Jendays, I am very sorry about
your illness too and about
how bad you feel. And I understand you questioning all of this. I know it seems like everyone is pushing you to have Lyme.
Maybe we are all one track minded here, but you're here w/ us for some reason -- because Lyme is suspect w/ you, obviously. My understanding that IND on lyme specific bands make us highly suspect of Lyme. Because there was some kind of reaction, just not strong enough within the guidelines to state positive. So I sure would suspect Lyme and would do all I could to rule it out before quitting, even tho that's really difficult.
Also, the symptoms you last complained about
can be caused by many things having nothing to do w/ MS. They could indicate Lyme, they could be caused by the stress/anxiety induced by Lyme. Or hypoglycemia induced by Lyme.
Maybe once you've been on treatment for a few weeks you could get the Dr to run another wb and see if anything has changed. I know Lyme is difficult, but that sure sounds like something your Dr should consider, considering the alternatives to Lyme (or Lyme induced MS)
Everyone on this post has made significant points. I'm not saying that we know we are right, but I think you should include all these considerations while you are struggling to learn what is wrong.
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck, chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain. Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia. Was this a TBI??
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG. Still awaiting appt w/ LLMD.