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pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/20/2009 10:42 AM (GMT -7)   
Thought that I would share what I am doing. After 5-6 weeks of Rifampicin and doxycycline and Azithromycin, much improved- brain fog, moods, shoulder flared then better but persists, dental sensitivities flared, then improved but persist and night sweats/chills flared, then better but persist. Moods flared initially then were much better and gradually on doxycycline my mood grew increasingly depressed. (This is the second time that doxycycline has caused severe depression in me and when I looked at the literature there are clear reports of doxycycline-induced depression.

I had (phone) consult with Dr S and he has advised that I do 4-6 weeks of IV Claforan, in addition to Azithromycin Monday through Friday and Flagyl on the weekends. He feels most of my symptoms are Bartonella and Claforan is much better for Bartonella than other IV drugs. He said the fact that I am having the sweats within hours of the Rifampicin and the hypersensitivities in my nerves and mood variablity point to Bartonella. He is seeing improvements in patients with Bartonella symptoms with this protocol......I firmly believe most of don't get better because of untreated co-infections- particularly Bartonella.

I am having my line put in next week. I will continue to do Zhang herbs and my homeopathics. He also recommends Transfer factor which I am adding- will keep you posted.......ps I never thought I would do an intravenous but feel like it's time, for a short period.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 5/20/2009 6:32 PM (GMT -7)   

pcpc, what dose of Claforan will you be infusing?  I have been on it before.  I agree that unresolved co-infections can affect ttreatment progress.

Good luck with your new protocol!


pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/21/2009 3:41 AM (GMT -7)   
2 gm 3x daily, with Azithromycin M thru F and Flagyl on weekends. How did it work for you? Was there bad Herx? Was the line a pain ? Any advice?

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/21/2009 3:48 AM (GMT -7)   
Lymekiller, yes everything improved with Bartonella treatment with Rifampicin. I had thought my thinking was better, but after Rifampicin I started thinking and remembering like my old self. What has happened is I plateaued and the constant sweats and mood lability has worn me down. It is maddening how hard one has to fight for treatment... I am a physician and have to constantly be advocating and fighting to get properly treated for an infection!!! I am so writing a book...

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/21/2009 9:24 AM (GMT -7)   
Rifampicin in oral - it is second best drug for Bart- Levaquin being the best but it was not an option for me as I have joint problems and it would have been confusing to discern a Herx from drug reaction (my shoulder did Herx with Rifampicin, but better now).

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 5/21/2009 9:28 AM (GMT -7)   
PCPC. Do you feel you have the mystery parasite bug that is being talked about and seen at a couple of the labs in smears?

If so what would you treat or have treated it with ? ideas? suggestions?

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 5/21/2009 10:01 AM (GMT -7)   

pcpc, I did not have any problems with the PICC line.  The most important thing is to make sure the site is clean and dry at all times.  If you ever have a question about how it looks or feels, address it right away.  An infection in the line can be deadly.  Be sure to get a cover for it so you can shower without getting the site wet.  The one I used was the Mid-Arm Protector from Brown Medical https://www.brownmed.com/Products/StoreProductDetail29.cfm?StoreProductId=99  You can also check local hospital supply companies and pharmacies.  Some people like to use Press and Seal wrap.

I did not have any big herxes from Claforan, but every one can respond differently to meds.   After being on Claforan for some time, I found out I had co-infectins that I had previously tested negative for.

Good luck!


pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/21/2009 10:23 AM (GMT -7)   
Thanks Ticker- what other infections, Babesia? Dr S did say that if you have active Babesia you can't get Bart under control - and vice versa. How many weeks of Claforan did you do? Did anything improve with it? Will keep you posted. I have ordered some midarm protectors.

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/21/2009 10:27 AM (GMT -7)   
Keep hope- who knows what else lies within my blood. I will say that if you treat the major co-infections and can get your CD57 counts up and do enough liver support/bowel cleansing/ immune support you can deal with most things. Most parasites respond to wormwood, garlic, so using Artemesiae and other Zhang herbs I do feel will treat parasites. My own opinion. Having had to gargle with his IV Allicinin (which he has used IV) I think that stuff would kill anything!

kelcar
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 5/22/2009 7:41 AM (GMT -7)   
Ticker

How long were you on the Claforan for?

Were you treated for any co-infections before this? Or was this the first thing you did? DId you do orals before for Lyme?

WHat was your dosing schedule......ex ( 6 a,m, 2 pm, 10 p.m)

Do you thikn it helped you...what symptoms do you think it helped most with?

Thanks so very much for your response

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 5/22/2009 2:00 PM (GMT -7)   

Hi pcpc.  I tested positive for Babesiosis, both types of Ehrlichiosis, and Mycoplasma.  I have had a nasty case of Babesiosis and have treated it more than once.

Claforan was the first IV I was on.  I don't think I had a lot of improvement on it, but I think that is because I had unknown co-infections.  I believe it is similar to Rocephin, but it is not as hard on the gallbladder.

 

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 5/22/2009 2:04 PM (GMT -7)   

Hi kelcar, welcome to the board!

Do you have Lyme and/or co-infections?  How long have you been sick?  Are you seeing a knowledgeable doctor?  Are you on Claforan? 

I started with oral antibiotics and then went to IV Claforan.  I was extremely ill and infused 12 grams continuously over 24 hours for several months.  As I posted, I don't believe it helped me a lot because I had undiagnosed co-infections.


pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/22/2009 2:52 PM (GMT -7)   
Ticker, Dr S said claforan is best for Bartonella, it it doesn't work well if there is active Babesia. Dr Zhang thinks Babesia is the hardest to eradicate and even though I did 5 months mepron/ zithtomax with Artemesinin and I have no Babesial symptoms I remain on Zhang Artemesiae (6/day) and Allergy Research Artemesinin 300 mg/day while on IV Claforan. I plan to stay on Babesial herbs with Cowden Pinella ( for Babesia) for the next couple of years.

How are you now doing?

kelcar
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 5/22/2009 3:50 PM (GMT -7)   
Yes I havebeen sick approx 16 months maybe little longer. Did Mepron & Zith for Babesia for 5 months along with multiple orals antibiotics for Lyme. I am now on Levaquin for Bartonella which has helped but I do think the Claforan will really push the eradication to a whole new level. I HOPE. HOPE
My fear is I do not think my Babesia is totally gone (even after the 5 months) so my worry is that I wont get the full effect of Claforan if there is Babesia still there.
I am back on Mepron & Zith adn will do that along with the Claforan...

Are you fully recovered?? Where are you in your journey??
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