishes

Veteran Member

Date Joined Aug 2007
Total Posts : 887
   Posted 5/17/2009 1:12 PM (GMT -7)   
Yes, I had sudden drops in BP in the very beginning, the doctors then didn't even address it. I would have her checked for sure.
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 

Veteran Member

Date Joined Sep 2007
Total Posts : 2017
   Posted 5/17/2009 4:24 PM (GMT -7)   
Yet another reason I hate this disease!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs

Veteran Member

Date Joined Jul 2007
Total Posts : 943
   Posted 5/18/2009 9:42 AM (GMT -7)   
I also had orthostatic hypotension (feeling faint or dizzy after getting up) for many years but with treatment for lyme and co-infections it has for the moat part gone away. Lately I suspect Babesia is returning and I slightly feel faint for a moment when I get up from sittting, so I put myself on malerone this time instead of mepron (I have a box of medicines from years of treatment) and it is getting better again after only 4 days on it. So perhaps it is Babesia related for me. I will stay on it till I see my LLMD next month.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

Regular Member

Date Joined Sep 2008
Total Posts : 350
   Posted 5/22/2009 11:23 PM (GMT -7)   
Me too. I also have MVP. She may need a stress test and echocardiogram to make sure that her heart can handle the meds; if she's going to be on them for any length of time.

I was on Biaxin and Cipro for a while, which gives you worse palpatations than you already had. So I needed the cardiac workup.

Also, make sure she's drinking tons of water. It will help with the hypotension and the dizziness when standing.

Good luck with the IGenx test.
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   

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