Posted 5/20/2009 3:38 PM (GMT -7)
I have this too. In the beginning I really thought I was going insane. I could not believe what was happening to me and I had a slew of doctors telling me it was "all in my head". Of course they didn't use those exact words, but it was all I was being treated for... I've been on almost every ant-depressant, anti-psychotic Rx.... I even asked about shock treatments (ECT) because I couldn't get all of this "out of my head and body". I remember yelling at my shrink (after 12 mos. of BS) that there was something "physically" wrong with me. Her response? "Well I did have a patient with a brain tumor once". about a week later my first LD test cam back EIA positive, but WB negative. It took 4 more months to find a doctor to treat me.... and I had 2 more LD tests run. The third one came back fully positive by CDC and NY state standards. And then, after 16 months of he11, I get a script for 200mg of doxycyline. Little did I know that the real he11 was just beginning.
I've been sick for 9 years. I'm not always "on the edge" but today I've been extremely bummed out. I'm so tired of being tired.
My latest dr., an allergist/immunologist, is going to test dose vancomycin to see if I just get "redman" syndrome from the drip being too quick, or if I am truly allergic to it.... And then, if I'm not allergic, I go in for my second picc line and my 4th round of IV anti-biotics.
My neck hurts so the "cervical facet injections" I had a few weeks ago has worn off or just didn't work in the first place.
I wish I could be more upbeat but I can't. Just know I'm in the trenches with you and NO YOU ARE NOT INSANE. Also, I take Xanax for the anxiety. It has helped. Please ask your physician for something for your anxiety, there are medications for this that actually work.
I can't guarantee you'll get better or worse, but I can guarantee you that things will change.