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do low lymphocytes coincice with low cd-57

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Lyme Disease
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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/20/2009 11:18 AM (GMT -7)
I have been looking at my blood tests they show low very low lymphocites among other things. I would like to have the cd-57 tested. do you guys think llow lymphocites coincides w low cd-57.
I also have high neutrophil band and seg.
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Lala429
Regular Member
Joined : Apr 2009
Posts : 55
Posted 5/20/2009 11:22 AM (GMT -7)
My CD-57 was a 19, retested 2 months later was a 16 - now I'm on IV Rocephin and 400mg daily oral doxy. All of my other bloodwork was within normal limits (and I have a CBC, CMP done weekly and labs have been great so far since 2/25/09). But I am sure that there are others out there who may have this same thing you do. However....I do have a LOW D-25 and a HIGH D-125, which is also indicative of Lyme, so not sure if you've had those tests.

Sorry if I sound all over the place - I'm having a baaaad brain day.

Laura
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RottenDog
Veteran Member
Joined : Apr 2009
Posts : 1013
Posted 5/20/2009 11:37 AM (GMT -7)
i have had my blood worked up so many times in the last 2 yrs it should get paid for it..lol i do know that my white count is up and has been for the last 6 months, but at the same lvl, i wasnt told what it was tho, then my colesteral whent from perfict 3 yrs ago to extremly high. can this be from the lymes also?
also all tests for RA show negitive, but they say i do have some kind of arthiris. just seems to me my body is a walking contradiction ( when i can walk that is)


what is a CD_57, i have asked my PCP about this an he didnt know what it was. i'm thinking maybe i need this test done also, once i know what it is and who to have it done by.

Thanks for the input
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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/20/2009 12:16 PM (GMT -7)
RD    listen to this!    cd-57 these are known as our bodies immune system killer cells.   lyme eats cd-57.   the only other thing that does this is aids.    lyme patients have very low levels of cd-57.   this test can signify proof of lyme if your in a stage of lyme that it has had enough time to diminish the cd-57.    it is a good way to help prove lyme.      Lyme and Aids Rd are the only diseases that can eat the cd-57 killer cells of our bodies.   when i learned this it really put into perspective the impact and the level this disease can really come to.

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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/20/2009 1:35 PM (GMT -7)
i would also like to know who can do the test for you

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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/20/2009 1:37 PM (GMT -7)
your not all over the place lala. who does these tests for you
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+Lyme
Veteran Member
Joined : Apr 2009
Posts : 1304
Posted 5/20/2009 5:04 PM (GMT -7)
veromia, do you think a possible infection appx 2 yrs is long enough to note low cd57? I'm kinda stuck right now, having learned today from my insurance that they will not reimburse what I pay to a LLMD and the tests he orders. Even if I can pay the LLMD, there is NO way I can pay for labs. I literally have nothing but my job and my insurance. So maybe I could get my PCP to order one more test -- but I need it to COUNT.
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veromia333
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Joined : Mar 2009
Posts : 674
Posted 5/20/2009 8:02 PM (GMT -7)
CD57 – lower counts are often observed in people that have been ill longer than one year. The test can reflect the severity of illness. It may be a helpful screening test. It is a good predictor of relapse at cessation of treatment. The following ranges are suggested:

<20 severe

20-60 most common in chronic Lyme disease

> 60 Lyme activity minimal

> 120 Relapse not likely when treatment ends

Dr. B. suggested that testing CD57 about every 3-6 months is appropriate. He noted that it often jumps towards the end of treatment and that it is not a linear improvement in all cases.

(Personal Note: I have found this test to be very useful and it has tracked well with my recovery. I did not do the test at my sickest as I was unaware of it at that time. However, after several months of treatment, my CD57 was 65. It later went to 84. Later to about 130 and most recently to ~160. My personal desire is to see it over 200 before stopping treatment but based on Dr. B’s comments, ~160 suggests that stopping antibiotics may soon become a reality

This information is from dr. burrascano noted lyme md.
So L.U. it should be an appropriate time to test you!
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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/20/2009 8:11 PM (GMT -7)
L.U what tests have you had are they not paying because they dont believe you?
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RottenDog
Veteran Member
Joined : Apr 2009
Posts : 1013
Posted 5/20/2009 9:09 PM (GMT -7)
veromia333.

i understand what you mean about the test, i just need to know the tech name for it, so next time i ask my Dr. about it, maybe haven it done, i dont get the blank look from him like i have 2 heads and dont know what i'm talking about.
yes he is a good Dr. for most thinsg but he is also older and glueless about Lymes. is this test in part to and CBC test as i have had many of them in the last 2 yrs. as for my Lymes i may of got it many yrs ago and just found out i have it a few weeks ago. so if there is a propper name this test is called thats what i would like to know.
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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/20/2009 10:01 PM (GMT -7)
well put a post for that answer i havnt had it but i would like to know the details also alot of the people on the forum have had it. and like i said its in dr..burrascanos guidelines to test the cd-57 and i think that is what the test is just the cd-57 levels you prob have to seek out the test information to print out to give to your doc. please post for this answer i would like to know also
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Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 5/21/2009 1:20 AM (GMT -7)
Check out http://www.anapsid.org/lyme/strickerpanel.html for more info on the CD-57 test. Perhaps supplying your doctor with a printout of this page would enable him to order the correct test.

Here is a link to the initial study about the CD-57 test in relation to Chronic Lyme Disease:
http://www.aaem.pl/pdf/aaem0217.pdf

There is no relation between total Lymphocyte count and CD-57 count.  I happen to be low for all categories of Lymphocytes (total WBC count, total lymphocyte count, CD3, CD4, NK cells, and CD-57) but most on here aren't low on all of these.


Take care,

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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/21/2009 10:56 AM (GMT -7)
thank you
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RFM
New Member
Joined : Apr 2008
Posts : 2
Posted 5/22/2009 6:53 PM (GMT -7)
LabCorp is the only place that can test for CD 57, I have been told. I have been tested 2x there. My first result was 17. Six months later it was 40. (Normal range is 60 - 360). I was on Diflucan for much of that time period, and did a course of Mepron right before being tested. Neither tx made me feel significantly better.

I asked my wonderful LLMD to ramp up the tx, PLEASE. So I have been getting Bicillin LA shots for the past 5 weeks and I do notice a BIG improvement in energy levels. I don't need a nap every single day and I was able to do several errands in one day. I know that doesn't sound like much, but fellow Lymies will understand. The best part is that I can work in the garden!!! For extended periods! And I have started to feel able to clean up the piles of paper in my office at work and in my house. I have read that inability to clear clutter is an actual Lyme symptom. I have always been a cluttered person but over the past 4-5 years of my Lyme-itude, it has reached epidemic proportions. To even make a dent in it is very uplifting.

On the days that I feel bad, I still feel really bad (mostly extreme tiredness) but these windows of normalcy are very exciting.


RFM
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Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 5/22/2009 7:13 PM (GMT -7)
Seriously, the inability to clear clutter is a Lyme symptom????  shocked     devil   devil idea So now I can blame the disarray in my house on Lyme smilewinkgrin      Cool! 

 

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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/22/2009 7:18 PM (GMT -7)
Hahaaa i also am in a world of clutter. On certain days i goafter it all. others i cannot move a finger while i stare at it
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KO-LD
Veteran Member
Joined : Aug 2007
Posts : 887
Posted 5/26/2009 1:20 PM (GMT -7)
You can do a search for CD-57 on PubMed.gov they have a number of articles regarding the test. 

Veronica, I think the only thing that is suppose to affect the CD-57 count is Lyme Disease not HIV/AIDS.

KO

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veromia333
Veteran Member
Joined : Mar 2009
Posts : 674
Posted 5/26/2009 2:31 PM (GMT -7)
i am so happy when someone helps me thank you. I just also wanted to say that as irrelivent as it may or may not be chronic aids and lyme paitients do have low cd-57 that is an alarming comparison to how serious lyme can be.
(i did find some more info on this since this post thank you)
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