Thank you all so much for all of your responses. I don't have much time right now but wanted to thank you for taking time to respond.
I am not denying that lyme's docs do not adequately diagnose their patients, however, when there are so many symptoms of lyme's that coincide with other disorders, it is difficult for me to agree that a clinical diagnosis is always correct. I have also read before that lyme's docs can make a LOT of money, way more than their peers in private practice who deal with insurance and work many more hours, so I couldn't help but wonder if *some* lyme docs are just in it for the bank. However, I think the lyme docs who test for a lot of other conditions to rule them out sound very thorough.
I have no diagnosis, and a long list of symptoms. Doctors have diagnosed me in the past with POTS and CFS. However, I went and found myself a POTS specialist and a CFS specialist, both of whom ruled out those conditions. So doctors continue to search for a cause of my problems. I have to be honest, and don't intend to offend anyone here, but I am not one who agrees that an undiagnosed illness with symptoms like that of CFS, or fibro, or POTS must mean lyme's disease. I do think it is very possible for a lot of things to go wrong with the body, much of which doctors don't know or understand yet. I am very fearful that being as desperate for an answer as I am, for I went from a totally healthy 23 year old with no health problems at all, to having over 50 crushing symptoms, that I would be willing to hear and do anything. I can't imagine a reason a lyme doc wouldn't diagnose me with lyme's. I have most of the symptoms and have had everything ruled out. So naturally, lyme's is looking like the major possibility. But I don't want someone to just tell me that because he/she knows I'm desperate and see dollar signs in his/her eyes.
I do not like to take any medications or supplements, so for me to even trail doxy for three or so months would be difficult for me. I would do it if I, and my doctor, really believed that this was lyme's. Plus, all of that would be SO expensive for me. I was living in Africa prior to getting sick, had just graduated from college before I went to Africa, so I don't have savings or a cushion to support this. That's really my main concern, I think. The money. I just don't want to be led on because of my obvious desperation for an answer.
I hope this makes sense, and like I said, doesn't offend anyone by coming out wrong. I am not thinking clearly today (head and neck pressure is killing me) so I am sure my wording is not the best. I do believe in lyme's and lyme docs, but I don't think everyone with a chronic undiagnosed illness has lyme's. In fact, I think many don't. And I think I could be one of those people. I did'nt have a rash, I only had a positive 41 and an indeterminate 31, so I don't have a strong case to believe I have lyme's. I just don't want a doctor to clinically diagnose from my symptoms and empty my pockets.
Thanks again everyone!