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Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 6/24/2009 9:39 AM (GMT -7)   
Does anyone feel in their hearts that they will never get better? That they'll never feel somewhat normal again?
Is there anyone who had this gut feeling in the beginning, and now they ARE better?
I'm really confused...I think I might be in denial and just going with treatment because I'm really not sure what I would do if I stopped it. At least with treatment there is a possibility that things will change. If I stopped, I'd just sit here and rot and probably eventually call it quits.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month

Veteran Member

Date Joined Feb 2003
Total Posts : 9208
   Posted 6/24/2009 2:23 PM (GMT -7)   

Hi Jendays247.  I think that many, if not most, people who have Lyme have this feeling.  It is understandable.  Lyme is a serious disease with so many symptoms.

You definitely can get better with treatment.  It may be a tough road and take time, but you are definitely better off getting treated than not.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 6/24/2009 6:03 PM (GMT -7)   
Hey Jen, I feel that way so often too but then remember that there is a possibility as long as I continue with treatment. It's understandable that we feel this way. Just keep in mind that there are quite a few people who did not feel any improvement at all until the 18th or 24th month of treatment. Hang in there and don't give up.

Veteran Member

Date Joined Apr 2009
Total Posts : 1304
   Posted 6/24/2009 6:24 PM (GMT -7)   
Jendays, I don't know if this feeling will last, but when I learned about this TBI, I experienced my first real HOPE of getting better. For the past couple of years I have searched for what might be wrong w/ me, starting to accept deep down that I was just mentally ill and would only get worse, never better. I've lived in fear of my friends and co-workers 'discovering' how ill I really was.

I hope, deep down, for you, that you are able to tell yourself, deep down, that now that you know what is wrong, and now that you have started solid treatment, you will only get better. As the others say, maybe it will take time and maybe you will still suffer some bumps. But hopefully, now that you have a diagnosis, your chances of getting well are greatly multiplied!

And I mean that from the bottom of my heart. Do please stop telling yourself that you will never get well. I once read a story about a very talented athlete who was so humble as he was constantly winning, that he would say, 'Well, I'll probably get heart cancer and die.' That was his favorite come back. Story goes, he died young, w/ the very rare heart cancer. I don't know if it's true, but it was written as a true story. It at least teaches us to tell ourselves more positive stuff.

Hopefully very soon you will be able to say, 'Now I have seen the worst of it. Now I will get better. Take THAT you stinking Rat B'strd spiros!!'
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.

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