do low lymphocytes coincice with low cd-57

My CD-57 was a 19, retested 2 months later was a 16 - now I'm on IV Rocephin and 400mg daily oral doxy. All of my other bloodwork was within normal limits (and I have a CBC, CMP done weekly and labs have been great so far since 2/25/09). But I am sure that there are others out there who may have this same thing you do. However....I do have a LOW D-25 and a HIGH D-125, which is also indicative of Lyme, so not sure if you've had those tests.

Sorry if I sound all over the place - I'm having a baaaad brain day.

Laura

RD    listen to this!    cd-57 these are known as our bodies immune system killer cells.   lyme eats cd-57.   the only other thing that does this is aids.    lyme patients have very low levels of cd-57.   this test can signify proof of lyme if your in a stage of lyme that it has had enough time to diminish the cd-57.    it is a good way to help prove lyme.      Lyme and Aids Rd are the only diseases that can eat the cd-57 killer cells of our bodies.   when i learned this it really put into perspective the impact and the level this disease can really come to.

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In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.

your not all over the place lala. who does these tests for you

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In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.

CD57 – lower counts are often observed in people that have been ill longer than one year. The test can reflect the severity of illness. It may be a helpful screening test. It is a good predictor of relapse at cessation of treatment. The following ranges are suggested:

<20 severe

20-60 most common in chronic Lyme disease

> 60 Lyme activity minimal

> 120 Relapse not likely when treatment ends

Dr. B. suggested that testing CD57 about every 3-6 months is appropriate. He noted that it often jumps towards the end of treatment and that it is not a linear improvement in all cases.

(Personal Note: I have found this test to be very useful and it has tracked well with my recovery. I did not do the test at my sickest as I was unaware of it at that time. However, after several months of treatment, my CD57 was 65. It later went to 84. Later to about 130 and most recently to ~160. My personal desire is to see it over 200 before stopping treatment but based on Dr. B’s comments, ~160 suggests that stopping antibiotics may soon become a reality

This information is from dr. burrascano noted lyme md.
So L.U. it should be an appropriate time to test you!

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In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.

veromia333.

i understand what you mean about the test, i just need to know the tech name for it, so next time i ask my Dr. about it, maybe haven it done, i dont get the blank look from him like i have 2 heads and dont know what i'm talking about.
yes he is a good Dr. for most thinsg but he is also older and glueless about Lymes. is this test in part to and CBC test as i have had many of them in the last 2 yrs. as for my Lymes i may of got it many yrs ago and just found out i have it a few weeks ago. so if there is a propper name this test is called thats what i would like to know.

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   RD

                                                                                                                 

 

still looking for answers

 

Check out http://www.anapsid.org/lyme/strickerpanel.html for more info on the CD-57 test. Perhaps supplying your doctor with a printout of this page would enable him to order the correct test.

Here is a link to the initial study about the CD-57 test in relation to Chronic Lyme Disease:
http://www.aaem.pl/pdf/aaem0217.pdf

There is no relation between total Lymphocyte count and CD-57 count.  I happen to be low for all categories of Lymphocytes (total WBC count, total lymphocyte count, CD3, CD4, NK cells, and CD-57) but most on here aren't low on all of these.

Take care,

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-Razzle

Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.

Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.

Post Edited (Razzle) : 5/21/2009 2:23:00 AM (GMT-6)

LabCorp is the only place that can test for CD 57, I have been told. I have been tested 2x there. My first result was 17. Six months later it was 40. (Normal range is 60 - 360). I was on Diflucan for much of that time period, and did a course of Mepron right before being tested. Neither tx made me feel significantly better.

I asked my wonderful LLMD to ramp up the tx, PLEASE. So I have been getting Bicillin LA shots for the past 5 weeks and I do notice a BIG improvement in energy levels. I don't need a nap every single day and I was able to do several errands in one day. I know that doesn't sound like much, but fellow Lymies will understand. The best part is that I can work in the garden!!! For extended periods! And I have started to feel able to clean up the piles of paper in my office at work and in my house. I have read that inability to clear clutter is an actual Lyme symptom. I have always been a cluttered person but over the past 4-5 years of my Lyme-itude, it has reached epidemic proportions. To even make a dent in it is very uplifting.

On the days that I feel bad, I still feel really bad (mostly extreme tiredness) but these windows of normalcy are very exciting.


RFM

Hahaaa i also am in a world of clutter. On certain days i goafter it all. others i cannot move a finger while i stare at it

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In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.

i am so happy when someone helps me thank you. I just also wanted to say that as irrelivent as it may or may not be chronic aids and lyme paitients do have low cd-57 that is an alarming comparison to how serious lyme can be.
(i did find some more info on this since this post thank you)

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The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.