EMG test today

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/25/2009 7:53 PM (GMT -7)   
well i had a EMG test today, it wasnt good, 1 i was told i have Neuropathy in both legs and Sciatica in my right leg. i do not know what is to be done  for it yet or if they can do anything.
 
anyone have this? can it be caused by lyme?
 
if you have never had this done b4 do not just into it. it hurts as bad as it gets. they electorcute you then stick your mussales. i am still haven spasum from it 5 hrs later.
   RD
                                                                                                                 
 
still looking for answers
 


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/25/2009 9:04 PM (GMT -7)   
RD, I've had 2 one in 2001 and the other in 2007.  I also have neuropathy.  The first on didn't that bad, but the 2nd one was pretty brutal.  The Nuero that did the test just sent me for PT which didn't really help much.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/25/2009 9:18 PM (GMT -7)   
RD,

I'm so sorry you had to go through that. I wish I could have been there to hold your hand. I've heard that people with Lyme Disease do have Neuropathy. I've read that many times.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/25/2009 9:28 PM (GMT -7)   
i wouldnt advise anyone to go thro that hello. after i had knee suregery i was in PT for 6 weeks. it didnt help me much at all. matter of fact i am worse now then b4. i am pigonfooted to start with, but now my right foot i can not turn it out at all, i can almost stand facing out on a line and my foot would be on it heel to toe.

CG you wouldnt of wanted to be there, i almost punched a hole in the wall. thats how bad it hurt me. he was like women handle this better then men. then asked if i had kids. i said 2. he then said if i could deal with childbirth then this was easy.
well i had them over 20 yrs ago, all nat. no meds at all. shoot i was lucky they had time to dressout..lol

anyways i told him that was yrs ago and i have been in extrem pain for over 2 urs now. he was just putting icying on the cake now. and i couldnt take it.

i wonder of the nerve damage is do to lyme tho, as in if and when i get treatment will it or can it get better? or this a perm thing. do i have a wheelchair to look unforeward to?
   RD
                                                                                                                 
 
still looking for answers
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/25/2009 9:52 PM (GMT -7)   
I had both of my kids natural.....no meds, and I think this Lyme pain is worse than giving birth! I guess cause it's so constant. I couldn't imagine what you are going through now.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/25/2009 10:05 PM (GMT -7)   
Yes I had this done recently, I also have peripheral neuropathy. Neuropathy is a chronic lyme symptom.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/25/2009 10:41 PM (GMT -7)   
RD, I am so sorry you had to go through that today. I had an EMG quite a few years back and yes it was most definitely not pleasant. Actually, it was like torture. I also remember having a problem walking right afterwards. I made the decision right then and there never to do a repeat. Some other doctor a few years later suggested it again and I said no so firmly and quickly the subject was immediately dropped.

As others have said, Lyme Diease can cause neuropathy. I believe there's a chance it can be reversed with treatment.

You really deserve a break and I'm praying one comes your way soon.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/25/2009 10:53 PM (GMT -7)   
I second that!!
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/25/2009 10:59 PM (GMT -7)   
thank you so much scorpio, you both make me laugh and cry. i laughed at your telling themm no way to retesting for EMG, cause i can just pic it in my mind how i would do if they came at me for another one...lol katey-bar-the-door she coming thro. cause i would run like the hounds of hello were on my heels. or hobble that is..lol

i so pray this is not perm and if and when i get treatment it goes away or gets better. for 2 yrs now i have prayed daily to be able to just walk my dogs again. i miss it so much. i cry knowing i cant walk with my grankids. and to knwo i have the prayers of others makes me cry all the harder.

we all deserve a break. and i pray for this most of all.
   RD
                                                                                                                 
 
still looking for answers
 


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/25/2009 11:16 PM (GMT -7)   
Oh RD. Please don't cry. Of course you have our prayers and support.

I'm glad I made you laugh. I'm not sure the doc knew what to make of me. Doesn't matter much because he's history now. lol

bonnawanna
Regular Member


Date Joined Dec 2015
Total Posts : 98
   Posted 9/19/2016 11:04 AM (GMT -7)   
I am a chronic Nuero Lyme sufferer who has a compromised CNS-I also get bad headaches, along with uncontrollable shaking/anxiety at times. I have also been having bad stomach issues recently, and I just had a non contrast abdomen MRI(results OK), which made my Lyme feel really weird for the last couple of days. Now I am slated to do an EMG tomorrow to test my nerve damage, and after the way I felt from the MRI, and reading some of the posts on this sight, I am getting very concerned about doing the EMG test. It seems like every procedure I have done in the last couple of years has set me back with my Lyme. I would REALLY appreciate ANY feedback on this subject.

Best,

rjb

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27920
   Posted 9/19/2016 11:12 AM (GMT -7)   
Are you also getting NCS?
Often both are done at the same appointment.

I had both done.

One of them was placing pads on the surface of the skin...not so bad...but the other one was little needles and it hurt..I wasn't prepared for it to hurt.

