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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 5/17/2009 5:58 PM (GMT -7)   
Sorry, I'm about as bad as lymekiller......  he he..... just kidding.
 
Promise, I have been reading and reading and reading, but don't forget ( rolleyes ) I'm having memory problems...
 
Anyway,  if my hypothryroidism is due to lyme (I did not have a problem before), IF I get proper treatment and let's just say I get better, or at least improve.  Could that mean my thyroid might return to normal function and be able to go off thy meds,  or is that a dead end street?

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 5/17/2009 6:42 PM (GMT -7)   
LymeUnknown said...
IF I get proper treatment and let's just say I get better, or at least improve.  Could that mean my thyroid might return to normal function and be able to go off thy meds,  or is that a dead end street?
In my opinion, "yes".  Once cured, we return to our "normal" state of being as if returning to a simpler time and place.  For example:
I will be 35 years old, a size 6 female, kicking ass at work and climbing that f'ing ladder like no one's business, newly married, a "trophy wife" some might say.  My mother always said, "Jennifer, you always managed to step in crap and come up smelling like a rose".
I spent the first 18 mos. of marriage happy, traveling, making lots of moola... I could not have asked for anything more and then WHAMO - Lyme disease.  I haven't been out of a robe since.
But seriosly, I really do think a lot of my (our) problems will clear up once the LD and coinfections are gone.  And a few of the remaining symptoms could be due to age(ing) or damage endured by abx usage or lack thereof.
 
UhOh, JelaineP is going to that 'dark place'..... AAAAAAHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!! rolleyes rolleyes rolleyes skull shocked skull rolleyes rolleyes rolleyes

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/17/2009 7:23 PM (GMT -7)   
LOL Lymekiller, I can tell you are young. My Nannie had a stroke 4 years ago and I would never want to be in her shoes. She can barely talk, says "yes" when she means no, cannot form a complete sentence, cannot use her right arm at all. Her hand is always clinched and doesn't open, she can barely walk and sometimes pees on herself. I'm sure....in fact I'm REALLY sure....she is worse than you or alot of people here.

You know, I truly want to help you because I know you are suffering, but you really should watch what you say sometimes. Words can sometimes hit home and hurt others. Please be careful. Thanks.

P. S. - I do understand that some do have it bad. I, myself was at the point of not being able to walk but I would NEVER want to be in my nannies place.....EVER!

Edited to add: my Nannie was almost dead when they found her 4 days later. She has no drug to put her in remission or close to feeling better like we do. She's actually getting worse and has no hope of a drug making her better. She has to live like that for the rest of her life. At least we have a little "hope" to cling onto.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

Post Edited (CajunGrl) : 5/17/2009 8:27:40 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/18/2009 4:55 AM (GMT -7)   
Lymekiller,

It's okay. I'm just very sensitive about that topic because she pretty much raised me and I see everyday what she goes through and struggles with. She's in a nursing home and it kills me to see her like that.

Remission means that the bacteria is pretty much "controlled". Meaning, it could still come back later. I've talked to a few people that had it under control and some are almost 100% back to their old self. And some that still have symptoms every now and then but feel a whole lot better.
I guess it depends on how your own body heals. I'm sorry that I don't have a better answer but that is just how this disease is. I used to cry all the time and ask, "why me?" Now, I just try to deal with what each day brings me and try to make it through the day. I don't plan anything anymore. I tell people that if I make it there, you will see me.....if not, then they understand because they know I'm not feeling good. It's not fun to miss things but that's what I've been dealt in my life and I just have to cope the best way I can.

I don't know if you saw what I posted on your "Western Blot" post but I think you do have Lyme Disease. Keep doing everything your doctor tells you, do a ton of research, and try to detox. It will help you. You are still young and many young people heal faster than older people because their immune system is stronger. In my opinion, I think you have alot of hope.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


ljantler
New Member


Date Joined May 2009
Total Posts : 16
   Posted 5/18/2009 6:18 AM (GMT -7)   
Hi,
     I was hyperthyroid (don't know if it was caused by lyme) and was treated for it for several years and now my thyroid test show it's fine. Now I have lyme again mad but, my thyroid is still OK.
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