I need alot of information on congenital lyme symptoms.

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veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 6/20/2009 3:56 PM (GMT -7)   
My daughter has been healthy basically but some small strange things have occured. Any info on congenital lyme please. I am watching her while i wait for testing time.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 6/20/2009 10:34 PM (GMT -7)   
is this as unknown as it seems
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 6/20/2009 10:39 PM (GMT -7)   
There's not a whole lot out there, but here's some...

* Infants either infected congenitally or from breast milk can have


- Floppiness with poor muscle tone

- Irritability

- Frequent fevers and illness early in life

- Joint sensitivities and body pain

- Skin sensitivity

- Gastro esophageal reflux

- Developmental delays

-Learning disabilities and psychiatric problems


Infants infected congentially can have


-Small windpipes (tracheomalacia)

- Eye problems (cataracts)

- Heart defects


I'll do some more searching tomorrow, okay?

J
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 6/20/2009 11:09 PM (GMT -7)   
thank you
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 6/21/2009 12:40 PM (GMT -7)   
Hey V,

I can't really find a lot of stuff on this. Is there something specific your daughter has that maybe we could google along with 'congenital lyme' and see if its a match?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/21/2009 3:29 PM (GMT -7)   
Thank you Jen,

I know I can usually find anything that is why I was trieing to ask the mothers here. -
- Well her appetite has been bad.
-she runs fevers of 100 despite healthy activity,
-She has been to the ER when she would just be listless out of nowhere and just seem to look like she was just going to fall asleep in a narcoleptic way, and run a fever durring this,
-blood work done they know nothing, said oh its just a virus,
-she has been pooping a very dark black slightly green. but it is black mostly. --When she was born for a few months she had a bruisy rash on the back of her neck that would come and go and change shape. -It isnt there anymore-
-She also had diaper rash to this day she gets it. her but must be washed frequently through the day so that the rash doesnt get bad, and vaseline every diaper change.

-her brain is beautiful though she is a genious , she does baby sign language (she is hearing they say doing sign language developes vocabulary stronger because they are communicating at an earlier age, she was doing 3 signs at 7 months it is wild to see... milk, more, and all done. Now at 21 monthe she says please ,thank you , your welcome, are you ok I love her so much.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

Post Edited (veromia333) : 6/21/2009 4:32:34 PM (GMT-6)


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/23/2009 8:34 AM (GMT -7)   
Has her doc requested a stool sample?  Have you told her doc about the black stools?  They might want to test it or at least ask about her diet.  I have to wonder about the bruisy rash on the neck thing.  Did you get a picture of it, or did her doc see it?
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/23/2009 12:35 PM (GMT -7)   
Black stool can mean several things. You should definitely have that checked. She could have an ulcer or H-pylori. I sure hope not. Poor baby.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/23/2009 1:01 PM (GMT -7)   
Black stool can also mean to much iron. you definitely need to have her checked out. praying for you both.
   RD
                                                                                                                 
 
still looking for answers
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/23/2009 2:08 PM (GMT -7)   
Yes I dont think i have a picture of the bruisy rashy thing because i didnt know we may have lyme at the time. Someone in my family said it was a birth mark and that was all i thought until I read about it being a symptom of congenital lyme. She goes to the doc soon I'm going to bring the information to her doc about ordering the igenex western blot, hopefully she does it so i dont have to pay millions for her first lyme doc apts.
Developementally she is perfect though , thank you guys i will kp updated
--any more info is needed
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

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