Most of us are too sick to travel... too tired to write letters.... hooked up to IV's and have to go to a clinic everyday for a dose of rocephin, or completely out of $ and can't do anything "extra". And, a lot of us have already traveled, written letters, protested, etc.
It's hard to band together as one and show a sign of community, determination, and force to have guidelines by the IDSA and CDC rewritten. But I applaud your willingness to post.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01).
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"Medicare/SSDI theme song" - http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs