Yes, I was approved for 13 months of IV antibiotic therapy that started November 2007 and ended January 2009 . At first I was on rocephin, then zithromax with rocephin 3x's a week plus mepron for babesia, then clyndimycin with rocephin 3x's a week. My insurance company paid for everything including 2 picc lines put in at an office and then two picc lines put in at the hospital, and weekly nursing visits. Things started off with a bang on the first picc line because on the first bandage change the nurse cut the line! We did have to pay our $3000 deductible first before the insurance coverage kicked in, but HEY - I am not complaining.
I think Aetna believed I was sick, the labs were not all CDC positive, however they were very high for Bartonella, babesia, a couple of lyme bands, a positive elysa, plus mycoplasma, chlamydia pneumonia, and Epstein bar. Off the charts on those.
Also had previously bad brain spect that improved with IV plus some MRI brain lesions. I have been off and on treatment since 2003 but on this last go round of 14 months I have had significant improvement. I still have to take orals but I am functioning at about 75%.
I too have been approved for long term antibiotics (IV) I have been on them since Oct 08...which I am sure seems like nothing to you, but I am feeling really overwhelmed because my LLMD wants me on IVs for at least 15 months. I feel like I have been on them forever and for only one month did I feel some improvement. Now I just feel like I am going down hill. Like everything is falling apart. All of these symptoms are coming back so strongly and it makes me feel discouraged. It also makes me feel like maybe I am crazy and I am only mentally making myself feel this way.
My question for you is did you go through any of this?? Did you feel discouraged...or like nothing was improving even though you had been on IV treatment for awhile.
I too have babesia and bart I also have type one diabetes, gastroparesis and a bunch of other illness. Things I have delt with before I got lyme and what not. Does this have an effect on why it will take so much longer to get better? I guess I am just waiting to wake up and feel dramatically different. Am I crazy for thinking that??
I guess I am asking you because it sounds like you might be or have been going through something similar. Just looking for some words of wisdom I guess.