Such short treatment protocol for longstanding lyme?

springsjean

Forum Moderator

Joined : Mar 2009

Posts : 2169

Posted 6/2/2009 5:10 PM (GMT -7)

OK so I go to the dr. today after first month of treatment with amoxicillian (initial symptoms started 4/05 followed by severe stiff neck in 6/05 so pretty much know have had for at least 3 years). Only my second visit but I do see a difference - heart is not racing anymore, energy better, but still lingering joint pains, stiffness, headaches, etc. He said he would keep me on another month and "that should do it."

I ask him if everything would come back since I have had for so long and he said he sees alot of patients and thats usually all they need. I did ask him if he believed in chronic lyme and he said he thought it was very rare - that those who had lingering symptoms are usually additional conditions caused or aggravated by lyme such as fibromyalgia, arthritis, etc.

Is this the big controversy???? or are most people in remission after such short treatment? This doctor was recommended by lyme association. Thanks a lot. This site has been a godsend for me.

goodoldtimes

Regular Member

Joined : Mar 2008

Posts : 96

Posted 6/2/2009 5:51 PM (GMT -7)

hi,

No two months treatment is much too short. You can read Burrascano's treatment guidelines (just google it) and try to find a Lyme Literate Doctor. Sounds to me that that doctor is no good for you...
I was treated for 3 weeks and my symptoms returned. The second time I had 6 months treatment and now my symptoms returned again...
Take care!

EM rash oct. 24 2007, 10-30-08: doxy 100 mg. bid for three weeks. Felt better, but symptoms slowly got back and much worse

2-21-08 until 4-23-08: doxy 100 mg. bid (described by family doctor)

4-24-08: start doxy 200 mg. bid and Biaxin XL 1000 mg once a day (seeing an Infectious Disease Doctor)

8-8-08 until 8-21-08: adding Flagyl 500 mg. bid

8-21-08: off all ABX

9-17-08: doing herbs but symptoms slowly reappeared,so started Biaxin 500 mg. bid on 9-17-08

11-12-08: off abx, start Diflucan

+Lyme

Veteran Member

Joined : Apr 2009

Posts : 1304

Posted 6/2/2009 5:54 PM (GMT -7)

Just wondering, here..... I understand that lab tests cannot prove that the Lyme has been cured. But shouldn't Drs at least be testing the blood to see if there are still any positives?? I realize a lot of patients will still be left out in the cold, but maybe if everyone were tested again before releasing from treatment, the Drs would realize that there are too many who still have spirochetes and symptoms after 'treatment'!

Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck, chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain. Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia. What was this??

Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG. Still awaiting appt w/ LLMD.

Turquoise Sky

Regular Member

Joined : Apr 2009

Posts : 250

Posted 6/3/2009 9:31 AM (GMT -7)

I was told that there is no reason to do another Western Blot to see if there are changes, because for one thing, other things can affect the results. She didn't go into what those might be. Also, once you are positive, you will always be positive, so there is no reason to do another test. It is her belief that the 28 day course of IV ceftriaxone is enough to kill the Lyme, and that if I relapse, it was not Lyme that was causing the symptoms.

I am improved overall, but from what I have read, it might possibly just have gone dormant again. In which case, I'll have to find another source of treatment, because, I know I was bitten, and I did test positive.

Sounds like we are in similar circumstances. Now that I am off the abx, I plan to do the herbal treatment suggested by the clinical herbalist nearby.

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