Southwest Center for Chronic Disease

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snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 5/20/2009 10:04 PM (GMT -7)   
This is a new organization that was founded to help furthur the research of a well known doctor. He needs help and we all have an opportunity to spread the word and race toward a cure for so many of us who suffer from Chronic Illness. I hope we can all take this organization serious, as with the future research of this organization could prevent and cure millions of people.
http://www.swccdfoundation.com/

runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 5/21/2009 9:49 AM (GMT -7)   
Snake,

Is the doctor's name a secret? Is he actively practicing? How can this site be of help to others other than making donations? It doesn't include much information. What microorganism are they trying to isolate? I, honestly, don't think that people are going to be willing to donate money to something that
seems so vague at this time. More information is needed.

By the way, how are you doing? How did you treatment at Envita work out for you. Are you still treating the Fry bug with antibiotics? I hope that you are making progress.

Jennifer

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/21/2009 9:58 AM (GMT -7)   
They are located in Scottsdale with Dr.Fry and Envita, any connection?? D

runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 5/21/2009 12:05 PM (GMT -7)   
Now I'm almost sure that this is for Dr. Fry. Why not be honest and just say so in the ad? This whole "secrecy" thing is not helping anybody and, in my mind, it is filling lot's of people with potentially false hope. How long has it been now that people have been holding on to hear the "verdict" of the Fry research. I commend Dr. Fry for the work that he is doing but at the same time, people are still very sick and have yet to truly benefit from his work. I think a lid needs to be kept on all of it until there is concrete proof/evidence that will offer a for sure thing in terms of helping people. In the meantime, prescribing heavy antibiotics only to subdue symptoms is all fine because it's nice that people are getting relief but "supressing" symptoms only can go on for so long. Just my 2 cents. Hope everyone is doing well. As for me, gave up on the antibiotic route long ago and I am now working with a Chinese Herbalist along with some other therapies. The progress is slow but I am so much better off now than I was while doing antibiotics that were eating my gut up. True healing needs to focus much more than just on "killing" bugs. This is just one part of it.

I wish the best to everybody.

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 5/21/2009 12:30 PM (GMT -7)   
If you go to the about Page it has his name. So there is no hiding. But I agree that the whole site is vague and I hope that the organization intends to build on the site to give people more info. I assume so.

!
From the Site said...
SWCCD was set up to help determine the cause, prevention, and treatment of Chronic Inflammatory Disease. The main diseases of interest are Chronic Fatigue Syndrome (CFS), Gulf War Veteran's Illness, Fibromyalgia, Rheumatoid Arthritis, Scleroderma, Osteoarthritis, Autoimmune Disease, Crohn's Disease, Ulcerative Colitis, Neurologic Disorders (e.g. Multiple Sclerosis, ALS/Lou Gehrig's Disease, Parkinson’s Disease, and Autism). These diseases are thought to occur primarily through genetic and aging phenomena. Dr. Stephen E. Fry, the founder of SWCCD, believes that these diseases may have a common infectious origin. We are exploring this possibility through basic research. Please join us in this process by donating to SWCCD

snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 5/21/2009 9:52 PM (GMT -7)   
Runin - Envita didnt do much...but I am almost 85% now taking Biaxin, Plaquenil, Transfactor Multi Immune and Garlic. How are you?

runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 5/22/2009 5:47 AM (GMT -7)   
Snake,

Sorry to hear that you didn't see much benefit from Envita but happy to hear of your 85% improvement! That's awesome!!! I am also doing much better on many levels but still have room for improvement. I have days where I feel 90% and then I have days where I don't feel so hot but...I am also just getting over a severe viral flu that knocked me on my you know wahat. For me, herbs are are more beneficial than the antibiotics and without the unwanted side-effects and toxicity. My mission as of now is to focus on detox and building the immune system while still addressing microbes and pathogens. How long do you think you will need to be on the Biaxin/plaquenil combo? What form of garlic are you taking? In your eyes, what is the curative rate of this drug combo in terms of going into lasting remission? I have heard mixed things on this issue.

I wish you continued health and healing,

Runningirl

snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 5/22/2009 7:58 AM (GMT -7)   
Runin - I think it is indefinite. The Biaxin/Plaquenil is no more toxic than the bug itself. I dont worry about the toxicity, the organism carries much more toxicity and Biaxin is a proven anti-malarial and anti-inflammatory and so is the Plaquenil. I dont worry about how long I will be on meds anymore, as long as everyday is pretty good...I dont care. That would just be another worry I dont need.

