Debbie, I think your feeling down in your gut that yours and your son's symptoms are somehow related is significant. I don't know if you or your son have Lyme disease, but you both certainly have many symptoms of it.
Veromia is trying to steer you in a very important direction. She has a lot of info and knows where a lot of info can be found.
Even tho the western blots w/ standard labs are not sensitive enough and they do not read all the significant bands, surely your Drs would at least start w/ a test like this. Just make sure you push enough to have it read w/in 24 hrs.
My PCP ordered my WB, and it was not positive by anyone's standards. However, I understood my reaction to be significant and have an appt w/ a LLMD. If we can somehow rule Lyme out, fine. Until then, I have reason enough to go this route.
If you can at least start w/ some type of testing, maybe you will gain reason enough to pursue more reliable tests.
My thoughts and prayers are with you and your baby. Mama knows, and you know she knows!
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck, chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain. Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia. What was this??
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG. Still awaiting appt w/ LLMD.