Local paper does a story on me!!!!!!!!!!!

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Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 6/1/2009 3:19 AM (GMT -7)   
Well I finally got someone to listen. And listen did he for over 45 minutes! The disppointing thing was I gave him sooooooooo much information, shocking information and all he came up with from me were 2 quotes that basically said the same thing. But hey I got coverage that's the point,right? So if you wanna check it out and see what I look like cuz I am plastered all over the front page of the Health section check it out.....
 
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/1/2009 4:56 AM (GMT -7)   

(Formerly LymeUnknown)

Gretchen, this is awesome! Great job! The more we can get this stuff into the media, the sooner this disease will be taken more seriously!

How did you get the interview? Did they look for a patient or did you inform them.

Most important, I am very sorry about your illness. It is so unfair that so many years of our lives are ruined by a disease that our kindest PCPs don't know how to diagnose and treat, and in which the rest don't believe.


Very engorged tick and TBI 1971, follwed by infection, lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant w/ first born, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What else could this be?
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.

Post Edited (+Lyme) : 6/1/2009 2:54:17 PM (GMT-6)


Weary1
Regular Member


Date Joined Oct 2006
Total Posts : 127
   Posted 6/1/2009 5:26 AM (GMT -7)   
Great Article!!! It's so important to get the correct info in the media!!! Way to go!
www.chicagolyme.com
 
"Greater things are yet to come and greater things are still to be done in this city" - Chris Tomlin
 


Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 6/1/2009 12:47 PM (GMT -7)   

      Thanks guys!

  Weary, one of my business partners had a client in that works out my local paper and he was fishing for some new stories that the reporters could cover and she told him about me and then called me while he was in the salon. It  took about a month for the reporter to get back to me but here it is in black and white LOL.


I'm gonna get that Lyme!!!!!!!!!!!
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/1/2009 5:12 PM (GMT -7)   
Great article.... I recognize the grouping of Rx's in front of you!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 6/1/2009 7:14 PM (GMT -7)   
Way to go Gretchen!! It's good to see Lyme in the papers as much as possible!!
 
 


Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6030
   Posted 6/1/2009 7:21 PM (GMT -7)   
Gretchen, that's great!  Very nice article!
yeah

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/1/2009 7:51 PM (GMT -7)   
That's fantastic. Congratulations!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/1/2009 11:34 PM (GMT -7)   
Congrats Gretchen!! Great article!! It's nice to see someone getting the word out. I think I may give Montel a call when I start feeling better. The world needs to know about this disease.
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 6/2/2009 6:00 PM (GMT -7)   
        I am not sure exactly which abx took the confusion and memory problems away. I have been on abx for over 3 years and so many different combos. It took me about 18 months to start feeling human again.
        As far as my vision issues I had blurred vision, high pressures(glaucoma suspect), waviness around my peripheral vision and tons of floaters. These have all cleared up with treatment, mostly with Mepron for Babesia.
I'm gonna get that Lyme!!!!!!!!!!!
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!


Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 6/3/2009 10:47 AM (GMT -7)   

lymekiller,

 My Babs symptoms were my vision problems, air hunger(short of breath),rib pain to name a few. I had to do 7 rounds of Mepron (3 weeks on 1 week off) to get rid of symtoms.I haven't had to treat Babs in probably 18-24 months. Good luck!Peace!


I'm gonna get that Lyme!!!!!!!!!!!
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/3/2009 11:47 AM (GMT -7)   
I have lyme and I've got the papers to prove it!! Take that Wormser!

Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!

THIS IS SO FUNNY. I JUST WANT TO KNEE HIM IN THE GROIN AREA!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 6/3/2009 1:48 PM (GMT -7)   
Gretchen,
This is good. Thanks for helping to educate as many people as possible. Hope you and your family are all healing.

Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 6/4/2009 3:38 PM (GMT -7)   

Thanks gracie's Mom, I can ALWAYS count on you for support!

It's all about awareness guys......get out there and get noticed!!


I'm gonna get that Lyme!!!!!!!!!!!
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!

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