Feel terrible today

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CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/22/2009 2:18 PM (GMT -7)   
I was okay yesterday. Not to where I could run around or anything, but just okay. Yesterday was my youngest daughters birthday. We just did the family thing because I was going to "try" to bring her and some friends to the fair this weekend. Well, today when I woke up, I felt like I had been hit by a truck. I feel like I have fever and my whole body hurts including my fingers and toes. My lymph nodes are swollen, I have the chills and I just feel crappy. It always seems to do this everytime I try to plan something. I actually cried like a little baby today. I haven't cried in a while because I was trying to think positive but I'm just so sick of all of this. I always have to miss out on life and my family suffers right along with me. I can't "plan" anything anymore. I mean, I don't even know what that word means anymore....<sigh>. I'm just fed up with it all. I want to be able to just get up and go when I want to again. Make plans like I used to and KEEP them. I feel like I'm always letting everyone down because I can't ever make it somewhere. I'm always sick!! I'm sorry to be so negative everyone. I'm just not myself today. I was really looking forward to getting out and bringing my daughter to that fair. She will understand because she's such a loving child and she knows what I go through but.....I just want to be able to bring her have some fun. She's always stuck in this house with me. I just want "me" back.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 5/22/2009 2:25 PM (GMT -7)   
sorry to hear you are feeling so c....p ! I know how frustrating lyme can be - but now you have started treatment - things will get better - xx

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/22/2009 2:55 PM (GMT -7)   
Yeah, I know the feeling well...feeling feverish and in pain and like you've been run over by a truck...and not being able to plan anything because of the unexpected nature of this disease... I was in the hospital during my last birthday and again this Spring during my Husband and I's 10th wedding anniversary. We had to cancel a trip visiting family as well because of the hospital stay this year. It sux but like you say it is good that family seems to understand.

I hope you feel better soon...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/22/2009 3:49 PM (GMT -7)   
Oh gosh Razzle. That's terrible that you were in the hospital like that. That must have been really upsetting.

I feel really depressed and down today. I think the depression is from being sick and not being able to get out and do anything. I'm so sick of being in this house. I want to be healthy and get up and do things when "I" want to do them. Not when Lyme wants me to do them. I want control back!!
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 5/23/2009 5:32 AM (GMT -7)   

Hi CajunGrl.  I am sorry you are feeling so bad.  I think everyone here can relate to your frustrations.  It is not your fault you are sick.  Do you think you could be herxing?

If you cannot go to the fair, maybe you could watch your daughter's favorite movie or do something else low-key with her.

Hang in there okay?  


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/23/2009 6:24 AM (GMT -7)   
Sorry that you are having such a bad day! When I read about all of the suffering that others are going through I want to cry for all of you. I even feel guilty that I am improving.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/23/2009 8:20 AM (GMT -7)   
Hey ticker. How have you been hun?

I'm not herxing yet because I haven't started my meds. I was detoxing my body and taking probiotics and supplements to prepare my body. I should be starting the abx in a few weeks. I get this fever and run down feeling every few weeks. My lymph nodes swell too. I guess it's a co-infection. I felt so terrible. I'm feeling a little better today though.

I found out that the fair is here a whole week so I will be able to bring them next weekend. I feel better about that. I know my daughter doesn't feel like I'm letting her down but I feel that way. Even though I "know" I'm sick, I still cannot get over that feeling of letting others down. I missed my sister-in-laws graduation party and that killed. I really hate this disease.

Thanks for your advice. It's really appreciated.
2003 symptoms started
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/23/2009 8:24 AM (GMT -7)   
Turquoise,

Oh my gosh! Please....never feel guilty that you are improving. We need to hear from people like you to give us hope. At least I know I have hope. That's what keeps me going.

I'm so, so glad you are getting better! If you don't mind me asking, how long have you had Lyme Disease and do you have co-infections? Thanks hun.
2003 symptoms started
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/23/2009 11:47 AM (GMT -7)   
Yeah, I was going to visit my family the first week of June, in NC, but that isn't happening either. For now it's postponed to the end of August, when I have another week of vacation scheduled. Hope you feel better soon and get to enjoy the fair. How old is your daughter?

I don't know about the co-infections. Do they show up on the western blot or is there another specific test for them? My results are listed on the post on page 3 on the posted question for WB results. It was probably the most important question that I should have asked, and I had it on my list, but I forgot to ask it! I didn't think she was even going to treat me at all. And the questions I did ask, I still don't feel as if have been answered. I am learning a lot more on here, but there is still stuff that confuses me about it all.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 5/23/2009 1:11 PM (GMT -7)   
Bad days suck. Bad days with Lyme disease suck even more!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/23/2009 3:45 PM (GMT -7)   
yTurquoise,

The co-infection test is done separately. I think mine was sent off to medical laboratories or something like that. I would have to look. It is a good idea to get it done so you know what you're dealing with. If you have co-infections, then you need to take a certain combo of drugs depending on which co-infection you have.

What are you confused about?
2003 symptoms started
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

Post Edited (CajunGrl) : 5/23/2009 7:20:23 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/23/2009 3:46 PM (GMT -7)   
Jelaine,

How true that is!
2003 symptoms started
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/23/2009 5:15 PM (GMT -7)   
Pretty much all of it! The more I find out, the more questions I come up with. But even the Drs. don't agree, and so many people can't even get diagnosed! It's crazy!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/23/2009 6:24 PM (GMT -7)   
Did you have a Western Blot done yet? Are you seeing a Lyme Literate Doctor?

You have to take things one step at a time. It's very confusing when you first start reading everything. I did tons of research and read and read and read until I couldn't read anymore. By the time I was finished, I knew more than some doctors. Granted, I still have alot more to learn though! This forum helps tremendously!
2003 symptoms started
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

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