I think Transfer Factor is essential. I have seen the most gain from taking it. Been on it 1.5 weeks and have had night sweats for the last week and had almost symptom free days. I taked Researched Nutritionals Multi-Immune. Great Product!

I take Olympian Labs Garlic. 4-6 a day.
Calcium EDTA 100mg a day.
Fish Oil.

runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 5/22/2009 10:00 AM (GMT -7)   
Snake,

I hear ya' on eliminating the worry. So glad that you are feeling better. I'm sure you'll be back to your former self in no time. Have a great weekend!!

Runningirl

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/22/2009 11:20 AM (GMT -7)   
Snake: Glad to hear you are doing better. I would like to learn more about the Transfer Factor. Can you tell me about it or is there a web site with information. thanks  D

panther fern
Regular Member


Date Joined Feb 2011
Total Posts : 163
   Posted 2/26/2011 11:51 PM (GMT -7)   
keep hope... i am new to this whole thing.
I have been sick since the persian gulf and have many problems. I was interested in the thing on the gulf but i have no clue how to access like a q and a type thing. I have SLE, fatigue, ibs, gerd, RA, depression, and other stuff. i am just curious to know how to find others that served in the gulf that are also feeling not so great. if you could give me some advice i would appreciate it.
thanks panther fern

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/27/2011 5:44 AM (GMT -7)   
This is GOOD NEWS. thanks Snake for letting us know. as you can see over 600 people have read this post.

FRY is NOT Envita. They do not do same protocols. Envita is a treatment center that does IV detox and antibiotics. One thing that Envita follows from FRY is the NO MAGNESIUM. They found more relapse in the patients when they had magnesium as part of their protocol.

It was Fry's RESEARCH that discovered that the biofilms feed off of magnesium. Some doctors agree with him , some don't ... and some never even heard about this debate.

We can not afford to be skeptical on this one gang. Think about it for a minute. Dr Fry is seeing there is a link between all these diseases. Have you googled Whittmore Peterson Insititue?

This research place was founded by a mother of a chronic fatigue child. Whittmore is constantly lobbying in DC for this research .

Her lead scientist was a major researcher and developer in HIV discovery and treatment. I really believe this woman has more success with her lobbying because she does not say the word LYME.

We all follow Burriscano and klinghardt research. Fry is part of this mix and if he had started his lab and never used the LYME word he would have not been scrutinized the way he has.

They ARE RESEARCHING at least and not just coming up with pain medication.

It doesn't even matter if we are pro antibiotic or anti-antibiotic. It is about the major cost of research.
We have to support something? It is not like we are signing up for a $20,000 detox. we are talking about
sending TWO or TWENTY OR TWO HUNDRED or TWO THOUSAND dollars. If the 600 people that tuned in sent two to twenty dollars off with a prayer we are supporting RESEARCH it would give them more fuel to keep on going.

Does anyone else have any other place that is RESEARCHING our dilemma?? let's make a list so we all have this option to SUPPORT RESEARCH.

what are we waiting for???? Jerry Lewis to come down and do a telethon for us?

Of course we all feel better when we are doing all of the detox regimes but sometimes it can be a bit much and we still are working way too hard just to get through the day.

I did all of the natural detox regimes since 1996. I thought it was Hep C that was making me so sick.
I still ended up with crashed out adrenals and on steroids and pain meds in the end.

Fry is taken very seriously by the oldest doctors in the lyme scene. I was told by one of them that
Fry is cutting edge. This does not mean he is curing everyone. HE IS TRYING TO FIND WHAT IS GOING ON HERE.

This website does not have so much info but it just started. Have you ever built a website? I spent $25,000 for one of mine and still can't even make any changes without paying someone thousands more.

If we all sent in a dollar today it would barely cover the cost of the website. We need serious puzzle solvers who won't back down under pressure or criticism.

Thanks again Snake. are you being treated by Dr. Fry?

what is the reason for the calcium EDTA? is it about the biofilms?
what do you know about the magnesium and biofilms.

I hear you on the anti- malarial..that makes total sense.

keep posting any news.
love
Bucci
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

diaba
Regular Member


Date Joined Aug 2009
Total Posts : 175
   Posted 2/27/2011 4:47 PM (GMT -7)   
bucci, here's some recent video, from jan 2011, for a conference with the researcher you mentioned, who discovered xmrv. The head of the institute was also there, and spoke.
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