Lyme sx check list

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Veteran Member

Date Joined Apr 2009
Total Posts : 1013
   Posted 6/9/2009 12:44 PM (GMT -7)   
  • The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
  1. Rash at site of bite
  2. Rashes on other parts of your body
  3. Rash basically circular, oval and spreading out (more generalized)
  4. Raised rash, disappearing and recurring .     none of the above for me
  • Head, Face, Neck

  1. Unexplained hair loss.  no
  2. Headache, mild or severe, Seizures . yes
  3. Pressure in head, white matter lesions in brain (MRI) . yes
  4. Twitching of facial or other muscles . yes
  5. Facial paralysis (Bell's Palsy, Horner's syndrome) .  no
  6. Tingling of nose, (tip of) tongue, cheek or facial flushing . yes
  7. Stiff or painful neck . yes
  8. Jaw pain or stiffness . yes
  9. Dental problems (unexplained) . yes
  10. Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose . yes

    • Eyes/Vision

  11. Double or blurry vision . yes to blurry only
  12. Increased floating spots . no
  13. Pain in eyes, or swelling around eyes . yes
  14. Oversensitivity to light . yes
  15. Flashing lights/Peripheral waves/phantom images in corner of eyes . yes

    • Ears/Hearing

  16. Decreased hearing in one or both ears, plugged ears . no
  17. Buzzing in ears . sometimes
  18. Pain in ears, oversensitivity to sounds . yes
  19. Ringing in one or both ears . sometimes

    • Digestive and Excretory Systems

  20. Diarrhea .yes
  21. Constipation . yes
  22. Irritable bladder (trouble starting, stopping) or Interstitial cystitis . no
  23. Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease) . sometimes

    • Musculoskeletal System

  24. Bone pain, joint pain or swelling, carpal tunnel syndrome . yes
  25. Stiffness of joints, back, neck, tennis elbow . yes
  26. Muscle pain or cramps, (Fibromyalgia) . yes

    • Respiratory and Circulatory Systems

  27. Shortness of breath, can't get full/satisfying breath, cough .sometimes,but i smoke too
  28. Chest pain or rib soreness .very little but yes
  29. Night sweats or unexplained chills . sometimes
  30. Heart palpitations or extra beats .yes at night when trying to sleep
  31. Endocarditis, Heart blockage . not that i know of,eco was good

    • Neurologic System

  32. Tremors or unexplained shaking . very little
  33. Burning or stabbing sensations in the body . yes everywere
  34. Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis .yes
  35. Pressure in the head .yes
  36. Numbness in body, tingling, pinpricks .yes
  37. Poor balance, dizziness, difficulty walking . yes
  38. Increased motion sickness .no
  39. Lightheadedness, wooziness. yes 

    • Psychological well-being

  40. Mood swings, irritability, bi-polar disorder . yes
  41. Unusual depression . yes but who wouldnt  with what we go thro
  42. Disorientation (getting or feeling lost) . no
  43. Feeling as if you are losing your mind .Dr.'s  are the cause of this in my book. lol
  44. Over-emotional reactions, crying easily .sometimes
  45. Too much sleep, or insomnia .yes
  46. Difficulty falling or staying asleep .yes
  47. Narcolepsy, sleep apnea .no
  48. Panic attacks, anxiety .yes to anxiety

    • Mental Capability

  49. Memory loss (short or long term) .dont we all at times
  50. Confusion, difficulty in thinking .no
  51. Difficulty with concentration or reading.somewhat
  52. Going to the wrong place . no
  53. Speech difficulty (slurred or slow) . no
  54. Stammering speech . no
  55. Forgetting how to perform simple tasks. no 

    • Reproduction and Sexuality

  56. Loss of sex drive . yes
  57. Sexual dysfunction . not
  58. Unexplained menstral pain, irregularity .nope been
  59. Unexplained breast pain, discharge .no
  60. Testicular or pelvic pain . yes

    • General Well-being

  61. Phantom smells . yes
  62. Unexplained weight gain, loss .yes but  heck i havent been able to  walk for 2 yrs you will gain weight
  63. Extreme fatigue . yes
  64. Swollen glands/lymph nodes. sometimes 
  65. Unexplained fevers (high or low grade) .sometimes
  66. Continual infections (sinus, kidney, eye, etc.) . i have them but not offen
  67. Symptoms seem to change, come and go .yes
  68. Pain migrates (moves) to different body parts .yes
  69. Early on, experienced a "flu-like" illness, after which you have not since felt well. i cant remeber 
  70. Low body temperature .yes avg temp runs 97.6 always has tho
  71. Allergies/Chemical sensitivities .yes but always have been
  72. Increased effect from alcohol and possible worse hangover. yes stoped drinking  yrs ago cause of it.


ok i am doing this for all to see only cause i would like

your input on what you think. and also maybe some of

you would like to check off the sx you have  for a running

count, and then make a copy for you Dr. later. this is my

plan for when i get my printer fixed.


wishing everyone well

still looking for answers

Veteran Member

Date Joined Apr 2009
Total Posts : 1013
   Posted 6/9/2009 9:59 PM (GMT -7)   
bump this up so you can see my check list and tell me what you think v what a Dr, should or would think
still looking for answers

Veteran Member

Date Joined Mar 2009
Total Posts : 674
   Posted 6/9/2009 10:41 PM (GMT -7)   
to me this means you hve long term lyme and some coinfections
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

Forum Moderator

Date Joined May 2007
Total Posts : 35859
   Posted 6/10/2009 7:08 AM (GMT -7)   
Wow. RD!!!
Your list is almost as long as mine!!! I would agree with Veromia, though. LD is most likely responsible. It was just assumed that I had co-infections while I was seeing an LLMD.
I had to be on abx for 1 year before I tested pos. for the CDC standard.
- Traveler

Veteran Member

Date Joined Jul 2007
Total Posts : 943
   Posted 6/10/2009 8:33 AM (GMT -7)   
I would say Chronic Lyme, Babesia and bart.
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!

Veteran Member

Date Joined Apr 2009
Total Posts : 1013
   Posted 6/10/2009 1:40 PM (GMT -7)   
thank you for your input. my ID hasnt even once said anything about checking for coinfections either.
still looking for answers

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 6/11/2009 1:38 AM (GMT -7)   
I wish I could copy and paste so I can join in too. I can't even drag my butt to the computer right now. Oh well, I'll bump this up for you RD!!

Btw, there is no way you don't have Lyme with that list.
My Birthday is Today!!!!

2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

Veteran Member

Date Joined Apr 2009
Total Posts : 1013
   Posted 6/11/2009 10:46 AM (GMT -7)   
Thank you CG,
its funny you me and the others here all see it and we'er not Dr.'s but the flippin Dr.'s dont see it or want to treat it so sad. here is the kicker i have tendinice in my right wrist, but lately i have had the same pain in my left for no reason at all told the ID about it and he comes back with you have carpeltunnal. i told him i dang sure did not. i use the hunt and peck methed to also it dont just show up out of the blue then come and go. he is such a jerk
still looking for answers

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