dr's appointments didnt go to good

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/4/2009 3:10 PM (GMT -7)   
well i  had 2 dirrent doctors appointments today first 1 with  my ID. jerk is more like it. 1st off he doesnt belive i have lyme, even why looking at my positive test in his hand. 2nd  he bounced around and he haw'd about abx, till finly said he was going to call in a 3 wk abx for me. well i called to see if it was ready to  pick up. this jusy made things go from bad to worst. he called in a z-pack 7 days with 1 refill. ok the kicker to this is. i told him point blank the program i am on only covers for me to get 3 scrips a month and  i am already on 3 but 1 is cheap enough i can buy, $10. this z-pack is  going to coast me over 50. then he said to me i do not think its lyme, that i have arstyo arthiris.
 
well i know and 6 other Dr.s know i have arthiris but none can state behond a doubt what kind.
 
ok so now to the other Dr. who the disabltiy offce sent me to. she was cold to me. wanted to know i couldnt walk well, after i just told her and it was in my paper work  that my knee was messed up.hmm i just had suergery on it for  the heck of it. grrrrr
then she asked me if i may have fibermyalga. i'm like  never heard of it.lol  i'm not a doctor, hehe. if i was i wouldnt be here now. at this point i am totally ticked off.
 
ok so now i am still without treatment, still in pain, and now i am without any doctor to help me, as there just isnt one here willing to work with me or  knows crap about lyme.
i can so understand why some want to hurt thereselves after dealing with the jerks who think they are doctors. i'm sorry i cant  have  or show respeck to a so called doctor if the  fool will not look me in the eye. so in the Dr.'s words i do not have lyme. i have soem form of arthiris, MS and fibermiagla. wouldnt a lab rat love to study me..hehehe
 
now i think i am going to crawl into bad and cry for the rest of the day.
 
i so hope ya'll have a much better day then i did
   RD
                                                                                                                 
 
still looking for answers
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/4/2009 4:25 PM (GMT -7)   
RD!!!!!! I'm soooooo very sorry you had to go through this!! I know all too well how this feels. I was pretty much laughed at by a doctor here and told that there was NO Lyme Disease here. I had to fight for a referrel from this doctor, but I finally got one. Don't give up yet!! It is probably best that you didn't see this doctor anyway, especially since he knows nothing about Lyme.

about your Z-pack. Zithro is a good antibiotic for Lyme. What mg did he give you? Also, if you can't afford it, try Walmart. I think they have that $4 plan and I think Zithro is on the list. After all that is exhausted and you don't get anywhere, call the nurse and ask her to change the script. That you're only allowed so much and that you can't afford it.

BIG HUGS!!!!
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/4/2009 8:34 PM (GMT -7)   
i tryed that, i know was his way to keep me from the abx i need. i am not sure what name the abx is tho as i didnt go get it. i am not able to go to just any Dr. i have to go to who the program says go to. or they will not pay for it. and i cant. not untill i get my disablty if i get it that is.

i told my friend if i didnt knwo i would go to jail i would of hit him. he was so smug acting. and wouldnt even look me in the eye. how can you possably treat any one if you can look at them. its behond me.

no one should have to go through this at all. shoot he wont even take into account that i wasnt bit here in Tx. i belive i was infected in NJ, i would be covered in ticks daily walking my dog in the woods there. i really this is where both of us got it.
   RD
                                                                                                                 
 
still looking for answers
 


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/4/2009 9:43 PM (GMT -7)   
RD, I am so sorry you for what you went through today and am so mad these idiots treated you this way. You're right they are jerks and shouldn't even be practicing medicine. I believe in karma and one day they are going to get theirs but that certainly doesn't do you much good.

Cajungrl gave you great info about the z-pac which is a pretty good antibiotic. I know it's not much but it's a start.

With any luck you'll be approved for disability and then have better coverage. When I applied for SSDI, I received an approval letter about two months after seeing their doctor. I thought they were going to give me a hard time and I was prepared to have their doctors dispute how sick I was but it all worked out fine. They didn't even bother to thoroughly test my limitations. I guess I looked sick enough and pathetic enough for them to believe me. lol

Anyway, I pray and hope you get your disability benefits soon so more options will be available to you.

