You might want to contact the International Lyme and Associated Diseases Society for recommended LLMD referrals - http://www.ilads.org/
Another suggestion is homeopathic treatment. If you know of a physician who uses homeopathic medicine, I think it would be worth a try. Children usually respond very well to homeopathic treatment, and it can be used in conjunction with other treatments (including medications) for Lyme.
I hope this helps - take care,
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds: Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.