A new symptom to add to the Lyme symptom list?

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Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 6/1/2009 11:30 PM (GMT -7)   
idea   So after reading several threads here tonight, I came to the conclusion that many of us have done the same thing I have done too, and that is we've all gone to doctor after doctor after doctor with no answers.  So I think "going to doctor after doctor with no answers" (or something like that) should be added to the list of Lyme symptoms!  yeah smilewinkgrin smilewinkgrin    What do you all think?
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 6/2/2009 12:16 AM (GMT -7)   
It would let people know to look for Lyme Disease if they can't find any answers.

"If you've been to doctor after doctor and still don't have answers....you may have Lyme Disease"
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

Regular Member

Date Joined Nov 2008
Total Posts : 375
   Posted 6/2/2009 9:21 AM (GMT -7)   
Veeeeerrrry good idea, Razzle !!! I would love to find a proper abbrevation for this too, maybe something like "sdadwoga - symptom"( seeing doc after doc without getting answers) ... although this one sounds somewhat like a kind of alien attack ...LOL.

No, seriously, I was on a doc journey for 8 years; then I went to another dermatologist who saw my "neurodermatitis" and said it looks more like late stage Lyme to her.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 6/2/2009 9:39 AM (GMT -7)   
Great idea!

Veteran Member

Date Joined Sep 2007
Total Posts : 2017
   Posted 6/2/2009 11:06 AM (GMT -7)   
I think we could add a lot to that list - haha!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs

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