Hope you get a good night's sleep and have a better day tomorrow.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/4/2009 10:00 PM (GMT -7)   
Thank you scorpio,

i'm not sure how the disablety report is going to go. i winched in pain almost every place she touched me tho. she wanted me to bend backwards. that was a joke. and i used to do gymnatices. and now i can not even sit up stright it hurts so bad. so then she asked me if anyone had brought up fibermyalga. its this a tag name for pain they cant explan? anyways thats my understanding of it. the nurise there told me it would take about 2 weeks for them to get the Dr.'s report. and i filded for it 4 months ago. there taking there sweet time i tell ya.

its hard to belive 3 or 4 yrs ago i was a bartender working weddings for over 250 folks on my own and everyone was happy, i would lose 5lbs a night running my butt off. now i fight to walk the lenght of my home 60 feet, thats more like a hobble then a walk.

as for a good nights rest, well thats not gonna happen either. i am so upset ticked off and depressed you name i am there. i am looking to a endless disease i can do nothing about. and i have to sit on the sidelines waiting for things to chace to even get treatment. i still say this is so wrong.
i even whent so far as sending a letter into Oprah. anything to get the word out on the misjustes we go thro. one would think by the Dr. if you have lyme it is worse the leppersee. ohh i foreget there is treatment for that and i belive even a cure now. yep we much wrose off. i need to get off here in this moon i'm in.
sorry
   RD
                                                                                                                 
 
still looking for answers
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/4/2009 10:06 PM (GMT -7)   
RD,

I sent you an email. Did you get it?
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/4/2009 10:35 PM (GMT -7)   
yes and i sent you another one back
   RD
                                                                                                                 
 
still looking for answers
 


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 6/5/2009 6:00 AM (GMT -7)   
Sorry it went so bad! That is so wrong!

What has been happening with your neighbor? Is there any chance for something to come out of that?

The ID MD that I saw in PA would not actually say that I had Lyme, but at least was willing to treat me for the 28 days. Even at my appt. on June 1 she said that if my symptoms return, that it wasn't Lyme. The scary part about that is that if my symptoms do come back, and it IS Lyme, I'll be starting over looking for someone to treat me. I know there are actual llmd's around here, but I had to go to where the PCP sent me to start out, and follow that path.

I don't know why it is going so hard for you! Even in PA, where Lyme is known to be, it is not easy to find treatment.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/5/2009 10:11 AM (GMT -7)   
i neightbor was lucky she lived in NJ when she found out she had lyme and the docotrs there where unable to help her for yrs. she had lost a kindy and now has a hard liver. do to the meds they gave her then. anyways they sent her home to die at 1 point. seeing as her family was here in Tx this is where she came to be with her family. got into a study in boston Mas, har PCP here is working with her LLMD in Mas, to treat her. she told me the only reson she is alive today is cause they did cemo on her.
i think half the reson why it is so hard to get treated here is do to the fact there isnt many cases of lyme in this part of Tx, but that dont mean its not here. i for 1 am liven proof of it. i go back to the nuero in 2 weeks. i will ask him if he will treat me for lyme, this is the only opption i have left. if not then i guess i'm on my own. till i either win the lotto or the Dr.'s wake up.
   RD
                                                                                                                 
 
still looking for answers
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 6/5/2009 1:35 PM (GMT -7)   
They have a variation of Lyme Disease in Texas. Former Pres. Bush 2 had/has it.

Forgot what it's called.

Anyways, the thing about having this is your d#$ed if you do and d@#$ed if you don't.

You see treatment by an LLMD is w/o benefit of research, they expect massively high doses to be maintained and because they are booked through to 2021, you may never get in without an act of Congress.

If you knew your diagnsosis (Lyme) and you know what you want, you aren't far from Mexico...Why did you need to see an ID, when everyone seems to know they treat Lyme and not chronic Lyme.
Bit June 08.


Stunned123
Regular Member


Date Joined Apr 2009
Total Posts : 114
   Posted 6/5/2009 1:46 PM (GMT -7)   
Sorry to hear about your bad day. I basically received the same response from the ID Dr. I was referred to. He believes it is Fibromyalgia, not Lyme. I will see the LLMD on the 15th. I cannot wait to hear what he has to say about the situation. Again, I am sorry that both Dr.'s were not more understanding. Nothing is more frustrating than a physician who will not listen to their patient. I mean who knows you better than yourself? Noone.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 6/5/2009 2:14 PM (GMT -7)   
Hi RottenDog, I am so sorry for what you experienced. Unfortunately, it is the same terrible story that most of us lymies have gone through. I hope you are able to get help soon. If you feel up to it, you may want to write a letter to your Congressman, or state representative, about your trouble getting treated and maybe they can intervene and help you. They may know about the Conn. state atty. general's law suit concerning IDSA's lyme guidelines, and may actually take an interest. Also, contact your state's lyme assoc. and ask them for ideas. Also, there are natural treatments you can order yourself, to try and treat this while you are waiting for conventional (western medicine/drugs) treatment. Some members here have used Dr. Jernigan's products, others have used Dr. Zhang's, others use Dr. Cowden's, etc. I think Dr. Jernigan's stuff may be a less expensive way to go? Anyway, this group of diseases seems to take a long time to go into remission, no matter what form of treatment is used. I hope you are able to feel better soon. Hang in there. The more of us that continue to fight, the greater the chances are that we will finally be heard and something will be done to improve the situation. Best wishes to you. bablymers mom

