What are symptoms of Lyme Disease?

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New Member

Date Joined Jun 2009
Total Posts : 5
   Posted 6/2/2009 5:27 PM (GMT -7)   

I am new to the boards. Wondering what are initial symptoms?

I had a dog 15 years ago and lived in Thailand. He had ticks and some got on me. Not sure if they had lyme. I was fine but now I am getting widespread twitching and cramps and weird sensations in hands and arms like it's lacking oxygen supply. Wondering if this sounds familiar to anyone? Could it be possible to get lymes after 15 years of being bitten>?

Veteran Member

Date Joined Jul 2007
Total Posts : 715
   Posted 6/3/2009 4:35 AM (GMT -7)   
My first symptom was muscle twitching and cramps...until about a month later when I started getting all the other symptoms one by one. I also get wierd sensations in my hands and fingers.
Doctor told me I was most likely presenting with Bartonella at the time. I was finally tested and had a positive Bart titer.

Veteran Member

Date Joined Feb 2003
Total Posts : 9208
   Posted 6/3/2009 4:47 AM (GMT -7)   

Hi tatsu, welcome to the board!

Sometimes people who have Lyme are able to fight off an infection for some time until their immune system becomes suppressed  from an illness, accident, divorce etc.  Then symptoms can emerge.  Below is a Lyme symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

When tick-borne diseases are a possibility, it is very important to see a knowledgeable doctor.  Many doctors do not understand them and treat with outdated protocols.  Besides Lyme, ticks can also transmit co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  

If you need a doctor recommendation, you can email me at ko_@bellsouth.net  

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.  He also has diet, supplement, and exercise recommendaitons.  I also recommend the books "The Lyme Disease Solution" by Kenneth B. Singleton MD and "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner. 

I hope you can find out what is wrong soon.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 6/3/2009 6:46 AM (GMT -7)   
Lymekiller, You need to try and understand that not everyone experiences the same set of symptoms and just because Tatsu does not have brain issues does not mean he does not have Lyme. If you read Ticker's post you will see there are many variables to this disease and not everyone will be effected the same way or respond to treatment the same way. It would be a shame if someone finally came to this forum for help and guidance only to be told they do not have Lyme, when they very well might. I understand why you are so focused on the brain issues because I also suffer terribly with this but not everyone with Lyme does.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 6/3/2009 6:48 AM (GMT -7)   
Tatsu, You definitely came to the right place. Read as much as possible and take Ticker's advice. She definitely knows best. Good luck.

Veteran Member

Date Joined Apr 2009
Total Posts : 1013
   Posted 6/3/2009 11:04 AM (GMT -7)   

i dont know when i was infected, just know i havent been bit by a tick in the last 3 yrs. i have worked at a vets and anamil shelter plus have my own dogs. i use to walk through the woods almost every day for yrs. i never paid much attion to tick just remove em witch for anything odd and go on. i was told 20 yrs ago i had RA, so i just blow off my join pain on that. then i blow out my knee had surgery on it. afterwards 6 weeks of thrapy for it and to help me walk again.to no gain. i started haven eye trouble.doe to this i had a MRI done. it showed 10 to 15 lesions and lyme was 1 of 6 resons for it. so i was tested. came back positive. other then the above. i have stabing pain in most of the body.and the nuero thinks i have low blood flow to my legs. my hands burn and tingle. if u go to turnthecorner site they will send you a list of the LLMD closes to where you live. check this out and see if you can get a Dr. to test you and treat you.

wishing everyone all the best
still looking for answers

New Member

Date Joined Jun 2009
Total Posts : 5
   Posted 6/3/2009 10:00 PM (GMT -7)   
Hello all and thanks for the replies... my situation is a bit unique.

I was pregnant with my second baby when symptoms started to appear (weakned immune system?) and it started in January. I gave birth 5 weeks ago and symptoms still there. The weird ticklish sensation in muscle and twitching and sometimes cramping. Also feels like muscle weakness. I am scared. I am worried cause if I do have lymes will it affect my two babies? They are healthy but not sure if I gave it to them and I am currently breastfeeding. I live on Oahu and anyone know of good doctors to test for lymes? My insurance is with Kaiser.

Veteran Member

Date Joined Feb 2003
Total Posts : 9208
   Posted 6/4/2009 4:48 AM (GMT -7)   

Hi tatsu.  Congratulations on your baby!

Lyme can be passed through pregnancy and breastfeeding.  If you think Lyme disease is a possibility, it would be good to have your children evaluated also.  I do not know of any Lyme doctors in HI.  It you want names of the closest ones I know of, feel free to email me.

I found the following Lyme support group listed for HI:

Hawaii Lyme Support Group
Julie Lucas

This may be a good source for information and doctor referrals.

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