I was fine after - it didn't set me back at all.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

bonnawanna
Regular Member


Date Joined Dec 2015
Total Posts : 98
   Posted 9/19/2016 11:18 AM (GMT -7)   
Thanks for getting back to me so quickly. Do you have Central Nervous System issues from Lyme, and did the EMG make your CNS(and any other Lyme symptoms) flare ups worse.

Thanks,

rjb

jrpsf
Veteran Member


Date Joined Aug 2014
Total Posts : 1662
   Posted 9/19/2016 11:19 AM (GMT -7)   
rjb-Lyme creates so many issues that mirror issues that require these kinds of tests to determine the right course of treatment. I had three EMG tests over a period of about ten years prior to my getting bite. The tests were to assist my neurologist in determining the severity of my cervical spine damage and nerve impingement. Lyme definitely creates all kinds of sensory issues regarding our nerves but none of it tests positive. An EMG is a really annoying/painful test that I highly recommend you avoid.

As you continue to treat the disease the issues will correct. Aggravating the areas and causing your body more stress can only set you back.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/19/2016 11:28 AM (GMT -7)   
I too had increased issues after an EMG - this is the one that they place little needles in the skin. It wasn't the needles that hurt though, it was the electrical impulses that they send through those needles that hurt and not so much during the testing - although it was quite uncomfortable - it was the increase in nerve issues that continued for a long time afterwards that was worse.

I realize that there are some very good reasons to have an EMG done, but if it's just checking things out, I avoid them now. No reason to create more issues for me to live with just to satisfy a doctor's curiosity.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

bonnawanna
Regular Member


Date Joined Dec 2015
Total Posts : 98
   Posted 9/19/2016 11:28 AM (GMT -7)   
Thanks-I think you're right-I was once given steroids in the hospital before an angiogram, and I'm pretty sure that set me back at least 3-6 months in my treatment. My LLMD believes my CNS is compromised, and he thinks it will eventually heal itself(but it will take some time). Unfortunately there are times when an prescribed Ativan is needed in order for me to calm my nerves down, which are WAY over stimulated. I am currently on Dr Zhang's Chinese Herbal Protocol.

rjb

bonnawanna
Regular Member


Date Joined Dec 2015
Total Posts : 98
   Posted 9/19/2016 11:53 AM (GMT -7)   
Traveler-I am going opt not to do the EMG, at least for now. My nerves are so wired right now-coming off the MRI and the Harvest Moon, that if I did the EMG-I think I would probably feel like I got hit by lightning. Thanks for everyone's input on this. I guess I already I have damage to my CNS-why risk making it worse.

rjb

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/19/2016 11:55 AM (GMT -7)   
I don't blame you one bit. If it's not going to lead to a change in treatment, or it's needed to help rule out something because there are other tests that can be done, I'd opt out as well. I'm the one that has to live with the after effects of it, not them. But I'm ornery like that! LOL!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

bonnawanna
Regular Member


Date Joined Dec 2015
Total Posts : 98
   Posted 9/19/2016 12:04 PM (GMT -7)   
Thanks-I wonder if they can really tell nerve damage from Lyme anyway.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 9/19/2016 12:14 PM (GMT -7)   
I think with a biopsy they can, but I won't submit for one. LOL!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

AzerilA
Regular Member


Date Joined Jul 2016
Total Posts : 148
   Posted 9/19/2016 12:52 PM (GMT -7)   
My experience. I have extreme nerve issues in my hands. Mostly right
I had emg ncs done. Tests showed normal. The needle test wasn't that painful. The electrode with gel test hurt more. Don't feel any better or worse after these tests.

bonnawanna
Regular Member


Date Joined Dec 2015
Total Posts : 98
   Posted 9/19/2016 12:58 PM (GMT -7)   
Thanks for the head's up-I am assuming your right hand nerve issues are Lyme related. Mine are in my legs, arms and chest(legs are the worst). My nerves feel like they are racing very rapidly-it is a vey uncomfortable feeling.

rjb

jrpsf
Veteran Member


Date Joined Aug 2014
Total Posts : 1662
   Posted 9/19/2016 2:53 PM (GMT -7)   
Nerve damage feels like your blood is acid. An EMG is at least partially designed to determine the source of the nerve damage. For instance my results indicated that my damage was stemming from C 5-7 and my later tests indicated new damage that was coming from C-8.

rjb- what you are describing at least to me sounds more like rippling muscle spasms. Are you taking anything to reduce inflammation like a high dose of a top quality omega 3?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27920
   Posted 9/19/2016 2:56 PM (GMT -7)   
I'm wondering if you're experiencing fasciculations? (twitches in the muscles)

Nerve damage can be burning pain, numbness, tingling.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

robby vieira
Regular Member


Date Joined May 2016
Total Posts : 395
   Posted 9/19/2016 8:32 PM (GMT -7)   
I got it done in my entire body including my face... to be honest it was a walk in the park... I would choose repeat my EMG every day instead of dealing with the pain that I have in my body.
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