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 6/5/2009 5:06 PM (GMT -7)   
RD:Welcome to Texas and the world of "There is no Lyme Disease here." As you know I am in Dallas and have been on the same LYme Disease merry-go-round and they also know that I come from the East Coast as well. I honestly think we are wasting our time here as I have yet to find anyone to even listen to me in Dallas. Sorry that you were disappointed, I know exactly how it feels. I waited several months to see a doctor at Medical City only for her to tell me that  theres no Lyme here. Dont give up hope, we'll figure it out.  Take care  D

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 6/5/2009 5:25 PM (GMT -7)   
RD, I too am so sorry it didn't go well for you and you are suffering so much. Where there is a will there is a way. You will somehow find a way to get help. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/5/2009 8:26 PM (GMT -7)   
RD, my gosh, I'm sorry! What a nightmare!

In one of my searches, I read about a guy suing his doctor for a misdiagnosis, when he had Lyme. The story went, that the guy lost.

Still, I believe that if I were you, and could possibly get a reputable Dr SOMEWHERE to give me a proper diagnosis, I would get an attorney.

I've barely started and am outraged already. At least my PCP recognizes lyme and admits he can't diagnose or treat it, so he referred me to an LLMD.

When GRAVELY ILL people begin suing Drs for negligence and ignorant stubborness regarding this disease because it is purely POLITICAL to the point that people are suffering needlessly, it is time to become malpractice happy.

Errors are one thing. But to refuse to listen to a patient and to be completely inept in reading labwork is inexcusable. Your pain and suffering are serious. That they are prolonged for these reasons is actually negligence and malpractice. Seriously.
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What was this??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/5/2009 10:14 PM (GMT -7)   
hopingToFindCure. yes i live in Tx. but i am not even close to mexco. Tx is a huge state dont forget, i am closer to Kanasa.

+lyme, my PCP did diagnose me with lyme. he is the one to refure me to a ID. it is the ID who dosent belive in lyme in my mind. i am not one who yells siue everytime i look around, but i am begining to think it is a nesasey evil in this case. heck i dont know maybe i got lyme so i can wake em up enough others wont have to fight this battle. and yes i have the lab copy of my report, showing IgM prositive.

I did call my health dept. today and told them what was going on. they are haven a vet mind you contack me in the next few days. he is the one incharge of lyme recreach here. kinda like the head honcho here. i dont care who i talk to if it will get me treatment.

thank you all for your concerns and compahion.
   RD
                                                                                                                 
 
still looking for answers
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 6/6/2009 3:38 AM (GMT -7)   
RD -- I too called my health department. They didn't help me at all.

I'm glad Texas seems to have a little better customer service -- even if you talk to a vet!

Feel better soon.

Hoping
Bit June 08.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/6/2009 10:16 AM (GMT -7)   
RD, I'm sorry, I don't remember if your PCP positive diagnosis was sero, clinical, or both?  Oh, I just noticed that you had a positive test.
 
why don't you check your yellow pages -- there should be plenty of malpractice attornies listed somewhere around there -- or contact a legal search system. You'd be looking for an attorney willing to take this on, on a contingency basis -- ie; not charge you unless you win. If you have a positive diagnosis, yet you are refused treatment because they do not believe in it, I would think you'd have a case. You sure have plenty of pain and suffering, plus the humiliation of Drs denying the existence of your illness.
 
Even if you cannot prove that Lyme has caused all your arthritis, there is certainly a wealth of solid information out there that chronic lyme causes/leads to arthritis.  I think a Dr would have a heck of a time trying to prove otherwise.
 
I'd sure love to see that Jack A's ID face when he gets slapped w/ court papers....... They think they know everything and yet they know nothing.
 
We certainly need a good precedent!


Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What was this??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.

Post Edited (+Lyme) : 6/6/2009 11:22:21 AM (GMT-6)


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/6/2009 11:53 AM (GMT -7)   
hoping. did you call your local or stated rep. health dept.? i called the state reps. no more talking to the lil peoeple. i'm going to the top brass now.lol. and i will keep calling till someone helps me. if i keep it upfront and in there face long enough, then they cant ingor me, but will have to find me help. and also i thing i stated b4 i sent in a letter to the Oprah show. about what i am going thro. i dont thing Tx. is gonna want its ugly tail of notreatment to go puplic. cause if they do contact me back for a story i will name names.
   RD
                                                                                                                 
 
still looking for answers
 

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