Was anyone else ever diagnosed with Sarcoidosis?

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scorpio1960
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   Posted 6/7/2009 7:13 PM (GMT -7)   
Was anyone else ever diagnosed with sarcoidosis? 
 
I read that there might be a link between sarcoidosis and lyme disease.  I find it interesting because I was diagnosed with sarcoidosis back in the mid to late 80's after a biopsy of my lip. 
 
Around the same time I was also diagnosed with chronic fatigue syndrome because I frequently was sick with flu-like symptoms and upper respiratory infections (fatigue, fevers, sore throats, swollen glands, earaches, etc.).  I continued to get progressively worse throughout the years while repeatedly being diagnosed and treated for chronic fatigue syndrome. 
 
As the years went on the list of symptoms grew until I ended up with 60+ symptoms of lyme disease.  I'm now being treated for lyme and hope it's not too late.
 

veromia333
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   Posted 6/7/2009 9:33 PM (GMT -7)   
Wow I did not know this about you. We all should just remember that any disease without a scource may result from Lyme. and do not rest without a scource because the truth is being hidden from you. Ok start here people with lyme have a decreased immune system so in addition to coinfection symptoms, you may develope symptoms from regular bacteria that healthy people are exposed to everyday but are easily able to despose of. You do not easily dispose of this as a lyme patient. Sarcoidosis is scaring of the lungs I believe. Bacilli bacteria is in soil, in our food,many things. but normal people disposed of it easily as a nice poop, that to you, may have become a migrane headache and body pain and vomiting and then the bacilli infection goes to your lung causing a sight cough in the morning that decreases during the evening. this may cause scar tissue and a sarcoidosis type symptom. There you go. thanks for your response to me i appreciate it. I like to respond to people who respond to me. -V
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Razzle
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   Posted 6/8/2009 1:48 AM (GMT -7)   
Some cases of Sarcoidosis may be caused by mycoplasma - a Lyme coinfection. Most info on Sarcoidosis say it is a granulomatous inflammatory disorder that may go into remission on its own in a few years. One of my doctors thought this disease should appear on the list of possibilities for me, along with Lupus and a few other nasties...but Lyme was not on the list. They ruled out Sarcoidosis shortly thereafter because I didn't have persistant respiratory symptoms. Interestingly, Dr. Marshall's Vitamin D protocol seems to be effective for some with Sarcoidosis...

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


scorpio1960
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Date Joined Jan 2009
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   Posted 6/8/2009 7:45 AM (GMT -7)   
Believe it or not the sarcoidosis was present in my lip, not my lungs. I had a tiny hard mass in my lower lip that was getting bigger. After meeting with a few different doctors, a plastic surgeon did a biopsy and at first the labs at I believe Columbia could not figure out what it was. When I was diagnosed the doctors were stumped because I didn't fit the profile at the time. It was a fairly new disease and very little was known about it. I had cortisone injections in my lip every month for a while until it eventually disappeared.

The upper respiratory infections were not from the sarcoidosis and was attributed to a weak immune system.

What's weird is that for the last few years as I was becoming sicker, my lower lip had been getting swollen and inflamed at times and I was told it was probably an allergic reaction but I could not figure out to what. When I started the oral antibiotics, my lip became very swollen and blistered and even since I have not had any problems with my lip.

My list of other symptoms is extremely long and I now think that most of what I've been experiencing for the past 20+ years was and is from Lyme Disease.

veromia333
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Date Joined Mar 2009
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   Posted 6/8/2009 8:02 AM (GMT -7)   
Of course it is. Im saying that what causes sarcoidosis is lyme and sarcoidosis is a specific lyme symptom. maybe from a specific type or borrelia or just the way it effects a certain person. Borrelia are able to bind with our DNA and borellia has granulose srtucturing in certain phases of its spirochete life. Thus the granular type imflamatiom of a disease of unknown origin sarcoidosis
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 6/8/2009 8:03 AM (GMT -7)   
sarcoidosis will become a lyme phase, or of other origin not a disease, a symptom

Post Edited (veromia333) : 6/8/2009 3:42:40 PM (GMT-6)


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 6/8/2009 9:28 AM (GMT -7)   
Thanks for the info. That's exactly what I read somewhere but couldn't remember more than there's a link between the two.

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 6/8/2009 2:28 PM (GMT -7)   
I just wanted to add that sarcoidosis can also result from a toxic mold exposure.  D

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 6/8/2009 2:46 PM (GMT -7)   
We all should just remember that any disease without a scource MAY result from Lyme. and do not rest without a scource because the truth is being hidden from you.
I didnt mean to imply all sarcoidosis is lyme, only that it is not its own disease it has a causitive agent.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/8/2009 2:48 PM (GMT -7)   
It could also explain why some people are not effected by mold and some are who have a weak immune symptom.
Im just flabbergasted by the truth about lyme and i want it out.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 6/8/2009 5:20 PM (GMT -7)   
Interesting info about the mold exposure. I don't think this applies to me though. I lived in my family's house most of my life at that point and there was never any flooding or water damage. The house is old but was in the family since it was built.

The coop I live in now is another story. There was a problem with the roof and flooding last year and who knows how many times before then. The apartment was tested and everything came back fine but who knows. Are there any blood tests that would indicate exposure?

Weary1
Regular Member


Date Joined Oct 2006
Total Posts : 127
   Posted 6/8/2009 6:47 PM (GMT -7)   
HI,
 
I recently was contacted by two people diagnosed with sarcoidosis.  They were both just tested for Lyme with Igenex and I believe at least one was positive.
www.chicagolyme.com
 
"Greater things are yet to come and greater things are still to be done in this city" - Chris Tomlin
 


scorpio1960
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Date Joined Jan 2009
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   Posted 6/8/2009 7:39 PM (GMT -7)   
Interesting!

Ryman
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Date Joined Mar 2017
Total Posts : 6
   Posted 4/14/2017 7:11 AM (GMT -7)   
I had nodules removed from my lungs about 7 or 8 years ago and was told they were sarcoidosis. Last year I was treated for Lyme. No one ever mentioned the sarcoidosis until I saw a neurologist yesterday. She seems to feel all the problems I am having are a result of the Lyme and sarcoidosis. I have to have a spinal tap which I am dreading.

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 4/14/2017 7:26 AM (GMT -7)   
What's the spinal tap for, Ryman? If it's for Lyme, you need to know that there are not a lot of positives that come from spinal taps.

But whatever it's for, best of luck!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27963
   Posted 4/14/2017 9:08 AM (GMT -7)   
I agree with Traveler about the spinal tap. Not only is it very unreliable for lyme diagnosis - there are risks involved. I don't think the risks outweigh the benefits.

Also..you were previously diagnosed and treated for lyme disease after a tick bite, right?

I'm thinking that maybe you were undertreated....or you've had a relapse?

Did you treat to symptom resolution + several weeks?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
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Date Joined Nov 2015
Total Posts : 4441
   Posted 4/14/2017 12:34 PM (GMT -7)   
Imho i believe bartonella causes cysts that the body tries to wall off...
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